{"id":27331,"date":"2025-12-11T14:31:58","date_gmt":"2025-12-11T22:31:58","guid":{"rendered":"https:\/\/myotonic.org\/unsere-geschichte-2\/"},"modified":"2026-08-27T17:06:30","modified_gmt":"2026-08-28T00:06:30","slug":"unsere-geschichte","status":"publish","type":"page","link":"https:\/\/myotonic.org\/de\/unsere-geschichte\/","title":{"rendered":"Unsere Geschichte"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"27331\" class=\"elementor elementor-27331\" data-elementor-post-type=\"page\">\n\t\t\t\t<div class=\"elementor-element elementor-element-221d7d6 e-flex e-con-boxed e-con e-parent\" data-id=\"221d7d6\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-28fbb0fc e-con-full e-flex e-con e-child\" data-id=\"28fbb0fc\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-2527bd22 elementor-align-left elementor-widget elementor-widget-breadcrumbs\" data-id=\"2527bd22\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"breadcrumbs.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<nav><\/nav>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-18986977 elementor-widget__width-initial elementor-widget elementor-widget-heading\" data-id=\"18986977\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">Geschichte der Stiftung<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-19ac7b07 elementor-widget-laptop__width-initial elementor-widget__width-initial elementor-widget elementor-widget-heading\" data-id=\"19ac7b07\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\">St\u00e4rkung der DM-Gemeinschaft durch Unterst\u00fctzung, Pflege, Interessenvertretung und Forschung, die uns Behandlungen und einer Heilung n\u00e4her bringt.<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-1521ecbd e-con-full e-flex e-con e-child\" data-id=\"1521ecbd\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-5887f290 elementor-widget elementor-widget-button\" data-id=\"5887f290\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"#learn-more\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Scrollen Sie, um mehr zu erfahren<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-59e2c2ab e-con-full e-flex e-con e-child\" data-id=\"59e2c2ab\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-74642d3 elementor-widget-tablet__width-initial elementor-widget elementor-widget-image\" data-id=\"74642d3\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"800\" height=\"534\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/history-featured-1-1024x683.jpg\" class=\"attachment-large size-large wp-image-27338\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/history-featured-1-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/history-featured-1-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/history-featured-1-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/history-featured-1.jpg 1300w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-59c61203 e-flex e-con-boxed e-con e-parent\" data-id=\"59c61203\" data-element_type=\"container\" data-e-type=\"container\" id=\"learn-more\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-613a1344 e-con-full e-flex e-con e-child\" data-id=\"613a1344\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-c6694a9 elementor-widget-tablet__width-initial elementor-widget elementor-widget-image\" data-id=\"c6694a9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/mr66givry2-staging.onrocket.site\/wp-content\/uploads\/community-and-cure-img.jpg\" title=\"\" alt=\"\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-66d793c8 e-con-full e-flex e-con e-child\" data-id=\"66d793c8\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-773f9388 elementor-widget__width-initial elementor-widget elementor-widget-heading\" data-id=\"773f9388\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Gemeinschaft, Pflege und Heilung<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-1622aadc elementor-widget-tablet__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"1622aadc\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Die Myotonic Dystrophy Foundation (MDF) wurde 2007 in Kalifornien als gemeinn\u00fctzige Organisation nach 501(c)(3) gegr\u00fcndet. Von Anfang an hat die MDF an der Seite von Menschen mit myotoner Dystrophie (DM), ihren Familien, Pflegekr\u00e4ften, Klinikern, Forschern und F\u00fcrsprechern gearbeitet, um eine st\u00e4rkere, besser vernetzte Gemeinschaft aufzubauen und die Zukunft der myotoner Dystrophie zu verbessern. <\/p><p>Heute ist die MDF die weltweit gr\u00f6\u00dfte Patientenorganisation mit Schwerpunkt auf myotoner Dystrophie und betreut Tausende von Einzelpersonen und Familien in mehr als 139 L\u00e4ndern. Gemeinsam mit unserer Gemeinschaft und unseren Unterst\u00fctzern hat die MDF mehr als 39 Millionen US-Dollar gesammelt und investiert, um die Versorgung zu verbessern, die Forschung voranzutreiben und die Entwicklung neuer Behandlungen f\u00fcr myotoner Dystrophie zu unterst\u00fctzen. <\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-7fa8f44b e-con-full e-flex e-con e-child\" data-id=\"7fa8f44b\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-4e7352e5 elementor-widget elementor-widget-button\" data-id=\"4e7352e5\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/myotonic.org\/de\/unsere-wirkung\/\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Erfahren Sie mehr \u00fcber unsere Wirkung<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-43ee5f2e e-flex e-con-boxed e-con e-parent\" data-id=\"43ee5f2e\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-1a742152 e-con-full e-flex e-con e-child\" data-id=\"1a742152\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-6a10b636 elementor-widget__width-initial elementor-widget elementor-widget-heading\" data-id=\"6a10b636\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Meilensteine in der Geschichte der MDF<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-50f29da9 elementor-widget-tablet__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"50f29da9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Was damit begann, dass Familien darum baten, geh\u00f6rt zu werden, hat sich zu einer Organisation entwickelt, die Menschen mit vertrauensw\u00fcrdiger Unterst\u00fctzung und Pflege verbindet, das Feld f\u00fcr klinische Studien vorbereitet, die Stimme der Gemeinschaft bei \u00f6ffentlichen Entscheidungen st\u00e4rkt und in die Forschung nach Behandlungen und einer Heilung investiert.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-5402dc7 e-con-full e-flex e-con e-child\" data-id=\"5402dc7\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-21359cc7 elementor-widget-tablet__width-initial elementor-widget elementor-widget-image\" data-id=\"21359cc7\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/mr66givry2-staging.onrocket.site\/wp-content\/uploads\/history-of-name-and-brand-mdf.jpg\" title=\"\" alt=\"\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-3d49bdce e-flex e-con-boxed e-con e-parent\" data-id=\"3d49bdce\" data-element_type=\"container\" data-e-type=\"container\" id=\"learn-more\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-5083ea1a elementor-widget elementor-widget-jet-timeline\" data-id=\"5083ea1a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"jet-timeline.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-jet-timeline jet-elements\"><div class=\"jet-timeline jet-timeline--align-center jet-timeline--align-middle\">\n\t<div class=\"jet-timeline__line\"><div class=\"jet-timeline__line-progress\"><\/div><\/div>\n\t<div class=\"jet-timeline-list\"><div class=\"jet-timeline-item  elementor-repeater-item-5896881-0 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img decoding=\"async\" width=\"786\" height=\"578\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/Shannon-Lords.jpg\" class=\"attachment-full size-full wp-image-11779\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/Shannon-Lords.jpg 786w, https:\/\/myotonic.org\/wp-content\/uploads\/Shannon-Lords-300x221.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/Shannon-Lords-768x565.jpg 768w\" sizes=\"(max-width: 786px) 100vw, 786px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2001 \u2013 2005<br \/>Familien und Wissenschaftler gestalten eine gemeinsame Vision<\/h3><div class=\"timeline-item__card-desc\"><p>Ab 2001 halfen die F\u00fcrsprecherin Shannon Lord und der Neurologe Dr. med. Tetsuo \u201eTee\u201c Ashizawa dabei, die Erfahrungen von Familien mit der internationalen Forschungsgemeinschaft f\u00fcr myotoner Dystrophie zu verkn\u00fcpfen. Dr. Ashizawa hatte 1997 die IDMC mitbegr\u00fcndet; Shannon nahm an aufeinanderfolgenden Treffen teil und versammelte 2005 Familien in Nordamerika, um die Notwendigkeit einer speziellen, auf myotoner Dystrophie ausgerichteten Organisation zu er\u00f6rtern. Die MDF entstand aus dieser Gemeinschaftsvision und einer fr\u00fchen Verpflichtung zur Partnerschaft mit f\u00fchrenden Wissenschaftlern.  <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/team\/shannon-lord\/\">Lernen Sie Shannon Lord kennen<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/team\/tetsuo-ashizawa-md\/\">Lernen Sie Dr. med. Tetsuo \u201eTee\u201c Ashizawa kennen<\/a><\/li>\n<li><a href=\"https:\/\/idmc.org\/wp-content\/uploads\/2023\/05\/idmc-4_patient_booklet.pdf\" target=\"_blank\" rel=\"noopener\">Offizielle IDMC-4 Patientenbrosch\u00fcre<\/a><\/li>\n<li><a href=\"https:\/\/idmc.org\/wp-content\/uploads\/2023\/05\/idmc-5_programbooklet.pdf\" target=\"_blank\" rel=\"noopener\">Offizielles IDMC-5 Programm<\/a><\/li>\n<\/ul>\n<p>\u00a0<\/p><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img decoding=\"async\" width=\"786\" height=\"578\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/Shannon-Lords.jpg\" class=\"attachment-full size-full wp-image-11779\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/Shannon-Lords.jpg 786w, https:\/\/myotonic.org\/wp-content\/uploads\/Shannon-Lords-300x221.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/Shannon-Lords-768x565.jpg 768w\" sizes=\"(max-width: 786px) 100vw, 786px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-1 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img decoding=\"async\" width=\"1600\" height=\"1200\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Stanford-Lisa-Kayla-John.jpg\" class=\"attachment-full size-full wp-image-27292\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Stanford-Lisa-Kayla-John.jpg 1600w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Stanford-Lisa-Kayla-John-300x225.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Stanford-Lisa-Kayla-John-1024x768.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Stanford-Lisa-Kayla-John-768x576.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Stanford-Lisa-Kayla-John-1536x1152.jpg 1536w\" sizes=\"(max-width: 1600px) 100vw, 1600px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2006 \u2013 2008<br \/>Eine Stiftung f\u00fcr myotoner Dystrophie<\/h3><div class=\"timeline-item__card-desc\"><p>Die Organisatoren setzten diese Vision in eine in den USA ans\u00e4ssige gemeinn\u00fctzige Organisation um, die sich ausschlie\u00dflich der myotoner Dystrophie widmet. Die MDF wurde 2007 in Kalifornien offiziell als gemeinn\u00fctzige Organisation nach 501(c)(3) eingetragen, mit einem Gr\u00fcndungsvorstand und einem wissenschaftlichen Beirat, fr\u00fchen Selbsthilfegruppen und dem Handschlag-Logo. Im Jahr 2008 wurde Lisa Harvey-Duren die erste Gesch\u00e4ftsf\u00fchrerin der MDF und schuf die F\u00fchrungs- und Betriebsstruktur, die f\u00fcr die Betreuung einer wachsenden Gemeinschaft erforderlich war.  <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/team\/lisa-harvey\/\">Lernen Sie Lisa Harvey-Duren kennen<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/team\/group\/medical-scientific-advisory-committee\/\">Medizinischer &amp; wissenschaftlicher Beirat der MDF<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img decoding=\"async\" width=\"1600\" height=\"1200\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Stanford-Lisa-Kayla-John.jpg\" class=\"attachment-full size-full wp-image-27292\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Stanford-Lisa-Kayla-John.jpg 1600w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Stanford-Lisa-Kayla-John-300x225.