{"id":27343,"date":"2025-12-11T14:31:58","date_gmt":"2025-12-11T22:31:58","guid":{"rendered":"https:\/\/myotonic.org\/nuestra-historia\/"},"modified":"2026-08-27T17:07:10","modified_gmt":"2026-08-28T00:07:10","slug":"nuestra-historia","status":"publish","type":"page","link":"https:\/\/myotonic.org\/es\/nuestra-historia\/","title":{"rendered":"Nuestra historia"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"27343\" class=\"elementor elementor-27343 elementor-9318\" data-elementor-post-type=\"page\">\n\t\t\t\t<div class=\"elementor-element elementor-element-221d7d6 e-flex e-con-boxed e-con e-parent\" data-id=\"221d7d6\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-28fbb0fc e-con-full e-flex e-con e-child\" data-id=\"28fbb0fc\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-2527bd22 elementor-align-left elementor-widget elementor-widget-breadcrumbs\" data-id=\"2527bd22\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"breadcrumbs.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<nav><\/nav>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-18986977 elementor-widget__width-initial elementor-widget elementor-widget-heading\" data-id=\"18986977\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">Historia de la fundaci\u00f3n<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-19ac7b07 elementor-widget-laptop__width-initial elementor-widget__width-initial elementor-widget elementor-widget-heading\" data-id=\"19ac7b07\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\">Fortalecer la comunidad de la DM mediante el apoyo, la atenci\u00f3n, la defensa y la investigaci\u00f3n, acerc\u00e1ndonos a tratamientos y a una cura.<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-1521ecbd e-con-full e-flex e-con e-child\" data-id=\"1521ecbd\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-5887f290 elementor-widget elementor-widget-button\" data-id=\"5887f290\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"#learn-more\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Despl\u00e1zate hacia abajo para obtener m\u00e1s informaci\u00f3n.<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-59e2c2ab e-con-full e-flex e-con e-child\" data-id=\"59e2c2ab\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-74642d3 elementor-widget-tablet__width-initial elementor-widget elementor-widget-image\" data-id=\"74642d3\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"800\" height=\"534\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/history-featured-1-1024x683.jpg\" class=\"attachment-large size-large wp-image-27350\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/history-featured-1-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/history-featured-1-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/history-featured-1-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/history-featured-1.jpg 1300w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-59c61203 e-flex e-con-boxed e-con e-parent\" data-id=\"59c61203\" data-element_type=\"container\" data-e-type=\"container\" id=\"learn-more\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-613a1344 e-con-full e-flex e-con e-child\" data-id=\"613a1344\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-c6694a9 elementor-widget-tablet__width-initial elementor-widget elementor-widget-image\" data-id=\"c6694a9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/mr66givry2-staging.onrocket.site\/wp-content\/uploads\/community-and-cure-img.jpg\" title=\"\" alt=\"\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-66d793c8 e-con-full e-flex e-con e-child\" data-id=\"66d793c8\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-773f9388 elementor-widget__width-initial elementor-widget elementor-widget-heading\" data-id=\"773f9388\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Comunidad, Cuidado y una Cura<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-1622aadc elementor-widget-tablet__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"1622aadc\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>La Myotonic Dystrophy Foundation (MDF) se fund\u00f3 en California en 2007 como organizaci\u00f3n sin \u00e1nimo de lucro 501(c)(3). Desde el principio, MDF ha trabajado junto a personas que viven con distrofia miot\u00f3nica (DM), sus familias, cuidadores, m\u00e9dicos, investigadores y defensores para construir una comunidad m\u00e1s fuerte y conectada y mejorar el futuro de la DM. <\/p><p>Hoy, MDF es la organizaci\u00f3n de defensa de pacientes centrada en distrofia miot\u00f3nica m\u00e1s grande del mundo, sirviendo a miles de personas y familias en m\u00e1s de 139 pa\u00edses. Junto con nuestra comunidad y partidarios, MDF ha recaudado e invertido m\u00e1s de 39 millones de d\u00f3lares para mejorar la atenci\u00f3n, avanzar en la investigaci\u00f3n y apoyar el desarrollo de nuevos tratamientos para la DM. <\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-7fa8f44b e-con-full e-flex e-con e-child\" data-id=\"7fa8f44b\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-4e7352e5 elementor-widget elementor-widget-button\" data-id=\"4e7352e5\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/myotonic.org\/es\/nuestro-impacto\/\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">M\u00e1s