The MDF went to Washington, DC, last week to represent the DM community and participate in the Rare Disease Legislative Advocates Conference and Lobby Day.
Patients & Family
Myotonic dystrophy (DM) is a genetic disorder that affects many parts of the body. There are different types of DM, and some cause more serious problems than others. There is currently no cure for myotonic dystrophy, but there is a lot you can do to improve the quality of your life, by taking part in your care and actively managing your symptoms. New discoveries about the disorder and how it can be treated are coming to light almost every day, but in general myotonic dystrophy is not well understood by the general medical community. It is important that you learn as much as you can about your condition so you can talk to your doctors, and educate the people around you. Stay up to date on new developments so you can ensure that you get the best care possible.