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Christian and Kelly Lundy

In November of 2012, Christian Lundy of Ottawa, Canada, was hospitalized with pneumonia. With his wife Kelly at his side, Christian endured weeks of hospitalization and intubation.

The Evans Family
As corny as it sounds, my wife Lauren and I met ten years ago at my best friend's wedding. Upon first meeting her I realized she was one of the most personable and attractive people I'd ever met. We'll be married seven years this fall.  

Laura Gershenson is a high school science teacher, wife, and mother of two small children living in Dallas, Texas. She was diagnosed with DM in 2011 and found her way to MDF shortly afterwards.

“My condition is not who I am. It does not define me.” This is one of many affirmations that Amy Ream adopted after being diagnosed with myotonic dystrophy 17 years ago. “I’ve been obsessed about retaining my quality of life, and being stubborn has benefitted me greatly,” states Amy.

Erich Maurer grew up in a small farming village in northern Switzerland. His mother was diagnosed with DM1 after complications from a surgical procedure.

Val Reeber - who is living with DM2 - and her husband and caregiver Bob share their story, and how DM2 has impacted their family.

Loraine Dressler, her daughter Kristl, and grandson Zen are all living with DM. Loraine shared with us the satisfaction she gets from being the primary caregiver for Kristl and Zen and how a diagnosis of DM gave her daughter the freedom to be herself.

Rupp Brothers

Regina Thompson grew up near Nashville, TN, feeling different. Not because she was diagnosed with myotonic dystrophy (DM), but because she was the only one of seven children who wasn’t. And, she was the only girl.

Jessica Flynn, 26, grew up with a mother and twin sisters who all live with myotonic dystrophy; her mother has adult onset DM, and her sisters have congenital DM. Although Jessica hasn’t experienced any symptoms, she’s in the process of getting tested to determine if she’s a carrier. Jessica often hears the comment, “It must have been so hard growing up with family members affected by DM,” but she didn’t see it as a burden or a problem, it was just her normal life.

Diane Bade’s three children — Scott, Nicholas, and Christine -- have myotonic dystrophy, as did her husband, Chris Bade, who passed away in 2005. Though not affected herself, Diane, like many parents and spouses, works tirelessly to educate herself, her family and her community.


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