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Stanford-Lisa-Kayla-John-1024x768.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Stanford-Lisa-Kayla-John-768x576.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Stanford-Lisa-Kayla-John-1536x1152.jpg 1536w\" sizes=\"(max-width: 1600px) 100vw, 1600px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-2 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1315\" height=\"832\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-Website-2010.png\" class=\"attachment-full size-full wp-image-27293\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-Website-2010.png 1315w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-Website-2010-300x190.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-Website-2010-1024x648.png 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-Website-2010-768x486.png 768w\" sizes=\"(max-width: 1315px) 100vw, 1315px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2008<br \/>Ein vertrauensw\u00fcrdiges Online-Zuhause f\u00fcr myotoner Dystrophie schaffen<\/h3><div class=\"timeline-item__card-desc\"><p>Die MDF startete myotonic.org, um Betroffenen und Familien einen vertrauensw\u00fcrdigen, einladenden Ort zu bieten, an dem sie sich \u00fcber myotoner Dystrophie informieren k\u00f6nnen. In einer Zeit, in der Online-Suchen oft zu technischer Literatur und klinischen Bildern mit wenig praktischem Kontext f\u00fchrten, machte die Website verst\u00e4ndliche Informationen, Unterst\u00fctzung und Gemeinschaft leichter auffindbar. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/support\/newly-diagnosed\/\">Neu diagnostiziert mit myotoner Dystrophie<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/resources\/\">MDF-Ressourcen<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1315\" height=\"832\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-Website-2010.png\" class=\"attachment-full size-full wp-image-27293\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-Website-2010.png 1315w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-Website-2010-300x190.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-Website-2010-1024x648.png 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-Website-2010-768x486.png 768w\" sizes=\"(max-width: 1315px) 100vw, 1315px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-3 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"540\" height=\"360\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_8168.jpg\" class=\"attachment-full size-full wp-image-27294\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_8168.jpg 540w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_8168-300x200.jpg 300w\" sizes=\"(max-width: 540px) 100vw, 540px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2009<br \/>Unterst\u00fctzung neuer Forscher und Zusammenf\u00fchrung von Familien<\/h3><div class=\"timeline-item__card-desc\"><p>Die MDF startete zwei Programme, die ihr langfristiges Modell pr\u00e4gen sollten: ein Forschungsstipendienprogramm, um aufstrebende Wissenschaftler im Bereich der myotoner Dystrophie zu gewinnen und zu binden, und die erste Familienkonferenz, auf der Familien, Kliniker und Forscher direkt voneinander lernen konnten. Gemeinsam verbanden sie Investitionen in Fachwissen mit einer dauerhaften Partnerschaft mit der Gemeinschaft. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/research\/grants-and-funding\/\">MDF-Forschungsstipendien &amp; Finanzierung<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/conferences\/\">MDF-Konferenzarchiv<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"540\" height=\"360\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_8168.jpg\" class=\"attachment-full size-full wp-image-27294\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_8168.jpg 540w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_8168-300x200.jpg 300w\" sizes=\"(max-width: 540px) 100vw, 540px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-4 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"800\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/clinical-care-resources-thumb-2.jpg\" class=\"attachment-full size-full wp-image-18161\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/clinical-care-resources-thumb-2.jpg 800w, https:\/\/myotonic.org\/wp-content\/uploads\/clinical-care-resources-thumb-2-300x300.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/clinical-care-resources-thumb-2-150x150.jpg 150w, https:\/\/myotonic.org\/wp-content\/uploads\/clinical-care-resources-thumb-2-768x768.jpg 768w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2009<br \/>Verbesserung der An\u00e4sthesiesicherheit f\u00fcr Menschen mit myotoner Dystrophie<\/h3><div class=\"timeline-item__card-desc\"><p>Die MDF formalisierte und aktualisierte praktische Leitf\u00e4den zu den schwerwiegenden An\u00e4sthesierisiken im Zusammenhang mit myotoner Dystrophie und half so Betroffenen und Klinikern, sich sicherer auf Eingriffe vorzubereiten. Die kontinuierlich gepflegten und erweiterten An\u00e4sthesie-Ressourcen geh\u00f6ren zu den wichtigsten Beitr\u00e4gen der MDF zur Versorgung und bleiben unverzichtbare Instrumente f\u00fcr Familien und medizinische Teams. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/resources\/anesthesia-guidelines\/\">MDF-An\u00e4sthesierichtlinien<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/resources\/anesthesia-advice-for-individuals-and-their-families\/\">An\u00e4sthesie-Beratung f\u00fcr Einzelpersonen und Familien<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/conferences\/\">MDF-Konferenzen<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"800\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/clinical-care-resources-thumb-2.jpg\" class=\"attachment-full size-full wp-image-18161\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/clinical-care-resources-thumb-2.jpg 800w, https:\/\/myotonic.org\/wp-content\/uploads\/clinical-care-resources-thumb-2-300x300.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/clinical-care-resources-thumb-2-150x150.jpg 150w, https:\/\/myotonic.org\/wp-content\/uploads\/clinical-care-resources-thumb-2-768x768.jpg 768w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-5 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Question-on-Screen-for-Voting-scaled.jpg\" class=\"attachment-full size-full wp-image-27295\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Question-on-Screen-for-Voting-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Question-on-Screen-for-Voting-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Question-on-Screen-for-Voting-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Question-on-Screen-for-Voting-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Question-on-Screen-for-Voting-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Question-on-Screen-for-Voting-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2010 \u2013 2012<br \/>Die MDF-Konferenz wird zur Gemeinschaftstradition<\/h3><div class=\"timeline-item__card-desc\"><p>Durch drei aufeinanderfolgende Familienkonferenzen und ein expandierendes Netzwerk von Selbsthilfegruppen schuf die MDF verl\u00e4ssliche Orte f\u00fcr Menschen mit myotoner Dystrophie und ihre Familien, um von Spezialisten zu lernen, praktische Erfahrungen auszutauschen und den Dialog mit Klinikern und Forschern zu gestalten. In diesen Jahren etablierte sich die Konferenz als zentrales Forum der MDF f\u00fcr gemeinsames Lernen und Partnerschaft. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/events\/conferences\/\">MDF-Konferenzarchiv<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/2011-mdf-annual-conference\/\">MDF-Jahreskonferenz 2011<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/2012-mdf-annual-conference\/\">MDF-Jahreskonferenz 2012<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Question-on-Screen-for-Voting-scaled.jpg\" class=\"attachment-full size-full wp-image-27295\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Question-on-Screen-for-Voting-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Question-on-Screen-for-Voting-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Question-on-Screen-for-Voting-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Question-on-Screen-for-Voting-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Question-on-Screen-for-Voting-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Question-on-Screen-for-Voting-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-6 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1575\" height=\"1050\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_1225.jpg\" class=\"attachment-full size-full wp-image-27296\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_1225.jpg 1575w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_1225-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_1225-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_1225-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_1225-1536x1024.jpg 1536w\" sizes=\"(max-width: 1575px) 100vw, 1575px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2012<br \/>Aufbau eines formellen Netzwerks f\u00fcr Peer-Unterst\u00fctzung<\/h3><div class=\"timeline-item__card-desc\"><p>Aufbauend auf fr\u00fchen lokalen Gruppen, die parallel zur Stiftung entstanden waren, begann die MDF mit der Entwicklung eines formelleren, von Moderatoren geleiteten Netzwerks von Selbsthilfegruppen. Das Programm schuf verl\u00e4ssliche R\u00e4ume f\u00fcr Menschen mit myotoner Dystrophie, Familienmitglieder und Pflegekr\u00e4fte, um Erfahrungen, praktische Ratschl\u00e4ge und Verbindungen auszutauschen, und wuchs in den folgenden vier Jahren auf mehr als 20 Gruppen an. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/support\/support-groups\/\">MDF-Selbsthilfegruppen<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1575\" height=\"1050\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_1225.jpg\" class=\"attachment-full size-full wp-image-27296\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_1225.jpg 1575w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_1225-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_1225-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_1225-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_1225-1536x1024.jpg 1536w\" sizes=\"(max-width: 1575px) 100vw, 1575px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-7 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"700\" height=\"560\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_0729-e1788302417484.jpg\" class=\"attachment-full size-full wp-image-27297\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_0729-e1788302417484.jpg 700w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_0729-e1788302417484-300x240.jpg 300w\" sizes=\"(max-width: 700px) 100vw, 700px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2012<br \/>Etablierung individueller Unterst\u00fctzung<\/h3><div class=\"timeline-item__card-desc\"><p>Bis 2012 bot die MDF individuelle Unterst\u00fctzung \u00fcber die heutige \u201eWarmline\u201c an, das erste Jahr, f\u00fcr das die MDF Nutzungsdaten erfasst hat. Dieser direkte Kanal hilft Menschen mit myotoner Dystrophie und Familien, Fragen zu kl\u00e4ren, vertrauensw\u00fcrdige Ressourcen zu finden und Unterst\u00fctzung zu erhalten, wenn sie eine fachkundige Person und nicht nur Informationen ben\u00f6tigen. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/support\/request-warmline-support\/\">Warmline-Unterst\u00fctzung anfordern<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/support\/how-we-can-help\/\">Wie die MDF helfen kann<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"700\" height=\"560\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_0729-e1788302417484.jpg\" class=\"attachment-full size-full wp-image-27297\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_0729-e1788302417484.jpg 700w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_0729-e1788302417484-300x240.jpg 300w\" sizes=\"(max-width: 700px) 100vw, 700px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-8 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1300\" height=\"867\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/family-registry-logo-history.png\" class=\"attachment-full size-full wp-image-26684\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/family-registry-logo-history.png 1300w, https:\/\/myotonic.org\/wp-content\/uploads\/family-registry-logo-history-300x200.