![\"\"](\"https:\/\/myotonic.org\/wp-content\/uploads\/2021-conference-web-banner-5-14.png\")
<\/p>\n<\/p>\n
<\/p>\n
Almost 700 of our incredible community members tuned in from all over the globe to make the 2021 Virtual MDF Annual Conference a huge success!<\/strong>\u00a0We would like to thank all of our Speakers, Exhibitors, Sponsors, and Support Group Facilitators, who were critical partners in putting on this spectacular event.<\/p>\n The MDF Annual Conference unites the entire myotonic dystrophy (DM) community \u2013 those living with the disease, their family and friends, industry partners, clinicians and researchers, and everyone else focused on understanding and eliminating the burden associated with myotonic dystrophy.<\/p>\n Building on the record success at our first ever virtual Conference in 2020, this year MDF\u00a0offered a unique opportunity to learn, connect, support, and empower the DM community.<\/p>\n Traditional poster sessions combine a visual representation of the findings of a paper\/study \u2013 the poster – with the opportunity for individualized, informal discussion of the presenter\u2019s work. MDF was\u00a0thrilled to make this opportunity available at this year\u2019s conference in a virtual format, in which special Web rooms were designed for attendees to view posters as well as to provide unopposed time for researchers to discuss their findings in a Zoom-like format with conference attendees, including other researchers, clinicians, individuals with DM, and their families.\u00a0Click here to view all the Research Posters and Abstracts.<\/a><\/p>\n All recordings from the 2021 Virtual MDF Annual Conference are now publicly available to watch on demand!\u00a0<\/strong>Re-watch and share your favorite\u00a0presentations and learn more about myotonic dystrophy with our extensive catalog of video resources. Watch previous conference sessions, webinars, and technical explanations on DM. Find hope and inspiration from community members sharing their stories and learn about the impact of the Foundation.\u00a0Click here to start exploring the MDF Digital Academy.<\/a><\/p>\n Click on hyperlinked titles below to access each sessions recording.\u00a0Click here to watch all of the sessions from the 2021 MDF Annual Conference on YouTube.<\/a><\/p>\n Please note, any session title followed by an * was not recorded in order to protect the privacy of the live attendees.<\/p>\n The Conference incorporated many traditional events and session such as updates on drug development, highlights of recent successes and future goals of the foundation, and inspiring stories from the community.<\/p>\n Click here to watch all the General Sessions from the 2021 MDF Annual Conference.<\/a><\/p>\n This track was designed by professional trainers to include modifications for community members of all abilities.<\/p>\n Click here to watch all the Exercise & Movement Sessions from the 2021 MDF Annual Conference.<\/a><\/p>\n This track was designed for\u00a0individuals and families seeking to learn more about DM Type 1.<\/p>\n Click here to watch all the DM1 Track Sessions from the 2021 MDF Annual Conference.<\/a><\/p>\n This track was designed for\u00a0individuals and families seeking to learn more about DM Type 2.<\/p>\n Click here to view all the DM2 Track Sessions from the 2021 MDF Annual Conference.<\/a><\/p>\n This track was designed for family members, caregivers, or those who are their own caregiver; also appropriate for individuals living with DM1 or DM2.