The MDF went to Washington, DC, last week to represent the DM community and participate in the Rare Disease Legislative Advocates Conference and Lobby Day.
If you are looking at this site, you or one of your family members has likely recently received a diagnosis of myotonic dystrophy (DM). This news can be overwhelming, and it may take some time for you and your family to adjust. We hope this site will be able to help you navigate the path of myotonic dystrophy; our goal is to provide you with accurate information about DM and share the experiences of other remarkable people who have this disorder.
Note: Medical information available on this site is designed as general information only. Patients should consult with a physician or other qualified medical professionals for advice on medical treatment.
Myotonic dystrophy (DM) is a genetic disorder that affects many parts of the body. There are different types of DM, and some cause more serious problems than others. There is currently no cure for myotonic dystrophy, but there is a lot you can do to improve your quality of life, by taking part in your care and actively managing your symptoms. New discoveries about the disorder and how it can be treated are coming to light almost every day, but for the most part myotonic dystrophy is not well understood by the general medical community. Learn as much as you can about your condition so you can talk to your doctors and educate the people around you. Stay up to date on new developments so you can ensure that you get the best possible care.