{"id":25248,"date":"2026-04-10T11:56:36","date_gmt":"2026-04-10T18:56:36","guid":{"rendered":"https:\/\/myotonic.org\/?post_type=events&#038;p=25248"},"modified":"2026-04-10T12:54:57","modified_gmt":"2026-04-10T19:54:57","slug":"movement-mondays-myotonic-dystrophy-in-motion-awareness-month","status":"publish","type":"events","link":"https:\/\/myotonic.org\/es\/events\/movement-mondays-myotonic-dystrophy-in-motion-awareness-month\/","title":{"rendered":"Movement Mondays &#8211; Myotonic Dystrophy In Motion Awareness Month"},"content":{"rendered":"<p><img decoding=\"async\" class=\"wp-image-17937 alignright\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/dm-in-motion-logo-300x236.png\" alt=\"\" width=\"194\" height=\"153\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/dm-in-motion-logo-300x236.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/dm-in-motion-logo-768x605.png 768w, https:\/\/myotonic.org\/wp-content\/uploads\/dm-in-motion-logo.png 926w\" sizes=\"(max-width: 194px) 100vw, 194px\" \/><\/p>\n<p>This July, the\u00a0<a href=\"https:\/\/www.myotonic.org\/\">Myotonic Dystrophy Foundation (MDF)<\/a> is hosting the <strong>Myotonic Dystrophy\u00a0<\/strong><em><strong>In Motion\u00a0<\/strong><\/em><strong>Awareness Month 2026<\/strong>!<\/p>\n<p><em><strong>Special thanks to the MDF Movement Committee for helping design this inspiring program.<\/strong><\/em><\/p>\n<p><strong>What is Myotonic Dystrophy In Motion?<\/strong>\u00a0What started as an idea for MDF activewear has evolved into an initiative to unify, inspire, and encourage the international DM community to start moving!\u00a0<a href=\"https:\/\/myotonic.org\/events\/myotonic-dystrophy-in-motion\/\">Click here to learn more about Myotonic Dystrophy In Motion!\u00a0&gt;&gt;&gt;<\/a><\/p>\n<h2><strong>Check Out Our Weekly Movement Mondays<\/strong><\/h2>\n<p>Each Monday in July 2026 will feature a movement expert exploring one of the\u00a0<strong>Pillars of Movement<\/strong>\u00a0from MDF\u2019s\u00a0<a href=\"https:\/\/www.myotonic.org\/sites\/default\/files\/pages\/files\/MDF_Exercise-Guide-for-the-Community_1_21.pdf\"><em>Exercise Guide for People Living with DM<\/em><\/a>. These sessions are designed to be accessible and adaptable\u2014whether you\u2019re just getting started or looking to enhance your regular routine.\u00a0<a href=\"https:\/\/events.zoom.us\/ev\/At0NYT4HA1hkR4qwOHucEII53TXi49ry5gOlB5h5ZUMBKwbwLS14~ApfFw8y8ne69Vj_qtD1BsIksEVb2zNFLXbiYTN9CVCH_brnfIOYjni0XaA?lmt=1775153884000\" target=\"_blank\" rel=\"noopener\">Register once to attend and get early access to recordings! &gt;&gt;&gt;\u00a0<\/a><\/p>\n<p>Join these\u00a0<strong>30-minute sessions<\/strong>\u00a0on\u00a0<strong>Mondays at 4:00-4:30pm Pacific<\/strong>:<\/p>\n<ul>\n<li><strong>July 6: Balance<\/strong><br \/>\nLed by Michael Cornea, DPT, Living with DM1<\/li>\n<li><strong>July 13: Aerobic and Cardio<\/strong><br \/>\nLed by Laura Girard-C\u00f4t\u00e9, pht, M.Sc, Doctoral Candidate, Universite of Quebec at Chicoutimi<\/li>\n<li><strong>July 20: Flexibility<\/strong><br \/>\nLed by Kristina Kelly, DPT, MS, EdM, NCS, CPT, PES<\/li>\n<li><strong>July 27: Resistance and Strengthening<\/strong><br \/>\nLed by Donovan Lott, PT, PhD, Research Professor at the University of Florida, Gainesville<\/li>\n<\/ul>\n<h2><strong>Moving and Meeting Happy Hours<\/strong><\/h2>\n<p>After each Movement Monday session\u00a0<strong>at 4:30-5:00pm Pacific<\/strong>, participants can stick around for a\u00a0<strong>virtual community gathering<\/strong>. These casual \u201chappy hour\u201d style conversations are led by MDF staff and support group facilitators. Attendees had a chance to reflect on what they had learned, shared their experiences, and connected with others who are incorporating movement into their daily routines.