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Programs and Events

MDF Successfully Launches MDF DM Days

In June of this year, MDF initiated a new program called “MDF DM Days” to bring together clinicians, researchers and myotonic dystrophy (DM) family members, and provide close-to-home access to educational sessions.

Developing Therapies for Brain-related DM Symptoms - Add Your Voice

MDF and the International Myotonic Dystrophy Consortium (IDMC) Will Co-host a Workshop on CNS Endpoints for DM Clinical Trials - Add Your Voice

MDF to Host Myotonic Dystrophy Expert Workshop at 2017 MDF Annual Conference

At the 2017 MDF Annual Conference, the Myotonic Dystrophy Foundation (MDF) will offer MDF community members the opportunity to learn first-hand about U.S. federal and state benefits that can be used to support individuals affected by myotonic dystrophy.

MDF at 2017 BIO International Convention

MDF staff recently attended the 2017 BIO International Convention hosted by the Biotechnology Innovation Organization (BIO). BIO offers a partnering track to patient advocacy groups, enabling meetings with companies having potentially mutual interests.

DM Highlights at American Academy of Neurology Annual Meeting

MDF staff recently attended the 2017 annual meeting of the American Academy of Neurology, in Boston, MA. Here are highlights from that meeting.

DM Voice of the Patient Report Submitted to the FDA

MDF held the first myotonic dystrophy (DM) Patient-Focused Drug Development (PFDD) meeting with key senior leaders from the Food and Drug Administration (FDA) as part of the 2016 MDF Annual Conference in September 2016.

Join Us at the 2017 MDF Annual Conference

Registration is open! Register now for the 2017 MDF Annual Conference

MDF Launches First MDF DM Day in Iowa

MDF is pleased to announce the launch of a new program, MDF DM Days. These special one-day free events will be held in three locations across the U.S. in 2017, bringing together clinicians, researchers and MDF community members to share information and resources.

Creative Events Raise Funds for Care and a Cure

MDF's youngest fundraiser? Six-year-old Asher Adleberg! The MDF community has done an amazing job of hosting parties, golf tournaments, crawfish boils, foot races and other events to support Care and a Cure for DM. We have some amazing stories to share, and some fun upcoming events you might want to put on your calendar.

 

MDF Releases Toolkit for U.S. Applicants Seeking Disability Support

In 2016, MDF’s Warmline received many phone calls from MDF community members who struggled to complete the application process for federal and state disability benefits, and who needed guidance on how to navigate the complex application process.

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