<\/p>\n Click here to watch all the Caregivers & Self-care Track Sessions from the 2021 MDF Annual Conference.<\/a><\/p>\n This year’s virtual conference will have a dedicated Professional Track specifically designed for clinicians, researchers, and industry experts. Session topics were developed based on direct feedback from professionals.<\/p>\n Click here to watch all of the Professional Track Sessions from the 2021 MDF Annual Conference.<\/a><\/p>\n Click here to download a printable Conference Agenda PDF.<\/a><\/p>\n The Conference officially kicked\u00a0off Friday, September 10th and ended\u00a0Saturday, September 11th, with sessions\u00a0running from 9:00 AM – 6:00 PM Pacific Time each day.\u00a0Click here to download a printable Conference Agenda PDF.<\/a><\/p>\n For the first time, the Conference had\u00a0a \u201csoft open\u201d on Thursday, September 9th<\/strong>\u00a0that included our First Timers\u2019 Tea to orient and welcome those attending the Conference for the first time, as well as entertainment. By popular demand, more networking, sponsorship, and exhibitor opportunities were offered on all three days.<\/p>\n Session topics were developed based on direct feedback from the DM community through the 2020 conference evaluation surveys, our recent Strategic Planning survey, support group participants, and callers to the MDF Warmline.\u00a0This year’s virtual conference hosted a dedicated Professional Track specifically designed for clinicians, researchers, and industry experts.<\/strong><\/p>\n The Conference will incorporated many traditional events and activities, including:<\/p>\n By popular demand, the 2021 Conference incorporated new topics for MDF\u00a0Community Panels<\/strong>\u00a0for those: living with DM1; living with DM2; DM Caregivers; Congenital DM Families; Juvenile-onset Adults; and Military Veterans living with DM.\u00a0These sessions featured panels of individuals with experience, compassion, and knowledge to offer their peers, and provided space for you to share your own stories, tips, and questions.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n <\/p>\n","protected":false},"excerpt":{"rendered":" Almost 700 of our incredible community members tuned in from all over the globe to make the 2021 Virtual MDF Annual Conference a huge success! <\/p>\n","protected":false},"featured_media":18817,"parent":0,"template":"","class_list":["post-18816","events","type-events","status-publish","has-post-thumbnail","hentry"],"_links":{"self":[{"href":"https:\/\/myotonic.org\/de\/wp-json\/wp\/v2\/events\/18816","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/myotonic.org\/de\/wp-json\/wp\/v2\/events"}],"about":[{"href":"https:\/\/myotonic.org\/de\/wp-json\/wp\/v2\/types\/events"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/myotonic.org\/de\/wp-json\/wp\/v2\/media\/18817"}],"wp:attachment":[{"href":"https:\/\/myotonic.org\/de\/wp-json\/wp\/v2\/media?parent=18816"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}About the Conference<\/h2>\n
DM Research Poster\u00a0Showcase<\/h2>\n
Watch the Recorded Sessions!<\/h2>\n
General Sessions<\/h3>\n
\n
\nTanya Stevenson, EdD, MPH
\nJeremy Kelly
\nJohn Fitzpatrick
\nLoraine Dessler
\nTom McPeek
\nEric Wang, PhD
\nBelen Esparis, MD<\/li>\n
\nTanya Stevenson, EdD, MPH
\nLisa Harvey-Duren, MBA
\nAlexandra LeBoeuf
\nMichel LeBoeuf
\nJulie LeBoeuf
\nAngie Wiggans
\nPaul Wiggans
\nGlen Wiggans
\nTeresa Buffone<\/li>\n
\nIbraheem Mahmood, AMO Pharma
\nElizabeth Ackermann, PhD, Avidity Biosciences
