MDF Advocacy - Get Involved!

As part of a long-term effort to expand and strengthen our advocacy efforts and impact, MDF is rolling out a multi-year advocacy program to raise visibility of myotonic dystrophy and people living with DM with key stakeholders in Congress, federal and state agencies, medical professionals and the media.

We need your help!  Your voice can help influence the development of new therapies, clinical trial efforts and initiatives to improve the quality and cost of care for those affected by DM.  

Advocacy Webinar

Learn how to find the local district offices for your members of Congress, as well as how to begin a dialogue with them that will help educate them about myotonic dystrophy! Watch a video of the training here.

2014 MDF Annual Conference - Focus on Advocacy

As part of our 2014 commitment to grow and deepen our advocacy program and incorporate grassroots advocacy in our efforts, MDF will feature our first-ever advocacy track at the MDF Annual Conference, which will be held this year in Washington, DC, on September 12-13, 2014.  Advocacy activities will include trainings in grassroots advocacy for conference attendees, resource fair stations for letter writing and other opportunities, and a guided Hill Day the preceding the conference on Friday, September 12 to connect MDF community members with their congressional representatives.

Meet Our Advocates

Meet some of the team members who are helping to implement our advocacy program and make our voice heard on Capitol Hill!


To learn more about MDF advocacy and get involved, click on the links above.