Dr. Darren Monckton is an internationally-known DM researcher who provides valuable information to the MDF community. Check out his videos and upcoming webinar that will explore the significance of CTG repeats for people with DM and how to understand blood test results.
The Myotonic Dystrophy Foundation (MDF) exists to enhance the quality of life of people living with myotonic dystrophy (DM), and to maximize research efforts focused on finding treatments and a cure for this disease, through community support, education, advocacy and research.
- Community Support & Education - MDF programs and services provide emotional support and education to help affected individuals and their families, and information and resources to raise awareness about DM in the medical community and the general population.
- Advocacy - Through MDF-sponsored initiatives and in partnership with other rare disease organizations, the Foundation advocates for increased funding for DM research and patient support services.
- Research - We raise funds to accelerate understanding of DM through research. MDF supports both clinical and scientific research targeted to finding treatments and eventually a cure for this chronic, degenerative disease.
Visit the MDF website regularly to stay informed about our activities and the latest news on care, treatment, and research on DM.