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/family-registry-logo-history-1024x683.png 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/family-registry-logo-history-768x512.png 768w\" sizes=\"(max-width: 1300px) 100vw, 1300px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2013<br \/>Vorbereitung von Forschern und Familien auf klinische Studien zu myotoner Dystrophie<\/h3><div class=\"timeline-item__card-desc\"><p>Die MDF startete das Myotonic Dystrophy Family Registry (MDFR), unterst\u00fctzte den Ausbau des Myotonic Dystrophy Clinical Research Network (DMCRN) und nutzte ihre ausverkaufte Konferenz, um Familien zu helfen, die Arzneimittelentwicklung und die Teilnahme an Studien zu verstehen. Gemeinsam begannen diese Bem\u00fchungen, das Wissen der Gemeinschaft, patientenberichtete Daten, Forschungsstandorte und die Industrie auf ein studienbereites Feld auszurichten. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/get-involved\/family-registry\/\">Treten Sie dem Myotonic Dystrophy Family Registry bei<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/research\/dmcrn\/\">Klinisches Forschungsnetzwerk f\u00fcr myotoner Dystrophie<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/myotonic-dystrophy-family-registry-study\/\">Ergebnisse der MDFR-Studie 2026<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1300\" height=\"867\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/family-registry-logo-history.png\" class=\"attachment-full size-full wp-image-26684\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/family-registry-logo-history.png 1300w, https:\/\/myotonic.org\/wp-content\/uploads\/family-registry-logo-history-300x200.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/family-registry-logo-history-1024x683.png 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/family-registry-logo-history-768x512.png 768w\" sizes=\"(max-width: 1300px) 100vw, 1300px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-9 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1285\" height=\"887\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Digital-Academy-2012.png\" class=\"attachment-full size-full wp-image-27298\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Digital-Academy-2012.png 1285w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Digital-Academy-2012-300x207.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Digital-Academy-2012-1024x707.png 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Digital-Academy-2012-768x530.png 768w\" sizes=\"(max-width: 1285px) 100vw, 1285px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2013<br \/>Ausweitung vertrauensw\u00fcrdiger Bildung \u00fcber die Konferenz hinaus<\/h3><div class=\"timeline-item__card-desc\"><p>Mit dem ersten Webinar der MDF, das 2013 in die neue Digital Academy aufgenommen wurde, erreichte die vertrauensw\u00fcrdige Aufkl\u00e4rung \u00fcber myotoner Dystrophie mehr als nur ein j\u00e4hrliches Treffen. Die On-Demand-Bibliothek schuf eine Grundlage f\u00fcr den ganzj\u00e4hrigen Zugang zu Fachwissen von Klinikern, Forschern und der Gemeinschaft und wuchs sp\u00e4ter auf Hunderte von Stunden praktischer und wissenschaftlicher Programme an. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/digital-academy\/\">MDF Digital Academy<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1285\" height=\"887\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Digital-Academy-2012.png\" class=\"attachment-full size-full wp-image-27298\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Digital-Academy-2012.png 1285w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Digital-Academy-2012-300x207.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Digital-Academy-2012-1024x707.png 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Digital-Academy-2012-768x530.png 768w\" sizes=\"(max-width: 1285px) 100vw, 1285px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-10 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1136\" height=\"756\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Congressional-Hearing-Lisa-Kayla.jpg\" class=\"attachment-full size-full wp-image-27299\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Congressional-Hearing-Lisa-Kayla.jpg 1136w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Congressional-Hearing-Lisa-Kayla-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Congressional-Hearing-Lisa-Kayla-1024x681.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Congressional-Hearing-Lisa-Kayla-768x511.jpg 768w\" sizes=\"(max-width: 1136px) 100vw, 1136px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2014<br \/>Die Gemeinschaft der myotoner Dystrophie spricht vor dem Kongress<\/h3><div class=\"timeline-item__card-desc\"><p>Im Jahr 2014 sagten Kayla Vittek, die mit kongenitaler myotoner Dystrophie lebte, und ihre Mutter, die MDF-Gr\u00fcndungsgesch\u00e4ftsf\u00fchrerin Lisa Harvey-Duren, vor dem Ausschuss f\u00fcr Gesundheit, Bildung, Arbeit und Renten des US-Senats aus, um die erneute Genehmigung des MD-CARE Act zu unterst\u00fctzen. In diesem Jahr f\u00fchrte die MDF auch ihre erste Interessenvertretung auf dem Capitol Hill durch und etablierte ein dauerhaftes Programm, durch das Familien die Forschungsfinanzierung und die \u00f6ffentliche Politik mitgestalten konnten. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/team\/lisa-harvey\/\">Lernen Sie Lisa Harvey-Duren kennen und erfahren Sie Kaylas Geschichte<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/2014-mdf-annual-conference-in-washington-dc\/\">MDF-Jahreskonferenz 2014 in Washington, D.C.<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/get-involved\/advocate\/\">MDF-Interessenvertretung<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1136\" height=\"756\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Congressional-Hearing-Lisa-Kayla.jpg\" class=\"attachment-full size-full wp-image-27299\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Congressional-Hearing-Lisa-Kayla.jpg 1136w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Congressional-Hearing-Lisa-Kayla-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Congressional-Hearing-Lisa-Kayla-1024x681.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Congressional-Hearing-Lisa-Kayla-768x511.jpg 768w\" sizes=\"(max-width: 1136px) 100vw, 1136px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-11 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1000\" height=\"667\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/drug-development-img.jpg\" class=\"attachment-full size-full wp-image-21037\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/drug-development-img.jpg 1000w, https:\/\/myotonic.org\/wp-content\/uploads\/drug-development-img-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/drug-development-img-768x512.jpg 768w\" sizes=\"(max-width: 1000px) 100vw, 1000px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2014<br \/>Die erste krankheitsmodifizierende Studie zu myotoner Dystrophie<\/h3><div class=\"timeline-item__card-desc\"><p>Eine Phase-1-2-Studie zu IONIS-DMPKRx-2.5 wurde an mehreren US-Standorten er\u00f6ffnet und markierte die erste klinische Studie, die darauf abzielte, den zugrunde liegenden Krankheitsprozess bei DM1 zu beeinflussen. Die Therapie erreichte keine ausreichenden Konzentrationen in der Skelettmuskulatur, aber die Studie zeigte, dass eine multizentrische krankheitsmodifizierende Studie bei myotoner Dystrophie durchgef\u00fchrt werden kann, und ihre Erkenntnisse flossen in sp\u00e4tere Ans\u00e4tze ein. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/research\/clinical-trials-and-studies\/\">Klinische Studien und Untersuchungen<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/resources\/drug-development-pipeline\/\">MDF-Pipeline f\u00fcr die Arzneimittelentwicklung<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/2014-mdf-annual-conference-in-washington-dc\/\">MDF-Jahreskonferenz 2014<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1000\" height=\"667\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/drug-development-img.jpg\" class=\"attachment-full size-full wp-image-21037\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/drug-development-img.jpg 1000w, https:\/\/myotonic.org\/wp-content\/uploads\/drug-development-img-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/drug-development-img-768x512.jpg 768w\" sizes=\"(max-width: 1000px) 100vw, 1000px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-12 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/JK-podium-scaled.jpg\" class=\"attachment-full size-full wp-image-27300\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/JK-podium-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/JK-podium-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/JK-podium-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/JK-podium-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/JK-podium-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/JK-podium-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2015<br \/>Ein koordinierter Plan f\u00fcr Pflege und Behandlungen<\/h3><div class=\"timeline-item__card-desc\"><p>Die MDF verpflichtete sich zu einem dreij\u00e4hrigen, millionenschweren Programm (Spitzname Myotonic 3.0), um Barrieren abzubauen, die die Versorgung und Therapieentwicklung verlangsamen. Die MDF erweiterte die klinischen Forschungskapazit\u00e4ten, trieb die Arbeit an Biomarkern und Endpunkten voran, engagierte Aufsichtsbeh\u00f6rden und die Industrie und begann mit der Entwicklung von Konsens-Empfehlungen f\u00fcr die Versorgung. Ein wegweisender Workshop brachte Vertreter der Gemeinschaft, Forscher, NIH, FDA und die Industrie f\u00fcr eine gemeinsame Entwicklungsagenda zusammen.  <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/mdf-3-0-advancing-myotonic-dystrophy-research-care-and-drug-development\/\">Zusammenfassung MDF 3.0<\/a><\/li>\n<li><a href=\"https:\/\/doi.org\/10.1177\/2168479016683988\" target=\"_blank\" rel=\"noopener\">Bericht zum Workshop f\u00fcr patientenzentrierte Therapieentwicklung<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/2015-mdf-annual-conference-in-washington-dc\/\">MDF-Jahreskonferenz 2015<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/JK-podium-scaled.jpg\" class=\"attachment-full size-full wp-image-27300\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/JK-podium-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/JK-podium-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/JK-podium-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/JK-podium-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/JK-podium-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/JK-podium-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-13 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1797\" height=\"488\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Wyck-Foundation.jpg\" class=\"attachment-full size-full wp-image-27301\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Wyck-Foundation.jpg 1797w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Wyck-Foundation-300x81.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Wyck-Foundation-1024x278.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Wyck-Foundation-768x209.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Wyck-Foundation-1536x417.jpg 1536w\" sizes=\"(max-width: 1797px) 100vw, 1797px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2015<br \/>Eine neue Forschungspartnerschaft im Vereinigten K\u00f6nigreich<\/h3><div class=\"timeline-item__card-desc\"><p>Die Schwesterorganisation der MDF wurde in London als Wyck Foundation, sp\u00e4ter MDF UK, gegr\u00fcndet und schuf eine erg\u00e4nzende Investitionsquelle f\u00fcr die Wissenschaft der myotoner Dystrophie. \u00dcber neun Jahre hinweg finanzierte MDF UK 16 Forschungsstipendien und 22 Fellowships, oft in Partnerschaft mit der MDF, und weitete so die Unterst\u00fctzung durch Spender auf Forscher und Projekte im gesamten internationalen Feld aus. