Home / Patients Family / Academy / Digital Academy

Digital Academy

This webinar is essential for meeting attendees and will cover everything you need to know to make an impact on the FDA.

Patient Focused Drug Development (PFDD) meeting: This year at our annual conference MDF will host the first community meeting focused on the Food and Drug Administration (FDA). MDF community members will educate the FDA and other federal agency representatives about symptoms and disease issues that are most important to patients and families, and guide their thinking on DM drug review. The FDA wants to understand which benefits patients seek from therapies and what risks they might be willing to accept to gain specific benefits.

Mid-Year Legislative Webinar that includes an update on DM research funding requests to the NIH & DoD research programs, information on what Congress is likely to do next, and facts to help you advocate for DM funding.

In celebration of National Family Caregivers Month (November 2015), the Myotonic Dystrophy Foundation hosted a session on the benefits of having a meditation practice. The webinar was hosted by Dr. Genie Palmer, a former associate professor and researcher at Sofia University.

Kevin Brennan of FaegreBD Consulting in Washington, DC, presents this overview of the 114th Congress. Learn about the key players and what the current structure of Congress means for rare diseases and related legislation.

The 21st Century Cures Initiative is a bipartisan effort within the House of Representatives' Energy & Commerce Committee, aimed at improving the treatment research, development, and delivery process within the US. In 2014, MDF joined the 21st Century Cures Coalition and worked closely with the Committee and the initiative's leaders, Chairman Fred Upton (R-MI) and Rep. Diana DeGette (D-CO), to ensure that the DM community was considered in all aspects of this legislation. MDF also submitted comments in response to the Committee's white paper on the initiative and modernizing the drug development pipeline.

This webinar, presented by Dave Zook of FaegreBD Consulting in Washington, DC, provides an overview of this important initiative, and what it means for the DM community.

Partners

© Myotonic Dystrophy Foundation. All rights reserved.