\nJeffrey M. Dayno, MD, Harmony Biosciences
\nWilliam Jacobson, PhD, Harmony Biosciences
\nAshish Dugar, PhD, Dyne Therapeutics<\/li>\n
\nJane Larkindale, PhD, PepGen
\nBeatriz Llamusi, PhD, ARTHEx biotech
\nDietrich A. Stephan, PhD, NeuBase Therapeutics
\nValerie Cullen, PhD, Expansion Therapeutics<\/li>\nExercise & Movement<\/h3>\n
\n
\nBasma Gale<\/li>\n
\nRach Kahn, NCPT, CSCS, CMT<\/li>\n
\nLin Leong<\/li>\n
\nNathan Perkins, EdD, ACSM-CIFT<\/li>\n<\/ul>\nTrack 1: DM Type 1<\/h3>\n
\n
\nJacinda Sampson, MD, PhD<\/li>\n
\nJeffrey Statland, MD<\/li>\n
\nJodie Howell, LPN
\nNicholas Johnson, MD, MSCI, FAAN
\nAlissa Peters
\nChristy Newman<\/li>\n
\nJohn Day, MD, PhD<\/li>\n
\nLaura Gershenson
\nMindy Kim
\nBill Nuttall<\/li>\n<\/ul>\nTrack 2: DM Type 2<\/h3>\n
\n
\nJohanna Hamel, MD
\nLindsey Baker, PT
\nAraya Pwanant, MD<\/li>\n
\nLaura Ranum, PhD<\/li>\n
\nJodie Howell, LPN
\nNicholas Johnson, MD, MSCI, FAAN
\nAlissa Peters
\nChristy Newman<\/li>\n
\nCharles Thornton, MD<\/li>\n
\nHaley Martinelli
\nTom McPeek
\nLorraine Piechota
\nLouis Vinnyey<\/li>\n<\/ul>\nTrack 3: Caregivers & Self-care<\/h3>\n
\n
\nChristopher D. Graham, PhD, DClinPsychol<\/li>\n
\nRebecca Axline, LCSW-S, APHSW-C
\nReagan Shivitz, BSN, RN-BC
\nSheetal Shroff, MD
\nCindy Vogtman<\/li>\n
\nKate Beck
\nDavid Brand
\nLauren Brand
\nTeresa Buffone<\/li>\n
\nErin Bradshaw
\nAmy Jackson, Patient Access Specialist
\nErin Springer, MSN
\nRyan Frame, Social Security Administration<\/li>\n
\nJohn Cooley, JD
\nLois Oppenheim, PhD
\nSuzanne Perkins, PhD<\/li>\n<\/ul>\nTrack 4: Professionals<\/h3>\n
\n
\nPeter Bialek, PhD
\nDarren Monckton, PhD
\nChristopher Pearson, PhD<\/li>\n
\nEmily Carifi, PhD
\nSarah Howe, MBA
\nGlen Nuckolls, PhD
\nNatalie Street, MS, CGC<\/li>\n
\nThomas Cooper, MD
\nEric Wang, PhD<\/li>\n
\nVincent Dion, PhD
\nNan Zhang, PhD<\/li>\n
\nMonica Banez Coronel, PhD
\nMatthew Disney, PhD<\/li>\n
\nNick Johnson, MD, MSCI, FAAN
\nPradeep Mammen, MD
\nPeg Nopoulos, MD<\/li>\n<\/ul>\nThank You to Our Conference Sponsors<\/h2>\n
\n\n\nPlatinum Tier<\/h3>\n
\n![](\"https:\/\/myotonic.org\/wp-content\/uploads\/1_Avidity_Logo_3D_RGB.png\"){kind=logo}
<\/a><\/div>\n<\/div>\n\n\nGold Tier<\/h3>\n
![](\"https:\/\/myotonic.org\/wp-content\/uploads\/9_IDD-Harmony.png\")
<\/a><\/div>\n![](\"https:\/\/myotonic.org\/wp-content\/uploads\/19_IDD-Dyne.png\")
<\/a><\/div>\n<\/div>\n\n\nSilver Tier<\/h3>\n<\/div>\n
![](\"https:\/\/myotonic.org\/wp-content\/uploads\/2_neubase-silver.jpg\")
<\/a><\/div>\n![](\"https:\/\/myotonic.org\/wp-content\/uploads\/2_Bronze-ask-bio.jpg\")
<\/a><\/div>\n<\/div>\n\n\nBronze Tier<\/h3>\n<\/div>\n
![](\"https:\/\/myotonic.org\/wp-content\/uploads\/2_IDD-Pfizer.png\")
<\/a><\/div>\n![](\"https:\/\/myotonic.org\/wp-content\/uploads\/15_IDD-PepGen.png\")
<\/a><\/div>\n![](\"https:\/\/myotonic.org\/wp-content\/uploads\/4_AMO-Adj-meeting.jpg\")
<\/a><\/div>\n![](\"https:\/\/myotonic.org\/wp-content\/uploads\/3_Astellas-Adj-meeting.png\")
<\/a><\/div>\n![](\"https:\/\/myotonic.org\/wp-content\/uploads\/2_Biogen-Adj.png\")
<\/a><\/div>\n![](\"https:\/\/myotonic.org\/wp-content\/uploads\/1_Bronze-syros.jpg\")
<\/a><\/div>\n![](\"https:\/\/myotonic.org\/wp-content\/uploads\/8_IDD-Expansion.png\")
<\/a><\/div>\n![](\"https:\/\/myotonic.org\/wp-content\/uploads\/5_Lupin-bronze.jpg\")
<\/a><\/div>\n![](\"https:\/\/myotonic.org\/wp-content\/uploads\/3_Locana-bronze.jpg\")
<\/a><\/div>\n![](\"https:\/\/myotonic.org\/wp-content\/uploads\/7_Vertex-bronze.jpg\")
<\/a><\/div>\n<\/div>\n\n\nAgenda & Tracks<\/h2>\n
\n