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/history\/mdf-uk\/\">Forschungserbe der MDF UK<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/research\/grants-and-funding\/\">MDF-Forschungsstipendien &amp; Finanzierung<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1797\" height=\"488\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Wyck-Foundation.jpg\" class=\"attachment-full size-full wp-image-27301\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Wyck-Foundation.jpg 1797w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Wyck-Foundation-300x81.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Wyck-Foundation-1024x278.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Wyck-Foundation-768x209.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Wyck-Foundation-1536x417.jpg 1536w\" sizes=\"(max-width: 1797px) 100vw, 1797px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-14 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Lee-Baker-and-Judy-Marks-Lee-Speaking-scaled.jpg\" class=\"attachment-full size-full wp-image-27302\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Lee-Baker-and-Judy-Marks-Lee-Speaking-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Lee-Baker-and-Judy-Marks-Lee-Speaking-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Lee-Baker-and-Judy-Marks-Lee-Speaking-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Lee-Baker-and-Judy-Marks-Lee-Speaking-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Lee-Baker-and-Judy-Marks-Lee-Speaking-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Lee-Baker-and-Judy-Marks-Lee-Speaking-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2016<br \/>Die Gemeinschaft definiert eine bedeutsame Behandlung<\/h3><div class=\"timeline-item__card-desc\"><p>Die MDF berief das erste von der FDA genehmigte, extern geleitete Treffen zur patientenorientierten Arzneimittelentwicklung f\u00fcr myotoner Dystrophie ein. Dies gab Menschen mit myotoner Dystrophie und Pflegekr\u00e4ften eine formelle Rolle bei der Definition von Behandlungspriorit\u00e4ten, akzeptablem Risiko und bedeutsamem Nutzen. Der daraus resultierende \u201eVoice of the Patient\u201c-Bericht schuf ein dauerhaftes Dokument f\u00fcr Aufsichtsbeh\u00f6rden, Forscher und Arzneimittelentwickler. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDFVoicePatientReportMay2017.pdf\">MDF \u201eVoice of the Patient\u201c-Bericht<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/2016-mdf-annual-conference-in-washington-dc\/\">MDF-Jahreskonferenz 2016<\/a><\/li>\n<\/ul>\n<p>\u00a0<\/p><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Lee-Baker-and-Judy-Marks-Lee-Speaking-scaled.jpg\" class=\"attachment-full size-full wp-image-27302\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Lee-Baker-and-Judy-Marks-Lee-Speaking-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Lee-Baker-and-Judy-Marks-Lee-Speaking-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Lee-Baker-and-Judy-Marks-Lee-Speaking-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Lee-Baker-and-Judy-Marks-Lee-Speaking-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Lee-Baker-and-Judy-Marks-Lee-Speaking-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Lee-Baker-and-Judy-Marks-Lee-Speaking-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-15 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Laura-Gershenson-2017-scaled.jpg\" class=\"attachment-full size-full wp-image-27303\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Laura-Gershenson-2017-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Laura-Gershenson-2017-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Laura-Gershenson-2017-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Laura-Gershenson-2017-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Laura-Gershenson-2017-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Laura-Gershenson-2017-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2017<br \/>Gemeinschaftsbed\u00fcrfnisse in Unterst\u00fctzung bei Erwerbsminderung umwandeln<\/h3><div class=\"timeline-item__card-desc\"><p>Gespr\u00e4che \u00fcber die Warmline und anderes Feedback aus der Gemeinschaft zeigten, dass Familien Schwierigkeiten hatten, Antr\u00e4ge auf Erwerbsminderungsrente zu stellen. Die MDF reagierte mit einem praktischen Social-Security-Toolkit und einem dauerhaften Engagement bei der Social Security Administration, was dazu beitrug, die Aufnahme der kongenitalen myotoner Dystrophie in das \u201eCompassionate Allowances\u201c-Programm und schnellere Entscheidungen f\u00fcr berechtigte Familien zu sichern. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/resources\/applying-for-social-security-disability-benefits-toolkit\/\">Toolkit f\u00fcr die Beantragung von Social Security Disability Benefits<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/digital-academy\/understanding-ssa-compassionate-allowance-cdm\/\">Verst\u00e4ndnis der SSA Compassionate Allowance f\u00fcr CDM<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/2017-mdf-annual-conference-in-san-francisco-ca\/\">MDF-Jahreskonferenz 2017<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Laura-Gershenson-2017-scaled.jpg\" class=\"attachment-full size-full wp-image-27303\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Laura-Gershenson-2017-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Laura-Gershenson-2017-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Laura-Gershenson-2017-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Laura-Gershenson-2017-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Laura-Gershenson-2017-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Laura-Gershenson-2017-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-16 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1200\" height=\"900\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/1_Haylon.jpg\" class=\"attachment-full size-full wp-image-18880\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/1_Haylon.jpg 1200w, https:\/\/myotonic.org\/wp-content\/uploads\/1_Haylon-300x225.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/1_Haylon-1024x768.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/1_Haylon-768x576.jpg 768w\" sizes=\"(max-width: 1200px) 100vw, 1200px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2018<br \/>Staatliche Forschungsf\u00f6rderung \u00f6ffnet sich f\u00fcr myotoner Dystrophie<\/h3><div class=\"timeline-item__card-desc\"><p>Nach jahrelanger Interessenvertretung durch die MDF und die Gemeinschaft der myotoner Dystrophie wurde die myotoner Dystrophie f\u00fcr das Peer Reviewed Medical Research Program des US-Verteidigungsministeriums zugelassen. Die F\u00f6rderf\u00e4higkeit er\u00f6ffnete Forschern im Bereich der myotoner Dystrophie den Zugang zu wettbewerbsorientierten Bundesmitteln und schuf einen Weg, den die MDF und die F\u00fcrsprecher der Gemeinschaft Jahr f\u00fcr Jahr erfolgreich verteidigt haben. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/get-involved\/advocate\/\">MDF-Interessenvertretung<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/get-involved\/advocate\/prmrp\/\">Historie der PRMRP-F\u00f6rderf\u00e4higkeit<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1200\" height=\"900\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/1_Haylon.jpg\" class=\"attachment-full size-full wp-image-18880\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/1_Haylon.jpg 1200w, https:\/\/myotonic.org\/wp-content\/uploads\/1_Haylon-300x225.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/1_Haylon-1024x768.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/1_Haylon-768x576.jpg 768w\" sizes=\"(max-width: 1200px) 100vw, 1200px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-17 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"960\" height=\"540\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Care-Considerations-Group-2016.jpg\" class=\"attachment-full size-full wp-image-27304\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Care-Considerations-Group-2016.jpg 960w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Care-Considerations-Group-2016-300x169.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Care-Considerations-Group-2016-768x432.jpg 768w\" sizes=\"(max-width: 960px) 100vw, 960px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2018<br \/>Die ersten Konsens-Empfehlungen f\u00fcr die Versorgung bei DM1<\/h3><div class=\"timeline-item__card-desc\"><p>Die MDF brachte internationale Experten zusammen, um den Mangel an einheitlichen klinischen Leitlinien f\u00fcr eine komplexe Multisystemerkrankung zu beheben. Die daraus resultierenden konsensbasierten Empfehlungen f\u00fcr Erwachsene mit DM1 gaben Klinikern und Familien einen gemeinsamen, evidenzbasierten Rahmen f\u00fcr das Versorgungsmanagement \u00fcber mehrere K\u00f6rpersysteme hinweg und legten den Grundstein f\u00fcr Leitlinien f\u00fcr weitere Populationen mit myotoner Dystrophie. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/resources\/\">Alle MDF-Ressourcen<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/resources\/cat\/healthcare-professionals\/\">Ressourcen f\u00fcr medizinisches Fachpersonal<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/resources\/clinical-care-recommendations-for-adults-with-dm1\/\">Klinische Versorgungsempfehlungen f\u00fcr Erwachsene mit DM1<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/resources\/clinical-care-recommendations-for-adults-with-myotonic-dystrophy-type-2\/\">Klinische Versorgungsempfehlungen f\u00fcr Erwachsene mit DM2<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"960\" height=\"540\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Care-Considerations-Group-2016.jpg\" class=\"attachment-full size-full wp-image-27304\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Care-Considerations-Group-2016.jpg 960w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Care-Considerations-Group-2016-300x169.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Care-Considerations-Group-2016-768x432.jpg 768w\" sizes=\"(max-width: 960px) 100vw, 960px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-18 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1218\" height=\"1256\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Vertical-Gene-Editing-Wkshp-Photo.png\" class=\"attachment-full size-full wp-image-27305\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Vertical-Gene-Editing-Wkshp-Photo.png 1218w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Vertical-Gene-Editing-Wkshp-Photo-291x300.png 291w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Vertical-Gene-Editing-Wkshp-Photo-993x1024.png 993w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Vertical-Gene-Editing-Wkshp-Photo-768x792.png 768w\" sizes=\"(max-width: 1218px) 100vw, 1218px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2018<br \/>Priorit\u00e4ten f\u00fcr die Genom-Editierungsforschung definieren<\/h3><div class=\"timeline-item__card-desc\"><p>Die MDF brachte Experten aus Wissenschaft, NIH, FDA, Industrie und der Gemeinschaft zusammen, um zu bewerten, wie die Genom-Editierung f\u00fcr DM1 verantwortungsvoll vorangetrieben werden kann. Der Workshop definierte Fragen zu Wissenschaft, Verabreichung, Sicherheit und Entwicklung und informierte eine wettbewerbsorientierte Finanzierungsinitiative f\u00fcr die Fr\u00fchphasenforschung, die auf DMPK abzielt. