Important review articles on disease mechanisms of and therapy development for DM have recently been published.
The UK DM Patient Registry reports on disease burden for 556 patients with a confirmed diagnosis of DM1.
MDF shares an update on program project grants from the NINDS.
A new DM1 mouse model, with postnatal expression of expanded CUG repeat RNA in the brain, implicates reduced MBNL1 and MBNL2 in the staging of pathological and functional changes.
The personal essay was written by Alex Wiggans, the grandson of MDF community members Dr. Glen Wiggans and Marlo Wiggans.
Registration is open! Register now for the 2017 MDF Annual Conference
MDF is pleased to announce the launch of a new program, MDF DM Days. These special one-day free events will be held in three locations across the U.S. in 2017, bringing together clinicians, researchers and MDF community members to share information and resources.
Even though Donna Boulmay spent a career as a nurse before retiring, she lived most of her adult life in the midst of a medical mystery that had shaped much of her family’s existence. That changed shortly after her grandson Jackson turned five years old.