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Science and Genetics

DM & Anticipation, Part 1

Dr. Darren Monckton describes anticipation in myotonic dystrophy, the process by which the disease increases in severity as it is passed from generation to generation.


Watch Part 2 of this series

DM Sleep Disorders: Updated Research and Management Strategies

Dr. John Day of Stanford University presents an overview of brain-related DM impacts that can affect sleep, and current thinking regarding strategies to manage this very prevalent DM symptom. From the 2017 MDF Annual Conference.

DM Clinical Trials Update at 2016 MDF Annual Conference

Watch DM Clinical Trials Update, a video from the 2016 MDF Annual Conference.

DM and the Brain at 2016 MDF Annual Conference

Watch DM and the Brain, a video from the 2016 MDF Annual Conference.

An Update on Congressional Advocacy for Increased DM Research

Mid-Year Legislative Webinar that includes an update on DM research funding requests to the NIH & DoD research programs, information on what Congress is likely to do next, and facts to help you advocate for DM funding.

2015 MDF Annual Conference: Funding the Next Generation - MDF Fellows Report Out

MDF Fellows report on the current status of their research findings. Featuring: Dr. Ranjan Batra, PhD, University of California San Diego; Dr. Viachaslau Bernat, PhD, Scripps Research Institute Florida; Dr. Melissa Hinman, PhD, University of Oregon; and Dr. Ravi Kanth Rao Saini, PhD, Scripps Research Institute La Jolla.

2014 MDF Annual Conference: Beyond Biology: Important DM Research Projects

Chad Heatwole, MD, MS-CI, of the University of Rochester (presentation); Sarah Howe of the Marigold Foundation (presentation); Darren Monckton, PhD, of the University of Glasgow (presentation); and Cynthia Gagnon, PhD, OT, of the Université de Sherbrooke (

2014 MDF Annual Conference: State of the Science: The Next Generation of DM Researchers

MDF Fellows Ayal Hendel, PhD, Stanford University (presentation); Suzanne Rzuczek, PhD, Scripps Research Institute of Florida (presentation); Eric Wang, PhD, MIT (presentation); and Yao Yao, PhD, Rockefeller University (

2014 MDF Annual Conference: Vision & Eye Health

Todd Goodglick, MD, of Washington Eye Physicians, discusses common ophthalmological issues resulting from myotonic dystrophy and what can be done to address these symptoms.

Webinar: Everything You Wanted to Know About CTG Repeats

Dr. Darren Monckton explains the current research concerning the significance of CTG repeats for persons with DM1.

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