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDF_Genome_Editing_Workshop_Full_Notes_FNL_2018-04-27.pdf\">Bericht zum MDF-Workshop f\u00fcr Genom-Editierung<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/research\/\">MDF-Forschung<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/2018-mdf-annual-conference-in-nashville-tn\/\">MDF-Jahreskonferenz 2018<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1218\" height=\"1256\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Vertical-Gene-Editing-Wkshp-Photo.png\" class=\"attachment-full size-full wp-image-27305\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Vertical-Gene-Editing-Wkshp-Photo.png 1218w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Vertical-Gene-Editing-Wkshp-Photo-291x300.png 291w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Vertical-Gene-Editing-Wkshp-Photo-993x1024.png 993w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Vertical-Gene-Editing-Wkshp-Photo-768x792.png 768w\" sizes=\"(max-width: 1218px) 100vw, 1218px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-19 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Ellis-Oppenheim-and-woman-at-vendor-fair-table-scaled.jpg\" class=\"attachment-full size-full wp-image-27306\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Ellis-Oppenheim-and-woman-at-vendor-fair-table-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Ellis-Oppenheim-and-woman-at-vendor-fair-table-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Ellis-Oppenheim-and-woman-at-vendor-fair-table-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Ellis-Oppenheim-and-woman-at-vendor-fair-table-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Ellis-Oppenheim-and-woman-at-vendor-fair-table-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Ellis-Oppenheim-and-woman-at-vendor-fair-table-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2019<br \/>Neue Versorgungsleitlinien f\u00fcr DM2 und Kinder<\/h3><div class=\"timeline-item__card-desc\"><p>Die MDF weitete die konsensbasierten Leitlinien auf Erwachsene mit DM2 und Kinder mit kongenitaler oder im Kindesalter beginnender DM1 aus und f\u00fchrte gleichzeitig eine einseitige An\u00e4sthesie-Kurzreferenz ein. Diese Ressourcen \u00fcbersetzten den Expertenkonsens in praktische Werkzeuge, die Familien in klinische Umgebungen mitnehmen konnten, was die Sicherheit und eine konsistentere Versorgung \u00fcber alle Typen und Altersgruppen der myotoner Dystrophie hinweg st\u00e4rkte. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/resources\/anesthesia-guidelines\/\">MDF-An\u00e4sthesierichtlinien<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/resources\/clinical-care-recommendations-for-adults-with-myotonic-dystrophy-type-2\/\">Klinische Versorgungsempfehlungen f\u00fcr Erwachsene mit DM2<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/resources\/clinical-care-recommendations-for-children-with-myotonic-dystrophy-type-1\/\">Klinische Versorgungsempfehlungen f\u00fcr Kinder mit DM1<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Ellis-Oppenheim-and-woman-at-vendor-fair-table-scaled.jpg\" class=\"attachment-full size-full wp-image-27306\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Ellis-Oppenheim-and-woman-at-vendor-fair-table-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Ellis-Oppenheim-and-woman-at-vendor-fair-table-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Ellis-Oppenheim-and-woman-at-vendor-fair-table-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Ellis-Oppenheim-and-woman-at-vendor-fair-table-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Ellis-Oppenheim-and-woman-at-vendor-fair-table-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Ellis-Oppenheim-and-woman-at-vendor-fair-table-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-20 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Tim-Haylon-Lisa-Harvey-Jeremy-Kelly-award-ceremony-scaled.jpg\" class=\"attachment-full size-full wp-image-27307\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Tim-Haylon-Lisa-Harvey-Jeremy-Kelly-award-ceremony-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Tim-Haylon-Lisa-Harvey-Jeremy-Kelly-award-ceremony-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Tim-Haylon-Lisa-Harvey-Jeremy-Kelly-award-ceremony-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Tim-Haylon-Lisa-Harvey-Jeremy-Kelly-award-ceremony-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Tim-Haylon-Lisa-Harvey-Jeremy-Kelly-award-ceremony-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Tim-Haylon-Lisa-Harvey-Jeremy-Kelly-award-ceremony-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2019<br \/>Kayla Vitteks Verm\u00e4chtnis in der Interessenvertretung<\/h3><div class=\"timeline-item__card-desc\"><p>Die MDF rief den Kayla Vittek Memorial Award for Outstanding Community Advocate ins Leben, um das Verm\u00e4chtnis einer jungen F\u00fcrsprecherin fortzuf\u00fchren, die mit kongenitaler myotoner Dystrophie lebte und 2014 gemeinsam mit ihrer Mutter Lisa Harvey-Duren vor dem Kongress aussagte. Der j\u00e4hrlich verliehene Preis ehrt Gemeindemitglieder, die das Bewusstsein sch\u00e4rfen, sich f\u00fcr Forschung und Ressourcen einsetzen und helfen, eine st\u00e4rkere Zukunft f\u00fcr von myotoner Dystrophie betroffene Menschen zu gestalten. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/team\/lisa-harvey\/\">Lernen Sie Lisa Harvey-Duren kennen und erfahren Sie Kaylas Geschichte<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/2019-myotonic-annual-conference-in-philadelphia-pa\/\">MDF-Jahreskonferenz 2019<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/conferences\/\">MDF-Konferenzarchiv<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Tim-Haylon-Lisa-Harvey-Jeremy-Kelly-award-ceremony-scaled.jpg\" class=\"attachment-full size-full wp-image-27307\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Tim-Haylon-Lisa-Harvey-Jeremy-Kelly-award-ceremony-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Tim-Haylon-Lisa-Harvey-Jeremy-Kelly-award-ceremony-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Tim-Haylon-Lisa-Harvey-Jeremy-Kelly-award-ceremony-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Tim-Haylon-Lisa-Harvey-Jeremy-Kelly-award-ceremony-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Tim-Haylon-Lisa-Harvey-Jeremy-Kelly-award-ceremony-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Tim-Haylon-Lisa-Harvey-Jeremy-Kelly-award-ceremony-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-21 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"600\" height=\"337\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/ask-expert-covid-vaccines-da-thumb-real.jpg\" class=\"attachment-full size-full wp-image-13582\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/ask-expert-covid-vaccines-da-thumb-real.jpg 600w, https:\/\/myotonic.org\/wp-content\/uploads\/ask-expert-covid-vaccines-da-thumb-real-300x169.jpg 300w\" sizes=\"(max-width: 600px) 100vw, 600px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2020<br \/>Schaffung ganzj\u00e4hriger virtueller Unterst\u00fctzung und Bildung<\/h3><div class=\"timeline-item__card-desc\"><p>Als COVID-19 die pers\u00f6nliche Versorgung und Verbindung unterbrach, erweiterte die MDF die virtuellen Selbsthilfegruppen, startete ihre Webinar-Serie am Freitagnachmittag, verlegte die Konferenz ins Internet und ver\u00f6ffentlichte zeitnahe klinische und praktische Leitf\u00e4den. Die Reaktion beschleunigte den ganzj\u00e4hrigen Zugang zu Peer-Unterst\u00fctzung und vertrauensw\u00fcrdigem Fachwissen \u00fcber geografische Grenzen hinweg und etablierte digitale Programme, die auch nach der unmittelbaren Krise fortgesetzt wurden. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/support\/support-groups\/\">MDF-Selbsthilfegruppen<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/digital-academy\/\">MDF Digital Academy<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/2020-virtual-mdf-annual-conference\/\">Virtuelle MDF-Konferenz 2020<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDF-2020-Virtual-Conference-Program.pdf\">Programm der virtuellen Konferenz 2020<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"600\" height=\"337\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/ask-expert-covid-vaccines-da-thumb-real.jpg\" class=\"attachment-full size-full wp-image-13582\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/ask-expert-covid-vaccines-da-thumb-real.jpg 600w, https:\/\/myotonic.org\/wp-content\/uploads\/ask-expert-covid-vaccines-da-thumb-real-300x169.jpg 300w\" sizes=\"(max-width: 600px) 100vw, 600px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-22 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Veronica-Dunning-Bonnie-Nahama-Leslie-Krongold-good-yoga-shot-scaled.jpg\" class=\"attachment-full size-full wp-image-27308\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Veronica-Dunning-Bonnie-Nahama-Leslie-Krongold-good-yoga-shot-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Veronica-Dunning-Bonnie-Nahama-Leslie-Krongold-good-yoga-shot-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Veronica-Dunning-Bonnie-Nahama-Leslie-Krongold-good-yoga-shot-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Veronica-Dunning-Bonnie-Nahama-Leslie-Krongold-good-yoga-shot-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Veronica-Dunning-Bonnie-Nahama-Leslie-Krongold-good-yoga-shot-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Veronica-Dunning-Bonnie-Nahama-Leslie-Krongold-good-yoga-shot-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2020<br \/>Bewegung als Teil eines guten Lebens mit myotoner Dystrophie<\/h3><div class=\"timeline-item__card-desc\"><p>Die MDF ver\u00f6ffentlichte 2020 einen \u00dcbungsleitfaden und entwickelte Myotonic Dystrophy In Motion (MDIM), eine von der Gemeinschaft geleitete Initiative, die Unsicherheit und veraltete Annahmen durch praktische, evidenzbasierte Anleitungen zu angemessen angepasster Bewegung ersetzte. Der erste MDIM-Aktionsmonat im Jahr 2024 bot barrierefreie Webinare, Bewegungsaktivit\u00e4ten und pers\u00f6nlichen Austausch unter Gleichgesinnten. <\/p>\n<ul>\n<li><a href=\"https:\/\/www.myotonic.org\/myotonic-dystrophy-motion\">Myotone Dystrophie in Bewegung<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/resources\/exercise-and-movement-resources\/\">Ressourcen f\u00fcr \u00dcbung &amp; Bewegung<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Veronica-Dunning-Bonnie-Nahama-Leslie-Krongold-good-yoga-shot-scaled.jpg\" class=\"attachment-full size-full wp-image-27308\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Veronica-Dunning-Bonnie-Nahama-Leslie-Krongold-good-yoga-shot-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Veronica-Dunning-Bonnie-Nahama-Leslie-Krongold-good-yoga-shot-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Veronica-Dunning-Bonnie-Nahama-Leslie-Krongold-good-yoga-shot-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Veronica-Dunning-Bonnie-Nahama-Leslie-Krongold-good-yoga-shot-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Veronica-Dunning-Bonnie-Nahama-Leslie-Krongold-good-yoga-shot-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Veronica-Dunning-Bonnie-Nahama-Leslie-Krongold-good-yoga-shot-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-23 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"800\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/10_International-DM-Awareness-Day-Logo-800px.jpg\" class=\"attachment-full size-full wp-image-13415\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/10_International-DM-Awareness-Day-Logo-800px.jpg 800w, https:\/\/myotonic.org\/wp-content\/uploads\/10_International-DM-Awareness-Day-Logo-800px-300x300.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/10_International-DM-Awareness-Day-Logo-800px-150x150.jpg 150w, https:\/\/myotonic.org\/wp-content\/uploads\/10_International-DM-Awareness-Day-Logo-800px-768x768.jpg 768w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2021<br \/>Aufbau einer globalen Bewegung f\u00fcr das Bewusstsein f\u00fcr myotoner Dystrophie<\/h3><div class=\"timeline-item__card-desc\"><p>Die MDF half dabei, Organisationen auf der ganzen Welt zu vereinen, um die Global Alliance for Myotonic Dystrophy Awareness und den ersten Internationalen Tag des Bewusstseins f\u00fcr myotoner Dystrophie am 15. September ins Leben zu rufen. Die Allianz schuf eine dauerhafte Infrastruktur f\u00fcr gemeinsame Botschaften, koordiniertes Handeln und ein gr\u00f6\u00dferes \u00f6ffentliches Verst\u00e4ndnis \u00fcber nationale und organisatorische Grenzen hinweg. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/events\/international-myotonic-dystrophy-awareness-day\/\">Internationaler Tag der Aufkl\u00e4rung \u00fcber myotone dystrophie<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/global-alliance-60-myotonic-dystrophy-organizations-recognizes-5th-annual-international-myotonic\/\">Global Alliance: \u00dcber 60 Organisationen<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDF-Annual-Report-FY2021.pdf\">MDF-Jahresbericht 2021<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"800\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/10_International-DM-Awareness-Day-Logo-800px.jpg\" class=\"attachment-full size-full wp-image-13415\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/10_International-DM-Awareness-Day-Logo-800px.jpg 800w, https:\/\/myotonic.org\/wp-content\/uploads\/10_International-DM-Awareness-Day-Logo-800px-300x300.