Home / Financial Resources

Financial Resources

When a family or individual is faced with a progressive condition such as DM1 or DM2 they are often presented with additional financial expenses as well as loss of a steady income. This page attempts to provide U.S.-based families with financial resources that are available on a federal/national level, and state-specific level. The types of resources included are financial, autism-related, caregivers/respite, employment, exercise and outdoors, housing, healthcare and medication, scholarships and education, transportation and equipment, and more. Not every state-specific list will include all categories, and the resources available will vary from state-to-state. 

These lists are by no means complete; we invite you to share with us any resources you’ve identified in the form below. This is an on-going project. We will continue to add more state-specific resources when we have compiled them. Please submit any resources that you find, whether or not the state is listed below. We also welcome international resources that may serve our population.

Please be advised that each organization has its own eligibility and application requirements. None of these organizations are affiliated with the Myotonic Dystrophy Foundation. We hope you will share your experiences with us – let us know if you are successful in finding a good resource to help your family or if you encounter a problem with any of the resources we have listed.

 

Alaska
(coming soon)
Arizona
(coming soon)
Arkansas
(coming soon)
Colorado
(coming soon)
Connecticut
(coming soon)
Delaware
(coming soon)
Hawaii
(coming soon)
Idaho
(coming soon)
Indiana
(coming soon)
Iowa
(coming soon)
Kansas
(coming soon)
Kentucky
(coming soon)
Maine
(coming soon)
Maryland
(coming soon)
Massachusetts
(coming soon)
Mississippi
(coming soon)
Missouri
(coming soon)
Montana
(coming soon)
Nebraska
(coming soon)
Nevada
(coming soon)
New Hampshire
(coming soon)
New Jersey
(coming soon)
New Mexico
(coming soon)
North Dakota
(coming soon)
Oklahoma
(coming soon)
Oregon
(coming soon)
Rhode Island
(coming soon)
South Carolina
(coming soon)
South Dakota
(coming soon)
Tennessee
(coming soon)
Utah
(coming soon)
Vermont 
(coming soon)
Virginia
(coming soon)
West Virginia
(coming soon)
 
Wisconsin
(coming soon)
Wyoming
(coming soon)
 

National Financial Resources List (updated)

Partners

University of Florida Logo 100px.png Houston Methodist Logo 100px.png University of Iowa 100px.png University of Kansas Logo 100px.png National Institute of Health 100px.png Ohio State University Logo 100px.png University of Rochester 100px.png Stanford University Logo 100px.png University of Utah Logo 100px.png Virginia Commonwealth University Logo 100px.png Wyck Logo 150px.png

© Myotonic Dystrophy Foundation. All rights reserved.