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12/04/2015 - 10:58am

In just two years, 21 MDF support groups have been launched throughout the U.S., Canada and Switzerland. Several more are poised to launch in early 2016 in Northern California, Dallas, South Miami, and Virginia. None of this would be possible without the dedicated facilitators who form the backbone of our community.

11/23/2015 - 7:26pm
Generous MDF Supporters Will Match Your Gift!  (UPDATE 12/1: The Boekelmann family has increased the match! Now all MDF gifts up to a total of $15,000 will by matched with an additional $15,000 (up from $10,000)! 

 

11/06/2015 - 12:15pm

As part of our investment in the development of effective treatments for myotonic dystrophy, MDF is helping develop what is called "benefit/risk" information for regulatory agencies reviewing potential therapies.

10/10/2015 - 7:30am

MDF hosted the Myotonic Dystrophy Patient-Centered Therapy Development Meeting in Washington, D.C. on September 17, 2015. The regulatory workshop featured speakers from academia, industry and the FDA. 

09/10/2015 - 11:31am

MDF Chief Science Officer Sharon Hesterlee shares her initial thoughts on the newly-released FDA draft guidance for industry on drug development for rare diseases.

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