informaci\u00f3n sobre nuestro impacto<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-43ee5f2e e-flex e-con-boxed e-con e-parent\" data-id=\"43ee5f2e\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-1a742152 e-con-full e-flex e-con e-child\" data-id=\"1a742152\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-6a10b636 elementor-widget__width-initial elementor-widget elementor-widget-heading\" data-id=\"6a10b636\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Hitos en la historia de MDF<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-50f29da9 elementor-widget-tablet__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"50f29da9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Lo que comenz\u00f3 con familias pidiendo ser escuchadas ha crecido hasta convertirse en una organizaci\u00f3n que conecta a las personas con apoyo y atenci\u00f3n de confianza, prepara el campo para ensayos cl\u00ednicos, fortalece la voz de la comunidad en decisiones p\u00fablicas e invierte en investigaci\u00f3n hacia tratamientos y una cura.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-5402dc7 e-con-full e-flex e-con e-child\" data-id=\"5402dc7\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-21359cc7 elementor-widget-tablet__width-initial elementor-widget elementor-widget-image\" data-id=\"21359cc7\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/mr66givry2-staging.onrocket.site\/wp-content\/uploads\/history-of-name-and-brand-mdf.jpg\" title=\"\" alt=\"\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-3d49bdce e-flex e-con-boxed e-con e-parent\" data-id=\"3d49bdce\" data-element_type=\"container\" data-e-type=\"container\" id=\"learn-more\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-5083ea1a elementor-widget elementor-widget-jet-timeline\" data-id=\"5083ea1a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"jet-timeline.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-jet-timeline jet-elements\"><div class=\"jet-timeline jet-timeline--align-center jet-timeline--align-middle\">\n\t<div class=\"jet-timeline__line\"><div class=\"jet-timeline__line-progress\"><\/div><\/div>\n\t<div class=\"jet-timeline-list\"><div class=\"jet-timeline-item  elementor-repeater-item-5896881-0 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img decoding=\"async\" width=\"786\" height=\"578\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/Shannon-Lords.jpg\" class=\"attachment-full size-full wp-image-11779\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/Shannon-Lords.jpg 786w, https:\/\/myotonic.org\/wp-content\/uploads\/Shannon-Lords-300x221.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/Shannon-Lords-768x565.jpg 768w\" sizes=\"(max-width: 786px) 100vw, 786px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2001 - 2005<br \/>Familias y cient\u00edficos dan forma a una visi\u00f3n compartida<\/h3><div class=\"timeline-item__card-desc\"><p>A partir de 2001, la defensora Shannon Lord y el neur\u00f3logo Tetsuo 'Tee' Ashizawa, MD, ayudaron a conectar la experiencia de las familias con la comunidad internacional de investigaci\u00f3n sobre la DM. El Dr. Ashizawa hab\u00eda cofundado el IDMC en 1997; Shannon particip\u00f3 en sucesivas reuniones y, en 2005, convoc\u00f3 a familias de Norteam\u00e9rica en torno a la necesidad de una organizaci\u00f3n dedicada espec\u00edficamente a la DM. MDF surgi\u00f3 de esa visi\u00f3n comunitaria y de un compromiso temprano de colaboraci\u00f3n con l\u00edderes cient\u00edficos.  <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/team\/shannon-lord\/\">Conozca a Shannon Lord<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/team\/tetsuo-ashizawa-md\/\">Conozca a Tetsuo 'Tee' Ashizawa, MD<\/a><\/li>\n<li><a href=\"https:\/\/idmc.org\/wp-content\/uploads\/2023\/05\/idmc-4_patient_booklet.pdf\" target=\"_blank\" rel=\"noopener\">Folleto oficial para pacientes del IDMC-4<\/a><\/li>\n<li><a href=\"https:\/\/idmc.org\/wp-content\/uploads\/2023\/05\/idmc-5_programbooklet.pdf\" target=\"_blank\" rel=\"noopener\">Programa oficial del IDMC-5<\/a><\/li>\n<\/ul>\n<p>\u00a0<\/p><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img decoding=\"async\" width=\"786\" height=\"578\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/Shannon-Lords.jpg\" class=\"attachment-full size-full wp-image-11779\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/Shannon-Lords.jpg 786w, https:\/\/myotonic.org\/wp-content\/uploads\/Shannon-Lords-300x221.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/Shannon-Lords-768x565.jpg 768w\" sizes=\"(max-width: 786px) 100vw, 786px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-1 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img decoding=\"async\" width=\"1600\" height=\"1200\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Stanford-Lisa-Kayla-John.jpg\" class=\"attachment-full size-full wp-image-27292\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Stanford-Lisa-Kayla-John.jpg 1600w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Stanford-Lisa-Kayla-John-300x225.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Stanford-Lisa-Kayla-John-1024x768.