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Patient-Focused Drug Development Meeting, Part 2 at 2016 MDF Annual Conference

Watch Patient-Focused Drug Development Meeting, Part 2, a video from the 2016 MDF Annual Conference.

Patient-Focused Drug Development Meeting, Part 1 at 2016 MDF Annual Conference

Watch Patient-Focused Drug Development Meeting, Part 1, a video from the 2016 MDF Annual Conference.

Care and a Cure Progress Report at 2016 MDF Annual Conference

Watch Care and a Cure Progress Report, a video from the 2016 MDF Annual Conference.

PFDD Meeting Preparation Webinar - 2016 MDF Annual Conference

This webinar is essential for meeting attendees and will cover everything you need to know to make an impact on the FDA.

Hill Day Training - 2016 MDF Annual Conference

Watch this webinar for tips and guidance on how to be a successful advocate for myotonic dystrophy Care and a Cure on Capital Hill during our 2016 Hill Day Friday, September 16, 2016. Additional training will also be provided starting at 8:30 AM at the 2016 MDF Annual Conference hotel before we board the buses to start Hill Day. Questions? Contact MDF via email or phone: 415-800-7777. 

An Update on Congressional Advocacy for Increased DM Research

Mid-Year Legislative Webinar that includes an update on DM research funding requests to the NIH & DoD research programs, information on what Congress is likely to do next, and facts to help you advocate for DM funding.

2015 MDF Annual Conference Community-Led Track: DM2 - Finding the Right Doctors & Self-Advocacy

Community members with DM2 discuss best practices for daily living.

2015 MDF Annual Conference: Understanding Reimbursement - Insurance & Patient Advocacy

Mike Adleberg, Dr. Bruce Quinn, MD, PhD, and Dave Zook of Faegre-BD Consulting discuss reimbursement and insurance issues that many people living with DM regularly face.

Webinar: Overview of the 114th Congress

Kevin Brennan of FaegreBD Consulting in Washington, DC, presents this overview of the 114th Congress. Learn about the key players and what the current structure of Congress means for rare diseases and related legislation.

Webinar: Introduction to 21st Century Cures

The 21st Century Cures Initiative is a bipartisan effort within the House of Representatives' Energy & Commerce Committee, aimed at improving the treatment research, development, and delivery process within the US. In 2014, MDF joined the 21st Century Cures Coalition and worked closely with the Committee and the initiative's leaders, Chairman Fred Upton (R-MI) and Rep. Diana DeGette (D-CO), to ensure that the DM community was considered in all aspects of this legislation.

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