MDF DM Days: Kansas City, MO, U.S.

MDF DM Days are special one-day events that bring together MDF, clinicians and researchers to support the DM patient and family community, share information and resources, and provide close-to-home access to educational sessions.

These events offer an opportunity for the community to meet local/regional clinical staff, hear first-hand research updates and learn more about DM disease management. Additionally, these events provide an opportunity to meet nearby community members for networking and support. Information about MDF and its resources will also be shared. These interactive, patient-centered conferences will cover disease information both generally and for specific specialty areas. In addition, speakers will provide research updates, advocacy information and, most of all, hope.

Saturday, July 22, 2017
9:00 a.m.–4:00 p.m.
Kauffman Foundation Conference Center
4801 Rockhill Road
Kansas City, Missouri 64110

The one-day conference will feature patient-centered programming from the University of Kansas Clinic team including:

  • A research update including information on the DMCRN biomarkers study and a briefing on the Ionis DMPKRx clinical trial
  • An update on the international Care Considerations project
  • Sessions exploring cardiology, pulmonology, sleep concerns, occupational therapy/physical therapy and exercise, speech, nutrition and swallowing
  • An interactive Ask-The-Experts panel

A light breakfast and full lunch will be served.

Learn more about MDF DM Days.

 

Date(s)
Add to Calendar 2017-07-22 00:00:00 2017-07-22 00:00:00 MDF DM Days: Kansas City, MO, U.S. To know more about this Event, Just go to: https://www.myotonic.org/mdf-dm-days-kansas-city-mo-us Location Myotonic Dystrophy Foundation info@myotonic.org America/Vancouver public