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Stanford-Lisa-Kayla-John-768x576.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Stanford-Lisa-Kayla-John-1536x1152.jpg 1536w\" sizes=\"(max-width: 1600px) 100vw, 1600px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2006 - 2008<br \/>Una fundaci\u00f3n construida para la DM<\/h3><div class=\"timeline-item__card-desc\"><p>Los organizadores tradujeron esa visi\u00f3n en una organizaci\u00f3n sin \u00e1nimo de lucro con sede en EE. UU. dedicada exclusivamente a la DM. MDF se constituy\u00f3 formalmente como organizaci\u00f3n sin \u00e1nimo de lucro 501(c)(3) en California en 2007 con una Junta Directiva fundadora y un Comit\u00e9 Asesor Cient\u00edfico, grupos de apoyo iniciales y el logotipo del apret\u00f3n de manos. En 2008, Lisa Harvey-Duren se convirti\u00f3 en la primera Directora Ejecutiva de MDF, aportando el liderazgo y la estructura operativa necesarios para servir a una comunidad en crecimiento.  <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/team\/lisa-harvey\/\">Conozca a Lisa Harvey-Duren<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/team\/group\/medical-scientific-advisory-committee\/\">Comit\u00e9 Asesor M\u00e9dico y Cient\u00edfico de MDF<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img decoding=\"async\" width=\"1600\" height=\"1200\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Stanford-Lisa-Kayla-John.jpg\" class=\"attachment-full size-full wp-image-27292\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Stanford-Lisa-Kayla-John.jpg 1600w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Stanford-Lisa-Kayla-John-300x225.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Stanford-Lisa-Kayla-John-1024x768.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Stanford-Lisa-Kayla-John-768x576.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Stanford-Lisa-Kayla-John-1536x1152.jpg 1536w\" sizes=\"(max-width: 1600px) 100vw, 1600px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-2 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1315\" height=\"832\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-Website-2010.png\" class=\"attachment-full size-full wp-image-27293\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-Website-2010.png 1315w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-Website-2010-300x190.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-Website-2010-1024x648.png 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-Website-2010-768x486.png 768w\" sizes=\"(max-width: 1315px) 100vw, 1315px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2008<br \/>Creaci\u00f3n de un hogar en l\u00ednea de confianza para la DM<\/h3><div class=\"timeline-item__card-desc\"><p>MDF lanz\u00f3 myotonic.org para ofrecer a las personas y familias un lugar de confianza y acogedor donde aprender sobre la DM. En una \u00e9poca en la que las b\u00fasquedas en l\u00ednea a menudo conduc\u00edan a literatura t\u00e9cnica e im\u00e1genes cl\u00ednicas con poco contexto pr\u00e1ctico, el sitio facilit\u00f3 encontrar informaci\u00f3n comprensible, apoyo y comunidad. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/support\/newly-diagnosed\/\">Reci\u00e9n diagnosticado con DM<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/resources\/\">Recursos de MDF<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1315\" height=\"832\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-Website-2010.png\" class=\"attachment-full size-full wp-image-27293\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-Website-2010.png 1315w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-Website-2010-300x190.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-Website-2010-1024x648.png 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-Website-2010-768x486.png 768w\" sizes=\"(max-width: 1315px) 100vw, 1315px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-3 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"540\" height=\"360\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_8168.jpg\" class=\"attachment-full size-full wp-image-27294\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_8168.jpg 540w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_8168-300x200.jpg 300w\" sizes=\"(max-width: 540px) 100vw, 540px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2009<br \/>Apoyo a nuevos investigadores y reuni\u00f3n de familias<\/h3><div class=\"timeline-item__card-desc\"><p>MDF lanz\u00f3 dos programas que dar\u00edan forma a su modelo a largo plazo: un Programa de Becas de Investigaci\u00f3n para atraer y retener cient\u00edficos emergentes en DM, y la primera Conferencia Familiar, donde familias, m\u00e9dicos e investigadores pod\u00edan aprender directamente unos de otros. Juntos, combinaron la inversi\u00f3n en experiencia con una colaboraci\u00f3n sostenida con la comunidad. