Maurice Swanson, Ph.D., Professor of Molecular Genetics and Microbiology at University of Florida, Gainesville, and a team of researchers have found that the muscleblind-like 2 (MBNL2) protein in the central nervous system (CNS) may be responsible for the neurological impacts of myotonic dystrophy
MDF events occur throughout the year, and are places where you can learn more about myotonic dystrophy and support our work. Come back for regular updates to our events page. To find upcoming support group meetings, go to the events page on the MDF community forum.
- November 8, 2013
- 2013 MDF Annual Conference
The 2013 Myotonic Dystrophy annual conference will kick off in Houston, Texas at noon on Friday, November 8 and run through Sunday morning, November 10. In addition to featuring leading presenters who will share the latest news and information related to DM research and daily living strategies, the conference will focus on educating the MDF community about the clinical trial process and the Affordable Care Act (health care reform), and will provide more formal and expanded community networking opportunities.
- June 6, 2012
- Jensen's Crawfish Boil Fundraiser
Crawfish Boil...in Southern California? You better believe it! Each year, the Jensen family hosts the event in their backyard near San Diego, California. The 2012 event occurred in early June and included 150 friends and family, all of whom come by for crawfish, shipped in fresh from Louisiana, then boiled with sausage, corn, mushrooms, potatoes and some tasty spices. Live music for the band, the Weener Pigs, a crawfish shaped cake and some refreshments rounded out the event that is an annual favorite for many of the Jensen's family and friends.
- April 16, 2012
- Board member Ona McConnell takes on Tough Mudder
Three cheers for MDF board-member Ona McConnell and her Yale Women’s Field Hockey teammates Maddy Sharp and Jessie Accurso for their awesome performance in the Tough Mudder Challenge. The May 13 event was the latest accomplishment in their ongoing mission to raise money for myotonic dystrophy research..
- April 4, 2012
- 2012 MDF Annual Conference
The Myotonic Dystrophy Foundation is pleased to announce our 3rd Myotonic Dystrophy Annual Conference. Building on the success of the 2011 Conference, which over 400 people attended, this year's event gives families and the medical community the opportunity to once again discuss the latest updates on research, and get information about diagnosis, treatment and daily living issues. Registration for the conference is now open.