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/10_International-DM-Awareness-Day-Logo-800px-150x150.jpg 150w, https:\/\/myotonic.org\/wp-content\/uploads\/10_International-DM-Awareness-Day-Logo-800px-768x768.jpg 768w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-24 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Nate-Uhl-at-Poster-Session-close-up-scaled.jpg\" class=\"attachment-full size-full wp-image-27309\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Nate-Uhl-at-Poster-Session-close-up-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Nate-Uhl-at-Poster-Session-close-up-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Nate-Uhl-at-Poster-Session-close-up-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Nate-Uhl-at-Poster-Session-close-up-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Nate-Uhl-at-Poster-Session-close-up-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Nate-Uhl-at-Poster-Session-close-up-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2021<br \/>Unterst\u00fctzung der Gemeinschaft bei der Verfolgung der Behandlungsentwicklung<\/h3><div class=\"timeline-item__card-desc\"><p>Bis M\u00e4rz 2021 ver\u00f6ffentlichte die MDF eine \u00f6ffentliche \u00dcbersicht, die potenzielle Behandlungen f\u00fcr myotoner Dystrophie nach Entwicklungsstand ordnete. Die MDF pflegt nun ein umfassenderes Tool, das aktive und vergangene Programme mit Studieninformationen und Updates aus der Gemeinschaft verkn\u00fcpft. Die aktuelle, von der MDF entwickelte Ressource w\u00fcrdigt das Gemeindemitglied Nate Uhl f\u00fcr die umfassende Forschungsrecherche und die urspr\u00fcngliche Vision hinter der Pipeline.  <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/resources\/drug-development-pipeline\/\">MDF-Pipeline f\u00fcr die Arzneimittelentwicklung<\/a><\/li>\n<li><a href=\"https:\/\/www.myotonic.org\/sites\/default\/files\/pages\/files\/Myotonic-Dystrophy-Drug-Development-Pipeline-as-of-March-8th-2021.pdf\">Pipeline f\u00fcr die Arzneimittelentwicklung f\u00fcr myotoner Dystrophie vom 8. M\u00e4rz 2021<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/meet-dm-drug-developers\/\">Lernen Sie die DM-Arzneimittelentwickler kennen<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/2021-virtual-mdf-annual-conference\/\">Virtuelle MDF-Jahreskonferenz 2021<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Nate-Uhl-at-Poster-Session-close-up-scaled.jpg\" class=\"attachment-full size-full wp-image-27309\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Nate-Uhl-at-Poster-Session-close-up-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Nate-Uhl-at-Poster-Session-close-up-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Nate-Uhl-at-Poster-Session-close-up-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Nate-Uhl-at-Poster-Session-close-up-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Nate-Uhl-at-Poster-Session-close-up-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Nate-Uhl-at-Poster-Session-close-up-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-25 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1680\" height=\"1050\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Avidity-screen-cap.png\" class=\"attachment-full size-full wp-image-27310\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Avidity-screen-cap.png 1680w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Avidity-screen-cap-300x188.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Avidity-screen-cap-1024x640.png 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Avidity-screen-cap-768x480.png 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Avidity-screen-cap-1536x960.png 1536w\" sizes=\"(max-width: 1680px) 100vw, 1680px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2021<br \/>Zugang zu Experten und Arzneimittelentwicklern f\u00fcr myotoner Dystrophie \u00f6ffnen<\/h3><div class=\"timeline-item__card-desc\"><p>Beginnend im Jahr 2021 mit \u201eMeet the DM Drug Developers\u201c, gefolgt von erweiterten \u201eAsk-the-Expert\u201c-Programmen, schuf die MDF regelm\u00e4\u00dfige Gelegenheiten f\u00fcr Gemeindemitglieder, direkt von Klinikern, Therapeuten, Forschern und Unternehmen zu h\u00f6ren und in Echtzeit Fragen zu stellen. Aufzeichnungen in der Digital Academy machten diese Gespr\u00e4che auf Abruf verf\u00fcgbar. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/ask-the-expert-webinars\/\">\u201eAsk-the-Expert\u201c-Webinar-Serie<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/meet-dm-drug-developers\/\">Lernen Sie die DM-Arzneimittelentwickler kennen<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/digital-academy\/\">MDF Digital Academy<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1680\" height=\"1050\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Avidity-screen-cap.png\" class=\"attachment-full size-full wp-image-27310\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Avidity-screen-cap.png 1680w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Avidity-screen-cap-300x188.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Avidity-screen-cap-1024x640.png 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Avidity-screen-cap-768x480.png 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Avidity-screen-cap-1536x960.png 1536w\" sizes=\"(max-width: 1680px) 100vw, 1680px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-26 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"868\" height=\"1120\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDFStrategiCPlanCoverpng.png\" class=\"attachment-full size-full wp-image-27311\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDFStrategiCPlanCoverpng.png 868w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDFStrategiCPlanCoverpng-233x300.png 233w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDFStrategiCPlanCoverpng-794x1024.png 794w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDFStrategiCPlanCoverpng-768x991.png 768w\" sizes=\"(max-width: 868px) 100vw, 868px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2021<br \/>Die Gemeinschaft gestaltet den strategischen Plan der MDF<\/h3><div class=\"timeline-item__card-desc\"><p>Die MDF verabschiedete ihren ersten umfassenden strategischen Plan, der durch den Input von mehr als 800 Gemeindemitgliedern und Interessenvertretern gestaltet wurde. Der Plan aktualisierte die Vision und Mission der MDF, legte gemeinsame Werte und eine Theorie des Wandels fest und organisierte die Arbeit der Stiftung um die Bereiche Gemeinschaft, Pflege, Heilung und organisatorische St\u00e4rke, wodurch die Rechenschaftspflicht gegen\u00fcber der Gemeinschaft explizit gemacht wurde. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDF_StrategicPlan_Distribution_2022.pdf\">Strategischer Plan der MDF 2021\u20132024<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/mission\/\">Mission der MDF<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDF-Annual-Report-FY2021.pdf\">MDF-Jahresbericht 2021<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"868\" height=\"1120\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDFStrategiCPlanCoverpng.png\" class=\"attachment-full size-full wp-image-27311\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDFStrategiCPlanCoverpng.png 868w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDFStrategiCPlanCoverpng-233x300.png 233w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDFStrategiCPlanCoverpng-794x1024.png 794w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDFStrategiCPlanCoverpng-768x991.png 768w\" sizes=\"(max-width: 868px) 100vw, 868px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-27 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"800\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/9_International-DM-Awareness-Day-Logo-800px.jpg\" class=\"attachment-full size-full wp-image-13358\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/9_International-DM-Awareness-Day-Logo-800px.jpg 800w, https:\/\/myotonic.org\/wp-content\/uploads\/9_International-DM-Awareness-Day-Logo-800px-300x300.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/9_International-DM-Awareness-Day-Logo-800px-150x150.jpg 150w, https:\/\/myotonic.org\/wp-content\/uploads\/9_International-DM-Awareness-Day-Logo-800px-768x768.jpg 768w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2022<br \/>Nationale Anerkennung und Rekord bei der staatlichen Forschungsf\u00f6rderung<\/h3><div class=\"timeline-item__card-desc\"><p>Der US-Senat erkannte den 15. September durch die Senatsresolution 772 offiziell als Internationalen Tag des Bewusstseins f\u00fcr myotoner Dystrophie an. Die MDF meldete au\u00dferdem eine Rekordsumme von 8,8 Millionen US-Dollar an PRMRP-F\u00f6rderungen der US-Regierung f\u00fcr Forscher im Bereich der myotoner Dystrophie und startete ein Forschungsstipendienprogramm f\u00fcr Nachwuchswissenschaftler, was zeigt, wie Sichtbarkeit, politische Arbeit und Investitionen in wissenschaftliche Talente begannen, sich gegenseitig zu verst\u00e4rken. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/get-involved\/advocate\/\">MDF-Interessenvertretung<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDF_2022-Annual-Report.pdf\">MDF-Jahresbericht 2022<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/2022-mdf-annual-conference-san-diego-ca\/\">MDF-Jahreskonferenz 2022<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"800\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/9_International-DM-Awareness-Day-Logo-800px.jpg\" class=\"attachment-full size-full wp-image-13358\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/9_International-DM-Awareness-Day-Logo-800px.jpg 800w, https:\/\/myotonic.org\/wp-content\/uploads\/9_International-DM-Awareness-Day-Logo-800px-300x300.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/9_International-DM-Awareness-Day-Logo-800px-150x150.jpg 150w, https:\/\/myotonic.org\/wp-content\/uploads\/9_International-DM-Awareness-Day-Logo-800px-768x768.jpg 768w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-28 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"977\" height=\"828\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-website-spanish-2024.png\" class=\"attachment-full size-full wp-image-27312\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-website-spanish-2024.png 977w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-website-spanish-2024-300x254.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-website-spanish-2024-768x651.png 768w\" sizes=\"(max-width: 977px) 100vw, 977px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2022<br \/>Ausweitung praktischer Ressourcen in verschiedenen Sprachen<\/h3><div class=\"timeline-item__card-desc\"><p>Die MDF erweiterte den Zugang zu praktischen Leitf\u00e4den durch spanisch- und deutschsprachige Hubs, mehrsprachige Unterst\u00fctzungsprogramme sowie neue oder \u00fcbersetzte Ressourcen. Bis 2024 umfasste die Sammlung Leitf\u00e4den zu psychischer Gesundheit, Bewegung, Herzgesundheit, Ern\u00e4hrung, Physiotherapie, An\u00e4sthesie und medizinischen Warnhinweisen, die Familien und Klinikern helfen, vertrauensw\u00fcrdige Informationen \u00fcber Sprachen und Versorgungsumgebungen hinweg zu nutzen. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/resources\/\">MDF-Ressourcen<\/a>.<\/li>\n<li><a href=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDF_Annual-Report_2023.pdf\">MDF-Jahresbericht 2023<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDF_Annual-Report_2024.pdf\">MDF-Jahresbericht 2024<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"977\" height=\"828\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-website-spanish-2024.png\" class=\"attachment-full size-full wp-image-27312\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-website-spanish-2024.png 977w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-website-spanish-2024-300x254.