{"id":21089,"date":"2025-12-16T15:52:50","date_gmt":"2025-12-16T23:52:50","guid":{"rendered":"https:\/\/mr66givry2.onrocket.site\/registro-familiar\/"},"modified":"2026-03-25T11:22:55","modified_gmt":"2026-03-25T18:22:55","slug":"registro-familiar","status":"publish","type":"page","link":"https:\/\/myotonic.org\/es\/involucrate\/registro-familiar\/","title":{"rendered":"Registro Familiar"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"21089\" class=\"elementor elementor-21089 elementor-9738\" data-elementor-post-type=\"page\">\n\t\t\t\t<div class=\"elementor-element elementor-element-294dad1 e-flex e-con-boxed e-con e-parent\" data-id=\"294dad1\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-a32dd8f e-con-full e-flex e-con e-child\" data-id=\"a32dd8f\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-8e68f60 elementor-align-left elementor-mobile-align-center elementor-widget elementor-widget-breadcrumbs\" data-id=\"8e68f60\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"breadcrumbs.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<nav><\/nav>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-ba529f2 elementor-widget-laptop__width-initial elementor-widget__width-initial elementor-widget elementor-widget-heading\" data-id=\"ba529f2\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">\u00danase al registro familiar de la distrofia miot\u00f3nica<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2e3d443 elementor-widget-laptop__width-initial elementor-widget elementor-widget-heading\" data-id=\"2e3d443\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\">Aumente la comprensi\u00f3n de la distrofia miot\u00f3nica (DM) y mejore la vida de quienes viven con DM uni\u00e9ndose al Registro Familiar de la Distrofia Miot\u00f3nica (MDFR).<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-de0d2b0 e-con-full e-flex e-con e-child\" data-id=\"de0d2b0\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-b648a04 elementor-widget elementor-widget-button\" data-id=\"b648a04\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/myotonicregistry.patientcrossroads.org\/component\/comprofiler\/registers.html\" target=\"_blank\" rel=\"noopener\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-external-link-alt\" viewBox=\"0 0 512 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M432,320H400a16,16,0,0,0-16,16V448H64V128H208a16,16,0,0,0,16-16V80a16,16,0,0,0-16-16H48A48,48,0,0,0,0,112V464a48,48,0,0,0,48,48H400a48,48,0,0,0,48-48V336A16,16,0,0,0,432,320ZM488,0h-128c-21.37,0-32.05,25.91-17,41l35.73,35.73L135,320.37a24,24,0,0,0,0,34L157.67,377a24,24,0,0,0,34,0L435.28,133.32,471,169c15,15,41,4.5,41-17V24A24,24,0,0,0,488,0Z\"><\/path><\/svg>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">\u00danete al registro familiar<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-53b3824 elementor-widget elementor-widget-button\" data-id=\"53b3824\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/myotonicregistry.patientcrossroads.org\/login.html\" target=\"_blank\" rel=\"noopener\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-external-link-alt\" viewBox=\"0 0 512 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M432,320H400a16,16,0,0,0-16,16V448H64V128H208a16,16,0,0,0,16-16V80a16,16,0,0,0-16-16H48A48,48,0,0,0,0,112V464a48,48,0,0,0,48,48H400a48,48,0,0,0,48-48V336A16,16,0,0,0,432,320ZM488,0h-128c-21.37,0-32.05,25.91-17,41l35.73,35.73L135,320.37a24,24,0,0,0,0,34L157.67,377a24,24,0,0,0,34,0L435.28,133.32,471,169c15,15,41,4.5,41-17V24A24,24,0,0,0,488,0Z\"><\/path><\/svg>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Inicie sesi\u00f3n en su cuenta<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-6eaa23e e-con-full e-flex e-con e-child\" data-id=\"6eaa23e\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-1664619 elementor-widget-tablet__width-initial elementor-widget elementor-widget-image\" data-id=\"1664619\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"800\" height=\"534\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-featured-1024x683.jpg\" class=\"attachment-large size-large wp-image-21094\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-featured-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-featured-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-featured-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-featured.jpg 1300w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-1ce8ae6 e-flex e-con-boxed e-con e-parent\" data-id=\"1ce8ae6\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-47fae5e e-con-full e-flex e-con e-child\" data-id=\"47fae5e\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-ae7931e