News

RSS

October 9, 2014

The Myotonic Dystrophy Family Registry had a phenomenal first year, thanks to the robust participation of MDF community members. The Registry has enrolled almost 1,300 registrants, and along the way has served as a critical tool for clinical trial recruitment discussions and important DM research projects. 

September 26, 2014

On Friday, September 26, 2014, the MD-CARE Amendments were signed into law by President Obama!

September 26, 2014

The 2014 MDF Annual Conference, which occurred Friday, September 12 and Saturday, September 13, was a singular success, featuring oversold registration, an unparalleled number of researchers, pharma and biotech partners and federal agency representatives, and a number of impressive programmatic "firsts."

Family Registry

 

Blog

RSS

November 11, 2014

Leslie Krongold discusses adapting her favorite past-time to fit her lifestyle.

Events

S M T W T F S
 
 
 
 
 
 
1
 
2
 
3
 
4
 
5
 
6
 
7
 
8
 
9
 
10
 
11
 
12
 
13
 
14
 
15
 
16
 
17
 
18
 
19
 
20
 
21
 
22
 
23
 
24
 
25
 
26
 
27
 
28
 
29
 
30