<\/p>\n<p>Register by June 1st for your chance to win an Myotonic Dystrophy In Motion water bottle! These bottles can help keep you hydrated during awareness month and all year long.\u00a0<a href=\"https:\/\/events.zoom.us\/ev\/At0NYT4HA1hkR4qwOHucEII53TXi49ry5gOlB5h5ZUMBKwbwLS14~ApfFw8y8ne69Vj_qtD1BsIksEVb2zNFLXbiYTN9CVCH_brnfIOYjni0XaA?lmt=1775153884000\" target=\"_blank\" rel=\"noopener\">Register once to attend and get early access to recordings! &gt;&gt;&gt;<\/a><\/p>\n<h2><strong>Bonus Session: Ask the Expert on DM &amp; Exercise<\/strong><\/h2>\n<p>There will be an Ask the Expert on DM and Exercise in July. Registration will be separate from the In Motion series.\u00a0<em>Registration will be available for this event in May!<\/em><\/p>\n<h2>Purchase the 2026 Limited Edition In Motion Shirt!<\/h2>\n<p><a href=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDIM-Shirt.png\"><img fetchpriority=\"high\" decoding=\"async\" class=\"aligncenter\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDIM-Shirt.png\" alt=\"\" width=\"304\" height=\"304\" \/><\/a><\/p>\n<p><strong>Only available from now until the end of July<\/strong> &#8211; don&#8217;t miss out on this limited edition design! Show support for In Motion month, raise awareness, and get moving in style! <a href=\"https:\/\/www.bonfire.com\/limited-edition-in-motion-awareness-2026\/\" target=\"_blank\" rel=\"noopener\">Click here to order the 2026 Limited Edition In Motion Shirt! &gt;&gt;&gt;<\/a><\/p>\n<p><strong>Looking for athletic gear? <\/strong><a href=\"https:\/\/teamstore.agile-sportswear.com\/store\/myotonic-dystrophy-foundation\/\" target=\"_blank\" rel=\"noopener\">Click here to purchase In Motion sportswear! &gt;&gt;&gt;<\/a><\/p>\n<h2><strong>Make Your Movement Matter: Fundraise for a MDF<\/strong><\/h2>\n<p>This July, turn your movement into momentum for change by fundraising during\u00a0<strong>Myotonic Dystrophy In Motion Awareness Month<\/strong>. Whether you&#8217;re working toward physical therapy goals, participating in an endurance event, or hosting a community class, your movement can help drive MDF\u2019s mission of\u00a0<strong>community, care, and a cure<\/strong>.<\/p>\n<p>MDF\u2019s\u00a0<a href=\"https:\/\/www.myotonic.org\/sites\/default\/files\/2025-02\/MDF_DIY-Fundraising-Toolkit.pdf\"><strong>DIY Fundraising Toolkit<\/strong><\/a>\u00a0makes it easy to get started. Create a custom donation page using our\u00a0<a href=\"https:\/\/give.myotonic.org\/campaign\/fundraise-for-mdf\/\"><strong>Classy platform<\/strong><\/a>, share your story, and invite friends and family to support your journey. From personal challenges to team events, every step, stretch, or roll can raise awareness and support for the DM community.<\/p>\n<div class=\"container text-center pull-right col-xs-12 col-sm-12 col-md-6 col-lg-4 screen-placer\">\n<p><img decoding=\"async\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/1_DIY-Fundraiser.png\" alt=\"Luke and Jodie Bolt wearing MDIM jerseys.\" width=\"1440\" height=\"1080\" \/>\u00a0<em>Luke and Jodie Bolt.<\/em><\/p>\n<\/div>\n<p><strong>Need ideas or support?\u00a0<\/strong>The MDF team is here to help you brainstorm, plan, and promote your fundraiser every step of the way. Email MDF at\u00a0<a href=\"mailto:development@myotonic.org\">development@myotonic.org<\/a>\u00a0or call 415-800-7777.<\/p>\n<h2 class=\"text-align-justify\"><strong>Thank You to Our <em>In Motion<\/em> Sponsors<\/strong><\/h2>\n<div class=\"col-xs-12 col-sm-6 col-md-6 col-lg-4 pull-right screen-placer\">\n<div class=\"fundraiser-section\">\n<p><a href=\"https:\/\/www.aviditybiosciences.com\/\" target=\"_blank\" rel=\"noopener\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/21_IDD-Avidity.png\" width=\"380\" height=\"214\" \/><\/a><br \/>\n<a href=\"https:\/\/www.pepgen.com\/\" target=\"_blank\" rel=\"noopener\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/17_IDD-PepGen.png\" width=\"380\" height=\"214\" \/><\/a><\/p>\n<p class=\"rtecenter\"><strong>Thank you to our sponsors,\u00a0<a href=\"https:\/\/www.aviditybiosciences.com\/\" target=\"_blank\" rel=\"noopener\">Avidity Biosciences<\/a> and <a href=\"https:\/\/www.pepgen.com\/\" target=\"_blank\" rel=\"noopener\">PepGen<\/a>,\u00a0for making this event possible!