Home / Video / Children and DM1

Children and DM1

DM as a Genetic Legacy - A Family's Perspective

An MDF community member describes the MDF Annual Conference and how it has helped her and her family manage this disease and find community.

The DM Check Up - Best Practices

Dr. Jacinda Sampson describes strategies for ensuring a successful visit to your medical professional.

Congenital DM - The Medical Team

An MDF community member and mother describes the medical team she has assembled for her daughter, Kate.

2015 MDF Annual Conference Community-Led Track: Strategies for Motivating your Juvenile-Onset Adults

Community members discuss daily living strategies for motivating their adult children living with juvenile-onset DM1.

Please note: This is an audio recording only. To view the accompanying presentation, please click here.

2015 MDF Annual Conference Community Led Track: Planning Your Child's IEP

Community members Penni Warford, Sarah Clarke and Ann Spaulding discuss best practices for planning and implementing your child's Individualized Education Plan.

2015 MDF Annual Conference: Focus on Congenital DM - What to Expect and Tips for Managing

Dr. Craig Campbell, MD, of Western University in Ontario, Canada, has a discussion with audience members about congenital DM.

2014 MDF Annual Conference Community-Led Track: Food Prep for Dysphagia

Community-led session presented by Regina Thompson and Jessica Nussbaum. Two caregivers discuss different ways of preparing food for those with dysphagia.

View the MDF Cookbook

View related content from this presentation

2014 MDF Annual Conference Community-Led Track: Working with Hippotherapy

Community-led session led by Sarah Berman, Erica Kelly, and Catherine Wycoff, DPT, GCFP, ABMCP. Parents of children living with DM and a hippotherapy specialist discuss the benefit that this type of therapy can often have.

View related web resources from this presentation

2014 MDF Annual Conference Community-Led Track: Challenges for Juvenile-Onset Adults - Parent Focus

Community-led session presented by Diane Bade, Chuck Hunt, and Larry Lord. Parents of adults living with juvenile-onset DM discuss the challenges specific to this group.

View related resources from this session.

2014 MDF Annual Conference Community-Led Track: Traveling with DM

Community-led session led by Elizabeth Florence and Loraine Dressler. This presentation discusses best practices for traveling with those living with DM.

View related resources from this session

View additional documents from this session: Car Trip Checklist and Rights of Air Travelers with Disabilities


© Myotonic Dystrophy Foundation. All rights reserved.