Dr. Tetsuo Ashizawa, MD, has focused his career on the search for DM treatments and care for those affected. His multi-disciplinary, patient-centric approach to care moves DM research out of the lab and into his clinic at the University of Florida.
Dr. John Vissing and his colleagues at the University of Copenhagen recently tracked a group of 68 adults with myotonic dystrophy type 1 (DM1), measuring their endocrine function change over 8 years.
A comprehensive multidisciplinary DM clinic is scheduled to launch late 2014 at the University of Iowa Hospital providing easily accessable services for patients.
The DMCRN was established a little over three years ago to evaluate potential DM treatments, prepare possible clinical trial sites and conduct important DM research studies.
Dr. Darren Monckton is an internationally-known DM researcher who provides valuable information to the MDF community. Check out his videos and upcoming webinar that will explore the significance of CTG repeats for people with DM and how to understand blood test results.