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11/16/2015 - 2:44pm

The Myotonic Dystrophy Foundation partnered with Silicon Valley Research Group to develop a survey to better understand how people with DM weigh the benefits of new treatments again the risks. 

11/04/2015 - 11:06am

In honor of National Family Caregivers Month, and to celebrate the many critically important caregivers in the MDF community, we’ve taken a look at the status of caregiving today. 

08/10/2015 - 12:40pm

Mike Hamlin reflects on launching the MDF Support Group in Washington, DC.

07/16/2015 - 2:59pm

Since the discovery of the mutation causing DM1 was discovered in 1992, researchers have been trying to understand how the DNA mutation causes such a wide variety of symptoms. A new study may have found a genetic link between DM and Duchenne muscular dystrophy, potentially explaining the progressive muscle deterioration that occurs in adults with DM1

05/19/2015 - 9:25am

Researchers at the University of Virginia recently published a paper describing a biological pathway they believe may be responsible for muscle degeneration in DM1.

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