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January 24, 2017

2016 was a banner year for the Myotonic Dystrophy Foundation. We completed our 10th year driving Care and a Cure for people and families living with DM, wrapped up year 2 of a 3-year, $5M drug development acceleration effort and oversaw the largest expansion of our Care programming and resources ever. 

January 20, 2017

Mary Dowdle, a community member living in Virginia, says that participating in research has been a great way to feel like she's contributing to Care and a Cure for DM, and it's been interesting too! 

January 11, 2017

MDF is excited to participate in Rare Disease Day 2017, an annual event that takes place on the last day of February to raise awareness of rare diseases among policy makers, the scientific community and the general public.

January 11, 2017

In partnership with MDF, the Wyck Foundation awarded a number of new DM research grants.

January 11, 2017

Biomarkers of various Contexts of Use are essential for drug development in DM—recent guidance documents and publications point to exciting new opportunities.

January 11, 2017

Longitudinal assessment of cognitive function in adult- and late-onset DM1 reveals a pattern of cognitive decline that can be modeled as an early-onset and acceleration of normal aging.

December 13, 2016

Thanks to the hard work and commitment of advocates from the MDF community and many others, critical legislation has moved forward that will accelerate the approval of new drugs and medical devices to treat and cure rare diseases like myotonic dystrophy.

December 5, 2016

One family was so inspired by last week’s matching gift that they’ve offered another very generous donation to keep the momentum going! Community members Rick and Paget Haylon will match the next $5,000 donated to MDF through December 10th.

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