<\/strong><\/p>\n<\/div>\n<\/div>\n<h2 class=\"text-align-justify\"><strong>Downloadable Resources<\/strong><\/h2>\n<p class=\"text-align-justify\"><a href=\"https:\/\/www.myotonic.org\/sites\/default\/files\/2024-07\/MDF_Exercising-with-Myotonic-Dystrophy_Infographic.pdf\">Exercising with Myotonic Dystrophy Infographic:<\/a>\u00a0<em>Designed for People Living with DM.\u00a0<\/em>Exercise may help optimize function and maintain strength in people living with myotonic dystrophy. This one page summary sheet outlines ideas for finding motivation, monitoring your exercise, and adding movement to your daily life.<\/p>\n<p class=\"text-align-justify\"><a href=\"https:\/\/www.myotonic.org\/sites\/default\/files\/pages\/files\/MDF_Exercise-Guide-for-the-Community_1_21.pdf\" target=\"_blank\" rel=\"noopener\">Exercise Guide for Individuals with Myotonic Dystrophy:<\/a>\u00a0<em>Designed for People Living with DM.<\/em>\u00a0This guide is written by two physical therapists who specialize in working with individuals with DM, and includes information on the benefits of exercise for DM, recommendations on aerobic activity, types of exercise, monitoring exercise, exercise strategies and finding motivation.<\/p>\n<p class=\"text-align-justify\"><a href=\"https:\/\/www.myotonic.org\/sites\/default\/files\/pages\/files\/MDF_Nutrition-Guide-for-the-Community_1_21.pdf\" target=\"_blank\" rel=\"noopener\">Nutrition Guide for Individuals with Myotonic Dystrophy:<\/a>\u00a0<em>Designed for People Living with DM.<\/em>\u00a0This guide is written and reviewed by nutritionists who specialize in working with individuals with DM, and includes information on diet and DM, managing constipation, being overweight\/underweight with DM, managing swallowing problems, feeding tubes, supplements, and sample meals.<\/p>\n<p class=\"text-align-justify\"><a href=\"https:\/\/www.myotonic.org\/sites\/default\/files\/pages\/files\/MDF_RoleofPhysicalTherapy_1_21.pdf\" target=\"_blank\" rel=\"noopener\">Role of Physical Therapy in the Assessment and Management of Individuals with Myotonic Dystrophy:<\/a>\u00a0<em>Designed for Physical Therapists.<\/em>\u00a0Most individuals living with myotonic dystrophy (DM) will probably first encounter a physical therapist in the multidisciplinary clinic where they receive care. These physical therapy guidelines for DM address the role that the physical therapist plays in DM care, including evaluation, education, instructions and physical movement recommendations.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>This July, the\u00a0Myotonic Dystrophy Foundation (MDF) is hosting the Myotonic Dystrophy\u00a0In Motion\u00a0Awareness Month 2026! Special thanks to the MDF Movement Committee for helping design this inspiring program. What is Myotonic Dystrophy In Motion?\u00a0What started as an idea for MDF activewear has evolved into an initiative to unify, inspire, and encourage the international DM community to [&hellip;]<\/p>\n","protected":false},"featured_media":17937,"parent":0,"template":"","class_list":["post-25248","events","type-events","status-publish","has-post-thumbnail","hentry"],"_links":{"self":[{"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/events\/25248","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/events"}],"about":[{"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/types\/events"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/media\/17937"}],"wp:attachment":[{"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/media?parent=25248"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}