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-website-spanish-2024-768x651.png 768w\" sizes=\"(max-width: 977px) 100vw, 977px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-29 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1080\" height=\"1080\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/Research2.png\" class=\"attachment-full size-full wp-image-12336\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/Research2.png 1080w, https:\/\/myotonic.org\/wp-content\/uploads\/Research2-300x300.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/Research2-1024x1024.png 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/Research2-150x150.png 150w, https:\/\/myotonic.org\/wp-content\/uploads\/Research2-768x768.png 768w\" sizes=\"(max-width: 1080px) 100vw, 1080px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2023<br \/>Investition in die n\u00e4chste Generation von Forschern f\u00fcr myotoner Dystrophie<\/h3><div class=\"timeline-item__card-desc\"><p>Allein im Jahr 2023 stellte die MDF mehr als 1 Million US-Dollar f\u00fcr Forschungsstipendien und Fellowships bereit, darunter die Unterst\u00fctzung f\u00fcr f\u00fcnf Research Fellows und drei Nachwuchsforscher. Die Investition trieb vielversprechende Projekte voran und adressierte gleichzeitig einen strategischen Bedarf: die Bindung qualifizierter Wissenschaftler und die Entwicklung k\u00fcnftiger F\u00fchrungskr\u00e4fte in einem Bereich seltener Krankheiten, der auf dauerhaftes Fachwissen angewiesen ist. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/mdf-board-directors-approves-over-1-million-funding-2023-research-grants-fellowships\/\">Bekanntgabe der Forschungsf\u00f6rderung 2023<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/research\/grants-and-funding\/\">MDF-Forschungsstipendien &amp; Finanzierung<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDF_Annual-Report_2023.pdf\">MDF-Jahresbericht 2023<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1080\" height=\"1080\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/Research2.png\" class=\"attachment-full size-full wp-image-12336\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/Research2.png 1080w, https:\/\/myotonic.org\/wp-content\/uploads\/Research2-300x300.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/Research2-1024x1024.png 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/Research2-150x150.png 150w, https:\/\/myotonic.org\/wp-content\/uploads\/Research2-768x768.png 768w\" sizes=\"(max-width: 1080px) 100vw, 1080px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-30 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1200\" height=\"960\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2023-Advocates-on-Steps.png\" class=\"attachment-full size-full wp-image-13123\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2023-Advocates-on-Steps.png 1200w, https:\/\/myotonic.org\/wp-content\/uploads\/2023-Advocates-on-Steps-300x240.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2023-Advocates-on-Steps-1024x819.png 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2023-Advocates-on-Steps-768x614.png 768w\" sizes=\"(max-width: 1200px) 100vw, 1200px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2023<br \/>Die Gemeinschaft der myotoner Dystrophie kehrt zum Capitol Hill zur\u00fcck<\/h3><div class=\"timeline-item__card-desc\"><p>Mehr als 130 F\u00fcrsprecher aus 23 US-Bundesstaaten und f\u00fcnf anderen L\u00e4ndern nahmen am Advocacy Day 2023 der MDF teil. In \u00fcber 100 Treffen mit Kongressabgeordneten sch\u00e4rften sie das Bewusstsein f\u00fcr die Krankheit bei politischen Entscheidungstr\u00e4gern, setzten sich gezielt f\u00fcr die fortgesetzte PRMRP-F\u00f6rderf\u00e4higkeit ein und forderten st\u00e4rkere Bundesinvestitionen in die Forschung zur myotoner Dystrophie, was sowohl die Reichweite der Gemeinschaft als auch die seit 2014 aufgebauten politischen Kapazit\u00e4ten der MDF demonstrierte. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/mdf-advocates-work-secure-federal-myotonic-dystrophy-research-funding\/\">Advocacy Day 2023<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/2023-mdf-annual-conference-washington-dc\/\">MDF-Jahreskonferenz 2023<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/get-involved\/advocate\/\">MDF-Interessenvertretung<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1200\" height=\"960\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2023-Advocates-on-Steps.png\" class=\"attachment-full size-full wp-image-13123\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2023-Advocates-on-Steps.png 1200w, https:\/\/myotonic.org\/wp-content\/uploads\/2023-Advocates-on-Steps-300x240.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2023-Advocates-on-Steps-1024x819.png 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2023-Advocates-on-Steps-768x614.png 768w\" sizes=\"(max-width: 1200px) 100vw, 1200px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-31 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1200\" height=\"600\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/Conf-Photo_Palo-Alto_3.png\" class=\"attachment-full size-full wp-image-25524\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/Conf-Photo_Palo-Alto_3.png 1200w, https:\/\/myotonic.org\/wp-content\/uploads\/Conf-Photo_Palo-Alto_3-300x150.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/Conf-Photo_Palo-Alto_3-1024x512.png 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/Conf-Photo_Palo-Alto_3-768x384.png 768w\" sizes=\"(max-width: 1200px) 100vw, 1200px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2024<br \/>Bildung n\u00e4her nach Hause bringen<\/h3><div class=\"timeline-item__card-desc\"><p>Sechs Regionalkonferenzen brachten vertrauensw\u00fcrdige Bildung, klinisches Fachwissen, Forschungs-Updates und Peer-Verbindungen n\u00e4her zu den Familien in den Vereinigten Staaten. Die Serie begr\u00fc\u00dfte 737 Teilnehmer, darunter 346 Personen, die zum ersten Mal an einem MDF-Programm teilnahmen, wodurch der Zugang erweitert und gleichzeitig die Rolle der Konferenz als Ort des gemeinsamen Lernens bewahrt wurde. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDF_Annual-Report_2024.pdf\">MDF-Jahresbericht 2024<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/conferences\/\">MDF-Konferenzarchiv<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1200\" height=\"600\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/Conf-Photo_Palo-Alto_3.png\" class=\"attachment-full size-full wp-image-25524\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/Conf-Photo_Palo-Alto_3.png 1200w, https:\/\/myotonic.org\/wp-content\/uploads\/Conf-Photo_Palo-Alto_3-300x150.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/Conf-Photo_Palo-Alto_3-1024x512.png 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/Conf-Photo_Palo-Alto_3-768x384.png 768w\" sizes=\"(max-width: 1200px) 100vw, 1200px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-32 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1000\" height=\"667\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/grants-and-funding-img-3.jpg\" class=\"attachment-full size-full wp-image-8196\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/grants-and-funding-img-3.jpg 1000w, https:\/\/myotonic.org\/wp-content\/uploads\/grants-and-funding-img-3-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/grants-and-funding-img-3-768x512.jpg 768w\" sizes=\"(max-width: 1000px) 100vw, 1000px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2024<br \/>Finanzierung vielversprechender Forschung in einem fr\u00fcheren Stadium<\/h3><div class=\"timeline-item__card-desc\"><p>Die MDF startete ihr Pilotstipendienprogramm, um Forschern zu helfen, vielversprechende Ideen zu testen und die fr\u00fchen Beweise zu generieren, die f\u00fcr den Wettbewerb um gr\u00f6\u00dfere F\u00f6rderungen erforderlich sind. Neben Fellowships, Nachwuchspreisen und hochpriorit\u00e4ren Stipendien erweiterte das Programm das Forschungsportfolio der MDF, da die Stiftung in jenem Jahr 1,7 Millionen US-Dollar in Forschungsprogramme investierte. <\/p>\n<ul>\n<li style=\"list-style-type: none\">\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDF_Annual-Report_2024.pdf\">MDF-Jahresbericht 2024<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/myotonic-dystrophy-foundation-mdf-launches-new-funding-resource-researchers-pilot-grants-program\/\">MDF-Pilotstipendienprogramm<\/a><\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p>\u00a0<\/p><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1000\" height=\"667\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/grants-and-funding-img-3.jpg\" class=\"attachment-full size-full wp-image-8196\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/grants-and-funding-img-3.jpg 1000w, https:\/\/myotonic.org\/wp-content\/uploads\/grants-and-funding-img-3-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/grants-and-funding-img-3-768x512.jpg 768w\" sizes=\"(max-width: 1000px) 100vw, 1000px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-33 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1920\" height=\"2504\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDF_2025_Annual-Report-thumbnail.gif\" class=\"attachment-full size-full wp-image-26340\" alt=\"\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2025<br \/>Direkte Unterst\u00fctzung w\u00e4chst, da mehr Behandlungen klinische Studien erreichen<\/h3><div class=\"timeline-item__card-desc\"><p>Die MDF-Selbsthilfegruppen begr\u00fc\u00dften 2.394 Teilnehmer, die professionell besetzte Warmline bot mehr als 800 Einzelberatungen an, und Gemeinschaftsressourcen wurden mehr als 100.000 Mal heruntergeladen. Die MDF investierte zudem mehr als 1,5 Millionen US-Dollar in die Forschung, w\u00e4hrend 11 potenzielle Behandlungen klinische Studien durchliefen, was die wachsende Kapazit\u00e4t zeigt, das Leben mit myotoner Dystrophie heute zu unterst\u00fctzen und gleichzeitig k\u00fcnftige Behandlungen zu verfolgen. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/support\/request-warmline-support\/\">Warmline-Unterst\u00fctzung anfordern<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/support\/support-groups\/\">MDF-Selbsthilfegruppen<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/resources\/drug-development-pipeline\/\">MDF-Pipeline f\u00fcr die Arzneimittelentwicklung<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDF_2025_Annual-Report.pdf\">MDF-Jahresbericht 2025<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/over-700-people-attend-2025-mdf-conference\/\">MDF-Konferenz 2025<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1920\" height=\"2504\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDF_2025_Annual-Report-thumbnail.gif\" class=\"attachment-full size-full wp-image-26340\" alt=\"\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-34 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/mdf_montreal-21-scaled.jpg\" class=\"attachment-full size-full wp-image-27313\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/mdf_montreal-21-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/mdf_montreal-21-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/mdf_montreal-21-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/mdf_montreal-21-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/mdf_montreal-21-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/mdf_montreal-21-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2026<br \/>Lokale Bildung und globale Forschungszusammenarbeit<\/h3><div class=\"timeline-item__card-desc\"><p>Vier Regionalkonferenzen gipfelten in Montr\u00e9al, Kanada, unmittelbar nach der IDMC-15, wo die MDF und Muscular Dystrophy Canada zusammenarbeiteten, um den internationalen wissenschaftlichen Austausch mit praktischer Gemeinschaftsbildung \u00fcber Grenzen hinweg zu erleichtern. Die MDF genehmigte au\u00dferdem mehr als 1.000.000 US-Dollar f\u00fcr sieben Fellowships, zwei Nachwuchspreise und ein hochpriorit\u00e4res Projekt, um sowohl neue Forschung als auch die Menschen, die sie vorantreiben, zu unterst\u00fctzen. