{"id":12332,"date":"2025-01-22T13:00:29","date_gmt":"2025-01-22T21:00:29","guid":{"rendered":"https:\/\/mr66givry2.onrocket.site\/?p=12332"},"modified":"2025-12-30T13:01:26","modified_gmt":"2025-12-30T21:01:26","slug":"join-fight-dm-research-funding-become-mdf-state-advocacy-captain","status":"publish","type":"post","link":"https:\/\/myotonic.org\/de\/join-fight-dm-research-funding-become-mdf-state-advocacy-captain\/","title":{"rendered":"Join the Fight for DM Research Funding: Become an MDF State Advocacy Captain"},"content":{"rendered":"
\n

Do You Think US Congress Should Support More DM Research Funding?<\/strong><\/h2>\n<\/div>\n
\n
\n

Join the Myotonic Dystrophy Foundation (MDF) for a\u00a0webinar on February 11th at 4pm Pacific<\/strong><\/a>\u00a0<\/strong>to learn how you can help increase research funding for myotonic dystrophy (DM) and become a\u00a0US State Advocacy Captain<\/strong>.<\/p>\n

For the past seven years, with the support of MDF advocates like you, the US Congress has made DM eligible for research funding through the\u00a0Peer-Reviewed Medical Research Program (PRMRP)<\/strong><\/a>. This has led to over\u00a0$24 million<\/strong><\/a>\u00a0in new funding, bringing us closer to the first FDA-approved treatments for DM. But we need your help to push for an additional\u00a0$10 million<\/strong><\/a>\u00a0in dedicated DM research funding.<\/p>\n

This February, during\u00a0Rare Disease Month<\/strong><\/a>, join us to learn how you can make a real difference by becoming a US State Advocacy Captain. Congress needs to hear from more people about the challenges of living with DM and the urgent need for more research funding.<\/p>\n

What Does a US State Advocacy Captain Do?<\/strong><\/h2>\n

As a\u00a0US State Advocacy Captain<\/strong>, you\u2019ll be part of a nationwide network of MDF volunteers who lead advocacy efforts in their states. You\u2019ll:<\/p>\n