elementor-widget-tablet__width-initial elementor-widget elementor-widget-image\" data-id=\"ae7931e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"800\" height=\"534\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-img-1024x683.jpg\" class=\"attachment-large size-large wp-image-21091\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-img-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-img-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-img-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-img.jpg 1300w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-cbe4a64 e-con-full e-flex e-con e-child\" data-id=\"cbe4a64\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-47ce344 elementor-widget elementor-widget-heading\" data-id=\"47ce344\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">\u00a1\u00danase al registro familiar!<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-8a19040 elementor-widget-tablet__width-initial elementor-widget elementor-widget-heading\" data-id=\"8a19040\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\">El Registro Familiar de la Distrofia Miot\u00f3nica es \u00fanico, ya que no solo ayuda a los investigadores a encontrar tratamientos nuevos y eficaces e identificar posibles participantes para pr\u00f3ximos ensayos cl\u00ednicos y estudios de investigaci\u00f3n, sino que tambi\u00e9n permite que cualquier persona registrada tenga acceso a los datos an\u00f3nimos, incluidos los individuos y las familias que viven con DM. El Registro proporciona a todas las partes interesadas en la DM, desde investigadores y socios farmac\u00e9uticos hasta familiares, una mejor comprensi\u00f3n de la enfermedad, la comunidad de DM y los esfuerzos actuales de investigaci\u00f3n y defensa. <\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-f44069b e-flex e-con-boxed e-con e-parent\" data-id=\"f44069b\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-9e8a8bb e-con-full e-flex e-con e-child\" data-id=\"9e8a8bb\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-89ab13c elementor-widget-laptop__width-initial elementor-widget elementor-widget-heading\" data-id=\"89ab13c\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Su participaci\u00f3n ayuda a los investigadores<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-7b4d48d elementor-widget-tablet__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"7b4d48d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Al unirse al Registro Familiar de la Distrofia Miot\u00f3nica, ayudar\u00e1 a investigadores, compa\u00f1\u00edas farmac\u00e9uticas y otros profesionales que buscan:<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-da39fc0 elementor-mobile-align-center elementor-icon-list--layout-traditional elementor-list-item-link-full_width elementor-widget elementor-widget-icon-list\" data-id=\"da39fc0\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon-list.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<ul class=\"elementor-icon-list-items\">\n\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">Identificar participantes para ensayos cl\u00ednicos y estudios de investigaci\u00f3n<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">Desarrollar tratamientos nuevos y eficaces para quienes viven con DM<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">Abogar en nombre de la comunidad de DM ante los responsables de la toma de decisiones en Washington, D.C. y otros lugares<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t<\/ul>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2083fad elementor-widget elementor-widget-button\" data-id=\"2083fad\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/myotonic.org\/wp-content\/uploads\/2025-05_MDFR-Research-Poster.pdf\" target=\"_blank\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-file-pdf\" viewBox=\"0 0 384 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M181.9 256.1c-5-16-4.9-46.9-2-46.9 8.4 0 7.6 36.9 2 46.9zm-1.7 47.2c-7.7 20.2-17.3 43.3-28.4 62.7 18.3-7 39-17.2 62.9-21.9-12.7-9.6-24.9-23.4-34.5-40.8zM86.1 428.1c0 .8 13.2-5.4 34.9-40.2-6.7 6.3-29.1 24.5-34.9 40.2zM248 160h136v328c0 13.3-10.7 24-24 24H24c-13.3 0-24-10.7-24-24V24C0 10.7 10.7 0 24 0h200v136c0 13.2 10.8 24 24 24zm-8 171.8c-20-12.2-33.3-29-42.7-53.8 4.5-18.5 11.6-46.6 6.2-64.2-4.7-29.4-42.4-26.5-47.8-6.8-5 18.3-.4 44.1 8.1 77-11.6 27.6-28.7 64.6-40.8 85.8-.1 0-.1.1-.2.1-27.1 13.9-73.6 44.5-54.5 68 5.6 6.9 16 10 21.5 10 17.9 0 35.7-18 61.1-61.8 25.8-8.5 54.1-19.1 79-23.2 21.7 11.8 47.1 19.5 64 19.5 29.2 0 31.2-32 19.7-43.4-13.9-13.6-54.3-9.7-73.6-7.2zM377 105L279 7c-4.5-4.5-10.6-7-17-7h-6v128h128v-6.1c0-6.3-2.5-12.4-7-16.9zm-74.1 