The MDF went to Washington, DC, last week to represent the DM community and participate in the Rare Disease Legislative Advocates Conference and Lobby Day.
Why Should I Be a Fundraiser?
By fundraising for MDF, you can empower yourself and your family and make a difference in the fight against myotonic dystrophy, helping increase the funding available to support the DM community and for meaningful research into treatments and a cure. Events can be gala dinners or foot races that can take a lot of planning, or simple letter or email campaigns to friends and family. Hosting an event is fun, and MDF is here to help. We have resources to help you get organized, plan, promote, and execute your event or activity. We can even help you choose an activity that is right for you and your family.
How Will MDF Benefit?
MDF programs exist to enhance the quality of life of people living with myotonic dystrophy, and maximize research efforts focused on treatments and cure for this disease. We do this by providing support services to people living with DM, raising awareness about the disease in the general population and with legislators, educating families and medical professionals about the disorder and advocating for increased funding for myotonic dystrophy research and patient support. Your fundraising efforts are vital to enabling MDF to continue this important work.
How Do I Get Started?
Request a copy of the MDF Fundraiser's Guide! The Guide takes you through the process, outlines the steps you’ll take and provides valuable resources to help you achieve success.
Then, get in touch with us! We'll help turn your ideas into a plan, answer your questions and provide the resources and support you need. Please contact Aly Galloway, MDF Community Engagement Manager, at 415-800-7640 or TeamMDF@myotonic.org.
Interested in getting involved with TeamMDF in another way? Click here to read about other volunteer roles!