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Programs and Events

Creative Events Raise Funds for Care and a Cure

MDF's youngest fundraiser? Six-year-old Asher Adleberg! The MDF community has done an amazing job of hosting parties, golf tournaments, crawfish boils, foot races and other events to support Care and a Cure for DM. We have some amazing stories to share, and some fun upcoming events you might want to put on your calendar.

 

MDF Releases Toolkit for U.S. Applicants Seeking Disability Support

In 2016, MDF’s Warmline received many phone calls from MDF community members who struggled to complete the application process for federal and state disability benefits, and who needed guidance on how to navigate the complex application process.

MDF Finished Year 10 with Flying Colors

2016 was a banner year for the Myotonic Dystrophy Foundation. We completed our 10th year driving Care and a Cure for people and families living with DM, wrapped up year 2 of a 3-year, $5M drug development acceleration effort and oversaw the largest expansion of our Care programming and resources ever. 

Five More Days to Double Your Impact

One family was so inspired by last week’s matching gift that they’ve offered another very generous donation to keep the momentum going! Community members Rick and Paget Haylon will match the next $5,000 donated to MDF through December 10th.

Eric Hutchinson Raises Funds for Care and a Cure

The myotonic dystrophy (DM) community has a strong champion in singer-songwriter Eric Hutchinson. As part of his long-time efforts to support Care and a Cure for myotonic dystrophy, Eric is offering one-of-a-kind fan activities and memorabilia in a new pledge campaign, and a portion of the proceeds will be donated to the Myotonic Dystrophy Foundation (MDF).

MDF Moves Care and a Cure Agenda Forward at January Planning Offsite

Work plans, strategic assessment and funding are all part of the annual strategic planning offsite MDF conducts every January. Learn more here.

MDF on the Road

​Throughout the year MDF has dispatched members of the team to local events around the country to raise disease visibility and distribute resources. Here is a recap of the different events we have attended so far this year.

The Myotonic Dystrophy Foundation is Ten!

MDF is celebrating a milestone anniversary: Ten years of driving Care and a Cure for myotonic dystrophy via programs that now serve more than 10,000 patients and family members per year in 62 countries.

IDMC and MDF 2017 Annual Conferences: Save the Date for SF

The 11th meeting of the International Myotonic Dystrophy Consortium (IDMC-11), and the 2017 MDF Annual Conference will be held in San Francisco, CA, September 5-9, 2017.

MDF Gala Celebrates Progress

Our 2nd Annual MDF Gala was a tremendous success, thanks to the many heroes in our special myotonic dystrophy (DM) community.

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