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/events\/2026-regional-conference\/\">MDF Regionalkonferenzen 2026<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/2026-mdf-and-mdc-regional-conference-in-montreal-canada\/\">Konferenz in Montr\u00e9al 2026<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/idmc-15-international-myotonic-dystrophy-consortium\/\">IDMC-15<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/mdf-invests-myotonic-dystrophy-research-and-emerging-scientists\/\">Forschungsinvestitionen 2026<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/mdf_montreal-21-scaled.jpg\" class=\"attachment-full size-full wp-image-27313\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/mdf_montreal-21-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/mdf_montreal-21-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/mdf_montreal-21-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/mdf_montreal-21-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/mdf_montreal-21-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/mdf_montreal-21-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-35 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"981\" height=\"747\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-website-2026.png\" class=\"attachment-full size-full wp-image-27314\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-website-2026.png 981w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-website-2026-300x228.png 300w\" sizes=\"(max-width: 981px) 100vw, 981px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2026<br \/>Vertrauensw\u00fcrdige Informationen leichter auffindbar und nutzbar machen<\/h3><div class=\"timeline-item__card-desc\"><p>Geleitet von dem Feedback der Gemeinschaft \u00fcberarbeitete die MDF im Jahr 2026 myotonic.org, um vertrauensw\u00fcrdige Informationen, Programme und Ressourcen leichter auffindbar und nutzbar zu machen. Klarere Wege helfen nun Menschen mit myotoner Dystrophie, neu diagnostizierten Familien, Pflegekr\u00e4ften, medizinischem Fachpersonal, Forschern und Unterst\u00fctzern, die f\u00fcr sie relevantesten Informationen und Hilfsangebote zu finden. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/support\/\">Unterst\u00fctzung finden<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/resources\/\">MDF-Ressourcen<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/digital-academy\/\">MDF Digital Academy<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"981\" height=\"747\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-website-2026.png\" class=\"attachment-full size-full wp-image-27314\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-website-2026.png 981w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-website-2026-300x228.png 300w\" sizes=\"(max-width: 981px) 100vw, 981px\" \/><\/div><\/div><\/div><\/div><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-bf862ee e-flex e-con-boxed e-con e-parent\" data-id=\"bf862ee\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-403140d e-con-full e-flex e-con e-child\" data-id=\"403140d\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-07650ec elementor-widget-tablet__width-initial elementor-widget elementor-widget-image\" data-id=\"07650ec\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/mr66givry2-staging.onrocket.site\/wp-content\/uploads\/Spanish-Speaker-Group.jpg\" title=\"\" alt=\"\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-5b17199 e-con-full e-flex e-con e-child\" data-id=\"5b17199\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-b72c401 elementor-widget__width-initial elementor-widget elementor-widget-heading\" data-id=\"b72c401\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Unsere Geschichte geht weiter<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6add548 elementor-widget-tablet__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"6add548\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>In fast zwei Jahrzehnten hat die MDF die Beziehungen, das Wissen, die Infrastruktur und die \u00f6ffentliche Unterst\u00fctzung aufgebaut und gepflegt, die f\u00fcr Fortschritte bei einer seltenen Krankheit erforderlich sind. Was konstant geblieben ist, ist unsere Verantwortung gegen\u00fcber den von myotoner Dystrophie betroffenen Menschen und Familien sowie gegen\u00fcber den Spendern, Freiwilligen, Forschern, Klinikern und Partnern, die diese Arbeit erm\u00f6glichen. <\/p><p>Jede Phase hat die Erwartungen der Gemeinschaft f\u00fcr myotoner Dystrophie erweitert: vertrauensw\u00fcrdige Unterst\u00fctzung und sicherere Versorgung heute, eine st\u00e4rkere Stimme bei den Entscheidungen, die Forschung und Politik pr\u00e4gen, und ein besser vorbereiteter Weg zu Behandlungen und einer Heilung. Die MDF setzt diese Arbeit mit einer zunehmend vernetzten globalen Gemeinschaft und einem wachsenden Feld der Forschung und Arzneimittelentwicklung fort. <\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-8d67767 e-con-full e-flex e-con e-child\" data-id=\"8d67767\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-e2806dc elementor-widget elementor-widget-button\" data-id=\"e2806dc\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/myotonic.org\/de\/unsere-wirkung\/\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Erfahren Sie mehr \u00fcber unsere Wirkung<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-d104401 elementor-widget elementor-widget-button\" data-id=\"d104401\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/myotonic.org\/de\/mitmachen\/\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Engagieren Sie sich bei der MDF<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-33802a73 e-con-full e-flex e-con e-parent\" data-id=\"33802a73\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-11b2f721 elementor-widget elementor-widget-template\" data-id=\"11b2f721\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"template.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-template\">\n\t\t\t\t\t<div data-elementor-type=\"container\" data-elementor-id=\"21923\" class=\"elementor elementor-21923 elementor-9327 elementor-9327\" data-elementor-post-type=\"elementor_library\">\n\t\t\t\t<div class=\"elementor-element elementor-element-4da26a03 e-flex e-con-boxed e-con e-parent\" data-id=\"4da26a03\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-7c7106fb elementor-widget elementor-widget-heading\" data-id=\"7c7106fb\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Helfen Sie uns, etwas zu bewirken<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-1761fd93 e-con-full e-flex e-con e-child\" data-id=\"1761fd93\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t<a class=\"elementor-element elementor-element-2ecd0645 e-con-full e-flex e-con e-child\" data-id=\"2ecd0645\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;jet_parallax_layout_list&quot;:[]}\" href=\"https:\/\/myotonic.org\/get-involved\/advocate\/\">\n\t\t<div class=\"elementor-element elementor-element-52a30c89 e-con-full e-flex e-con e-child\" data-id=\"52a30c89\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-5360b2a6 elementor-widget elementor-widget-heading\" data-id=\"5360b2a6\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Sich einsetzen<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-34f989c4 elementor-widget elementor-widget-heading\" data-id=\"34f989c4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\">Helfen Sie, politische Ver\u00e4nderungen voranzutreiben und den Fortschritt f\u00fcr Menschen, die mit DM leben, zu beschleunigen.<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-29d67350 elementor-widget elementor-widget-image\" data-id=\"29d67350\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"534\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/advocate-img-1024x683.jpg\" class=\"attachment-large size-large wp-image-21012\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/advocate-img-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/advocate-img-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/advocate-img-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/advocate-img.jpg 1300w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/a>\n\t\t<a class=\"elementor-element elementor-element-2486fb71 e-con-full e-flex e-con e-child\" data-id=\"2486fb71\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;jet_parallax_layout_list&quot;:[]}\" href=\"https:\/\/myotonic.org\/get-involved\/fundraise\/\">\n\t\t<div class=\"elementor-element elementor-element-396ded59 e-con-full e-flex e-con e-child\" data-id=\"396ded59\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-290f4cc elementor-widget elementor-widget-heading\" data-id=\"290f4cc\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Spenden sammeln<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6f7d9f2e elementor-widget elementor-widget-heading\" data-id=\"6f7d9f2e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\">Mobilisieren Sie Ihre Community, um wichtige Ressourcen und lebensver\u00e4ndernde Forschung zu unterst\u00fctzen.<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-61b60249 elementor-widget elementor-widget-image\" data-id=\"61b60249\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"534\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/fundraise-img-1024x683.jpg\" class=\"attachment-large size-large wp-image-21013\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/fundraise-img-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/fundraise-img-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/fundraise-img-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/fundraise-img.jpg 1300w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/a>\n\t\t<a class=\"elementor-element elementor-element-4e985d8c e-con-full e-flex e-con e-child\" data-id=\"4e985d8c\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;jet_parallax_layout_list&quot;:[]}\" href=\"https:\/\/myotonic.org\/get-involved\/volunteer\/\">\n\t\t<div class=\"elementor-element elementor-element-53a424cc e-con-full e-flex e-con e-child\" data-id=\"53a424cc\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-43553be6 elementor-widget elementor-widget-heading\" data-id=\"43553be6\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Freiwillig engagieren<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-7d78d57c elementor-widget elementor-widget-heading\" data-id=\"7d78d57c\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\">Werden Sie Teil unseres Teams von Freiwilligen, die der Gemeinschaft Verbindung und Unterst\u00fctzung bringen.<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5187d97a elementor-widget elementor-widget-image\" data-id=\"5187d97a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"534\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/volenteer-img-1024x683.jpg\" class=\"attachment-large size-large wp-image-21014\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/volenteer-img-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/volenteer-img-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/volenteer-img-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/volenteer-img.jpg 1300w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Geschichte der Stiftung St\u00e4rkung der DM-Gemeinschaft durch Unterst\u00fctzung, Pflege, Interessenvertretung und Forschung, die uns Behandlungen und einer Heilung n\u00e4her bringt. Scrollen Sie, um mehr zu erfahren Gemeinschaft, Pflege und Heilung Die Myotonic Dystrophy Foundation (MDF) wurde 2007 in Kalifornien als gemeinn\u00fctzige Organisation nach 501(c)(3) gegr\u00fcndet. Von Anfang an hat die MDF an der Seite von [&hellip;]<\/p>\n","protected":false},"author":7,"featured_media":0,"parent":0,"menu_order":21,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-27331","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/myotonic.org\/de\/wp-json\/wp\/v2\/pages\/27331","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/myotonic.org\/de\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/myotonic.org\/de\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/myotonic.org\/de\/wp-json\/wp\/v2\/users\/7"}],"replies":[{"embeddable":true,"href":"https:\/\/myotonic.org\/de\/wp-json\/wp\/v2\/comments?post=27331"}],"version-history":[{"count":0,"href":"https:\/\/myotonic.org\/de\/wp-json\/wp\/v2\/pages\/27331\/revisions"}],"wp:attachment":[{"href":"https:\/\/myotonic.org\/de\/wp-json\/wp\/v2\/media?parent=27331"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}