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03/09/2018 - 12:09pm

A new publication details organization of and data from a Canadian neuromuscular disease registry.

03/09/2018 - 12:01pm

A new scoring system identifies key risk factors and a novel tool for assessment of DM1 patient life expectancy.

03/06/2018 - 5:41pm

MDF is bidding a very fond farewell to John Porter, PhD, as MDF’s Chief Science Officer, and bidding a very warm hello to Elizabeth (Lisa) Ackermann, PhD.

03/06/2018 - 5:29pm

Speech disorders (dysarthria) in CDM and childhood-onset DM1 have long been recognized and surveillance by speech and language therapists is an important aspect of patient care. Facial weakness and myotonia, and involvement of oral cavity, palatopharyngeal and respiratory muscles, are known to contribute to speech impairment.

02/06/2018 - 9:52am

After a new review of the literature, the question of comorbidity of childhood DM1 and autism spectrum remains an open one.

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