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Expanding the DM Community with New Support Groups

MDF support group facilitators are people living with DM, unaffected family members and caregivers. They are a diverse group with many talents, including some with nursing and other medical training, representing all walks of life. Our facilitators include teachers, social workers, a human resources manager, a journalist, a vet technician, a midwife, and a diesel mechanic. What they all have in common is a love for the DM community and a commitment to helping their peers living with DM lead better lives.

One facilitator summed up the feelings of many when he told us, “My experience advocating for and caring for a son with congenital DM and a wife with adult onset DM1 prepared me to be a facilitator. These experiences go back to a time when the only living people with myotonic dystrophy that I knew lived in my house. I don't want anyone else to feel that alone.”

No professional facilitation experience is required to be an MDF support group facilitator. If you are interested in starting a group, contact Leslie Krongold, MDF Outreach Director. Training is provided through private phone conversations, monthly webinars, and a community group on Facebook.

To find a support group in your area, click here


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