255.3c4.1-2.7-2.5-11.9-42.8-9 37.1 15.8 42.8 9 42.8 9z\"><\/path><\/svg>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Vea su impacto<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-f526c80 e-con-full e-flex e-con e-child\" data-id=\"f526c80\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-acda584 elementor-widget-tablet__width-initial elementor-widget elementor-widget-image\" data-id=\"acda584\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"800\" height=\"534\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/researcher-family-registry-1024x683.jpg\" class=\"attachment-large size-large wp-image-21090\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/researcher-family-registry-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/researcher-family-registry-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/researcher-family-registry-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/researcher-family-registry.jpg 1300w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-44e6fad e-flex e-con-boxed e-con e-parent\" data-id=\"44e6fad\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-b1126d1 e-con-full e-flex e-con e-child\" data-id=\"b1126d1\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-4aaedcf elementor-widget-tablet__width-initial elementor-widget elementor-widget-image\" data-id=\"4aaedcf\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"534\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-2-1024x683.jpg\" class=\"attachment-large size-large wp-image-21092\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-2-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-2-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-2-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-2.jpg 1300w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-25f1cc1 e-con-full e-flex e-con e-child\" data-id=\"25f1cc1\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-203c8e8 elementor-widget-laptop__width-initial elementor-widget__width-initial elementor-widget elementor-widget-heading\" data-id=\"203c8e8\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Conozca m\u00e1s sobre la DM y su comunidad<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-bccdcd7 elementor-widget-tablet__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"bccdcd7\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Dado que tendr\u00e1 acceso a informaci\u00f3n no identificada en el Registro, podr\u00e1 conocer m\u00e1s sobre la DM, c\u00f3mo la experimentan otros miembros de la comunidad y c\u00f3mo es la comunidad en general. Esto incluye: <\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e1c4155 elementor-mobile-align-center elementor-icon-list--layout-traditional elementor-list-item-link-full_width elementor-widget elementor-widget-icon-list\" data-id=\"e1c4155\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon-list.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<ul class=\"elementor-icon-list-items\">\n\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">Informaci\u00f3n sobre ensayos cl\u00ednicos y estudios para los que usted o miembros de su familia puedan ser elegibles<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">D\u00f3nde se encuentran los participantes del Registro<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">Qu\u00e9 s\u00edntomas son m\u00e1s y menos prevalentes<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">C\u00f3mo la DM ha afectado a otras familias que viven con esta enfermedad<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t<\/ul>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-ce1bbfe e-flex e-con-boxed e-con e-parent\" data-id=\"ce1bbfe\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-292c4a4 e-con-full e-flex e-con e-child\" data-id=\"292c4a4\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-c6bc9b0 elementor-widget-laptop__width-initial elementor-widget-tablet__width-initial elementor-widget__width-initial elementor-widget elementor-widget-heading\" data-id=\"c6bc9b0\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Es completamente an\u00f3nimo<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-68813b0 elementor-widget-tablet__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"68813b0\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Su participaci\u00f3n es voluntaria y su informaci\u00f3n individual se mantendr\u00e1 completamente confidencial. Puede darse de baja del Registro en cualquier momento y todos los datos que proporcione ser\u00e1n completamente no identificados (an\u00f3nimos). Esto significa que si es potencialmente elegible para un ensayo cl\u00ednico o estudio de investigaci\u00f3n seg\u00fan sus datos del Registro, los investigadores se pondr\u00e1n en contacto con nosotros primero. Nosotros haremos un seguimiento con usted y, si desea obtener m\u00e1s informaci\u00f3n, le pondremos en contacto con la organizaci\u00f3n de investigaci\u00f3n interesada. Nunca ser\u00e1 contactado por nadie que no sea el personal del Registro.    <\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-63a71c7 e-con-full e-flex e-con e-child\" data-id=\"63a71c7\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-6ff9f58 elementor-widget-tablet__width-initial elementor-widget elementor-widget-image\" data-id=\"6ff9f58\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"534\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/anonmous-family-registry-concept-1-1024x683.jpg\" class=\"attachment-large size-large wp-image-21093\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/anonmous-family-registry-concept-1-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/anonmous-family-registry-concept-1-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/anonmous-family-registry-concept-1-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/anonmous-family-registry-concept-1.jpg 1300w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-0a25e2c e-flex e-con-boxed e-con e-parent\" data-id=\"0a25e2c\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-d774659 e-con-full e-flex e-con e-child\" data-id=\"d774659\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-058665c e-con-full e-flex e-con e-child\" data-id=\"058665c\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-37ae55a elementor-widget-laptop__width-initial elementor-widget__width-initial elementor-widget elementor-widget-heading\" data-id=\"37ae55a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Comparta la noticia<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-16bac56 elementor-widget elementor-widget-button\" data-id=\"16bac56\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/myotonicregistry.patientcrossroads.org\/component\/comprofiler\/registers.html\" target=\"_blank\" rel=\"noopener\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-external-link-alt\" viewBox=\"0 0 512 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M432,320H400a16,16,0,0,0-16,16V448H64V128H208a16,16,0,0,0,16-16V80a16,16,0,0,0-16-16H48A48,48,0,0,0,0,112V464a48,48,0,0,0,48,48H400a48,48,0,0,0,48-48V336A16,16,0,0,0,432,320ZM488,0h-128c-21.37,0-32.05,25.91-17,41l35.73,35.73L135,320.37a24,24,0,0,0,0,34L157.67,377a24,24,0,0,0,34,0L435.28,133.32,471,169c15,15,41,4.5,41-17V24A24,24,0,0,0,488,0Z\"><\/path><\/svg>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">\u00danete al registro familiar<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5ee0cd7 elementor-widget-laptop__width-initial elementor-widget__width-initial elementor-widget elementor-widget-heading\" data-id=\"5ee0cd7\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\">Cuantos m\u00e1s participantes y datos tengamos en el Registro, mayor ser\u00e1 su impacto, y el tama\u00f1o es de importancia cr\u00edtica para ayudar a respaldar el reclutamiento de ensayos cl\u00ednicos y estudios de investigaci\u00f3n. Por favor, comparta nuestras noticias con otros miembros de la comunidad de DM y ay\u00fadenos a seguir construyendo una base de datos amplia y rica que ayudar\u00e1 a acelerar los esfuerzos para tratar y curar las caracter\u00edsticas de esta enfermedad. <\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>\u00danase al registro familiar de la distrofia miot\u00f3nica Aumente la comprensi\u00f3n de la distrofia miot\u00f3nica (DM) y mejore la vida de quienes viven con DM uni\u00e9ndose al Registro Familiar de la Distrofia Miot\u00f3nica (MDFR). \u00danete al registro familiar Inicie sesi\u00f3n en su cuenta \u00a1\u00danase al registro familiar! El Registro Familiar de la Distrofia Miot\u00f3nica es [&hellip;]<\/p>\n","protected":false},"author":7,"featured_media":0,"parent":21835,"menu_order":47,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-21089","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/pages\/21089","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/users\/7"}],"replies":[{"embeddable":true,"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/comments?post=21089"}],"version-history":[{"count":0,"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/pages\/21089\/revisions"}],"up":[{"embeddable":true,"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/pages\/21835"}],"wp:attachment":[{"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/media?parent=21089"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}