Meet Larry Lord, architect and community volunteer living in Atlanta, Georgia, who is a single father of two grown sons living with childhood-onset DM.
Three years ago, Sarah and Sam Pontifex of Adelaide, Australia, had never heard of myotonic dystrophy, but their three children were experiencing shared symptoms that they knew could not be the result of mere coincidence.
In November of 2012, Christian Lundy of Ottawa, Canada, was hospitalized with pneumonia. With his wife Kelly at his side, Christian endured weeks of hospitalization and intubation.
Laura Gershenson is a high school science teacher, wife, and mother of two small children living in Dallas, Texas. She was diagnosed with DM in 2011 and found her way to MDF shortly afterwards.
“My condition is not who I am. It does not define me.” This is one of many affirmations that Amy Ream adopted after being diagnosed with myotonic dystrophy 17 years ago. “I’ve been obsessed about retaining my quality of life, and being stubborn has benefitted me greatly,” states Amy.
Erich Maurer grew up in a small farming village in northern Switzerland. His mother was diagnosed with DM1 after complications from a surgical procedure.
Val Reeber - who is living with DM2 - and her husband and caregiver Bob share their story, and how DM2 has impacted their family.
Loraine Dressler, her daughter Kristl, and grandson Zen are all living with DM. Loraine shared with us the satisfaction she gets from being the primary caregiver for Kristl and Zen and how a diagnosis of DM gave her daughter the freedom to be herself.
Regina Thompson grew up near Nashville, TN, feeling different. Not because she was diagnosed with myotonic dystrophy (DM), but because she was the only one of seven children who wasn’t. And, she was the only girl.