Throughout the year MDF has dispatched members of the team to local events around the country to raise disease visibility and distribute resources. Here is a recap of the different events we have attended so far this year.
MDF is celebrating a milestone anniversary: Ten years of driving Care and a Cure for myotonic dystrophy via programs that now serve more than 10,000 patients and family members per year in 62 countries.
The 11th meeting of the International Myotonic Dystrophy Consortium (IDMC-11), and the 2017 MDF Annual Conference will be held in San Francisco, CA, September 5-9, 2017.
Our 2nd Annual MDF Gala was a tremendous success, thanks to the many heroes in our special myotonic dystrophy (DM) community. More than 250 guests celebrated MDF’s progress since its first gala in 2013, raising $500,000 to drive the next phase of our Care and a Cure mission for families living with myotonic dystrophy.
Jazzy Wright joined MDF in October 2016 as the organization’s Communications Manager. Jazzy will also manage the MDF communications strategy, and produce all internal and external communications pieces for the organization.