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News and Stories


December 11, 2017

A recent publication suggests that a serum protein may ultimately have value as a biomarker for conduction system abnormalities in DM.

December 5, 2017

MDF is deeply saddened to report the passing of Andrew B. Linbeck, a devoted and passionate supporter of the Foundation who promoted Care for people living with DM. Andrew passed away on November 8th, 2017 in Houston, Texas.

December 5, 2017

The Myotonic Dystrophy Foundation is pleased to announce that the U.S. Senate has, for the first time ever, included myotonic dystrophy as part of the Department of Defense’s premier biomedical research program – the Peer-Reviewed Medical Research Program.

December 5, 2017

Tom McPeek was an award-winning dog trainer and a corrections professional before his DM2 kicked in.

November 27, 2017

Make a gift to MDF during our Giving Tuesday campaign and double the impact of your donation! Thanks to the generosity of the Haylon and Lord families, MDF will match all gifts made now through December 5th, up to the first $10,000 raised. Give now and significantly increase your support of Care and a Cure for myotonic dystrophy families around the world!

November 8, 2017

Judy Marks remembers getting sick at age 32 and feeling like it was the worst flu she ever had, only it didn’t go away. Her doctor dismissed it at first as being all in her head. Her sister thought she was faking it to get attention. Her mother-in-law said she was “lazy.”

November 8, 2017

MDF included a number of authors and artists at the 2017 MDF Annual Conference. Learn more, in these artists' words, about some of their creative efforts and how to access their publications and artwork.

November 8, 2017

A number of community members have asked MDF why the Foundation is not listed on the Charity Navigator (CN) website with a ranking on our financial stability and use of funds. The requirement that our community members join CN and provide their personal data is something we are unwilling to ask the MDF community to do.


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