Home / Community / News / News

News

01/28/2016 - 7:43am

Rare Disease Day on Feb 29th gives us an opportunity to shine a spotlight on DM. MDF has activities planned for the entire month of February. Find out how you can join us in speaking out about DM.

01/28/2016 - 7:35am

The use of anesthesia raises special risks to DM patients, which include heightened sensitivity to sedatives and analgesics. Serious complications are most common in the post-anesthesia period when risk of aspiration and other complications are increased. 

MDF has published two versions of its 2016 Anesthesia Guidelines:

  • Click here for a handy, one-page summary of the anesthesia guidelines to share with your clinician and anesthesiologist. 
  • Click here for the complete "Practical Suggestions for the Anesthetic Management of a Myotonic Dystrophy Patient".

New to DM? For here for more information.

 

01/14/2016 - 12:32pm

Word came from the FDA on January 14th that it would not approve the new drug application for "Kendrisa,"  Biomarin's antisense-oligo based drug for Duchenne muscular dystrophy.

01/14/2016 - 11:59am

End of year donations were more generous than ever this year, inspired in part by a $15,000 match contributed by the Boekelmann family, bringing us to over $1.1M in total 2015 contributions. A huge thank you to each and every one of you for being part of this special community and helping to sustain it. Happy New Year!

01/14/2016 - 8:35am

MDF just kicked off the new year with our annual two-day strategic planning offsite. The planning team included DM researchers, board members and staff. Read on for some highlights of our plans for 2016 and progress to date on our 3-year drug development acceleration effort, MDF 3.0: Driving Drug Development.

Partners

© Myotonic Dystrophy Foundation. All rights reserved.