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03/24/2015 - 2:28pm

Dr. Sharon Hesterlee reports back on MDF's involvement with the Muscular Dystrophy Coordinating Committee.

03/10/2015 - 1:37pm

For the second year in a row, MDF represented the DM community in Rare Disease Week activities on Capitol Hill and at the National Institutes of Health as part of the Rare Disease Legislative Advocates conference.

02/25/2015 - 1:13pm

FDA's Orphan Drug Program is designed to encourage pharmaceutical companies to develop drugs for rare or 'orphan' diseases that might otherwise not be appealing to industry.

09/26/2014 - 3:31pm

On Friday, September 26, 2014, the MD-CARE Amendments were signed into law by President Obama!

07/23/2014 - 12:00pm

Exciting news out of Washington, DC: the House of Representatives' Energy & Commerce Committee ordered the MD-CARE Act to advance to the House floor!

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