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09/10/2015 - 11:31am

MDF Chief Science Officer Sharon Hesterlee shares her initial thoughts on the newly-released FDA draft guidance for industry on drug development for rare diseases.

08/13/2015 - 12:38pm

The 21st Century Cures Act (H.R. 6) is a rare bipartisan initiative launched by the House Energy and Commerce Committee. While there are many factors that drove this effort, fundamentally it was a recognition that despite significant medical progress, there are 10,000 known diseases or conditions, but we only have cures and treatments for 500 of them.

07/08/2015 - 4:51pm

On Friday, July 10, 2015, the 21st Century Cures Act (H.R. 6) passed the US House of Representatives with an overwhelming 344-77 majority!

03/24/2015 - 2:28pm

Dr. Sharon Hesterlee reports back on MDF's involvement with the Muscular Dystrophy Coordinating Committee.

03/10/2015 - 1:37pm

For the second year in a row, MDF represented the DM community in Rare Disease Week activities on Capitol Hill and at the National Institutes of Health as part of the Rare Disease Legislative Advocates conference.

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