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Webinars

PFDD Meeting Preparation Webinar - 2016 MDF Annual Conference

This webinar is essential for meeting attendees and will cover everything you need to know to make an impact on the FDA.

An Update on Congressional Advocacy for Increased DM Research

Mid-Year Legislative Webinar that includes an update on DM research funding requests to the NIH & DoD research programs, information on what Congress is likely to do next, and facts to help you advocate for DM funding.

Meditation for Caregivers

In celebration of National Family Caregivers Month (November 2015), the Myotonic Dystrophy Foundation hosted a session on the benefits of having a meditation practice. The webinar was hosted by Dr. Genie Palmer, a former associate professor and researcher at Sofia University.

Webinar: Overview of the 114th Congress

Kevin Brennan of FaegreBD Consulting in Washington, DC, presents this overview of the 114th Congress. Learn about the key players and what the current structure of Congress means for rare diseases and related legislation.

Webinar: Introduction to 21st Century Cures

The 21st Century Cures Initiative is a bipartisan effort within the House of Representatives' Energy & Commerce Committee, aimed at improving the treatment research, development, and delivery process within the US. In 2014, MDF joined the 21st Century Cures Coalition and worked closely with the Committee and the initiative's leaders, Chairman Fred Upton (R-MI) and Rep. Diana DeGette (D-CO), to ensure that the DM community was considered in all aspects of this legislation.

Webinar: Endocrine Issues Associated with DM1 & DM2

Dr. Richard Moxley of the University of Rochester addresses different endocrine problems that challenge patients with mytonic dystrophy types 1 & 2, how they can lead to symptoms and be associated with alterations in blood test measurements, known treatments to mitigate potential symptoms and future opportunities to develop better understanding of these endocrine problems.

Webinar: Nutrition Issues Related to DM

In this webinar, Kari Lane, RD, CNSC, Clinical Dietitian at the University of Utah, discusses nutritious diets to maintain heart and GI health for people living with myotonic dystrophy.

Webinar: Clinical Trials 101

In this webinar, Dr. Bruce Wentworth of Genzyme and Jeanne Dekdebrun and Elizabeth Luebbe of the University of Rochester discuss an overview of the clinical trials process.

Webinar: Sleep Issues Associated with DM

Dr. Chad Ruoff of the Stanford Center for Sleep Science and Medicine discusses common sleep issues associated with myotonic dystrophy, and ways to manage these symptoms.

Medical School Roadshow Training

Training webinar for community members who are interested in MDF's Medical School Roadshow initiative. For more information on the Medical School Roadshow, please visit www.myotonic.org/medical-school-roadshow.

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