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/research\/grants-and-funding\/\">Subvenciones y financiaci\u00f3n de investigaci\u00f3n de MDF<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/conferences\/\">Archivo de conferencias de MDF<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"540\" height=\"360\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_8168.jpg\" class=\"attachment-full size-full wp-image-27294\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_8168.jpg 540w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_8168-300x200.jpg 300w\" sizes=\"(max-width: 540px) 100vw, 540px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-4 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"800\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/clinical-care-resources-thumb-2.jpg\" class=\"attachment-full size-full wp-image-18161\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/clinical-care-resources-thumb-2.jpg 800w, https:\/\/myotonic.org\/wp-content\/uploads\/clinical-care-resources-thumb-2-300x300.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/clinical-care-resources-thumb-2-150x150.jpg 150w, https:\/\/myotonic.org\/wp-content\/uploads\/clinical-care-resources-thumb-2-768x768.jpg 768w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2009<br \/>Mejora de la seguridad anest\u00e9sica para personas con DM<\/h3><div class=\"timeline-item__card-desc\"><p>MDF formaliz\u00f3 y actualiz\u00f3 la orientaci\u00f3n pr\u00e1ctica sobre los graves riesgos anest\u00e9sicos asociados con la DM, ayudando a las personas que viven con DM y a los m\u00e9dicos a prepararse de forma m\u00e1s segura para los procedimientos. Mantenidos y ampliados de forma continua, los recursos sobre anestesia se han convertido en una de las contribuciones m\u00e1s importantes de MDF a la atenci\u00f3n y siguen siendo herramientas esenciales para familias y equipos m\u00e9dicos. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/resources\/anesthesia-guidelines\/\">Directrices de anestesia de MDF<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/resources\/anesthesia-advice-for-individuals-and-their-families\/\">Consejos sobre anestesia para personas y familias<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/conferences\/\">Conferencias de la MDF<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"800\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/clinical-care-resources-thumb-2.jpg\" class=\"attachment-full size-full wp-image-18161\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/clinical-care-resources-thumb-2.jpg 800w, https:\/\/myotonic.org\/wp-content\/uploads\/clinical-care-resources-thumb-2-300x300.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/clinical-care-resources-thumb-2-150x150.jpg 150w, https:\/\/myotonic.org\/wp-content\/uploads\/clinical-care-resources-thumb-2-768x768.jpg 768w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-5 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Question-on-Screen-for-Voting-scaled.jpg\" class=\"attachment-full size-full wp-image-27295\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Question-on-Screen-for-Voting-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Question-on-Screen-for-Voting-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Question-on-Screen-for-Voting-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Question-on-Screen-for-Voting-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Question-on-Screen-for-Voting-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Question-on-Screen-for-Voting-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2010 - 2012<br \/>La Conferencia de MDF se convierte en una tradici\u00f3n comunitaria<\/h3><div class=\"timeline-item__card-desc\"><p>A trav\u00e9s de tres Conferencias Familiares sucesivas y una red de grupos de apoyo en expansi\u00f3n, MDF cre\u00f3 lugares confiables para que las personas que viven con DM y sus familias aprendieran de especialistas, compararan experiencias pr\u00e1cticas y dieran forma a conversaciones con m\u00e9dicos e investigadores. Estos a\u00f1os establecieron la Conferencia como el foro central de MDF para el aprendizaje compartido y la colaboraci\u00f3n. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/events\/conferences\/\">Archivo de conferencias de MDF<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/2011-mdf-annual-conference\/\">Conferencia Anual de MDF 2011<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/2012-mdf-annual-conference\/\">Conferencia Anual de MDF 2012<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Question-on-Screen-for-Voting-scaled.jpg\" class=\"attachment-full size-full wp-image-27295\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Question-on-Screen-for-Voting-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Question-on-Screen-for-Voting-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Question-on-Screen-for-Voting-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Question-on-Screen-for-Voting-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Question-on-Screen-for-Voting-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Question-on-Screen-for-Voting-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-6 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1575\" height=\"1050\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_1225.jpg\" class=\"attachment-full size-full wp-image-27296\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_1225.jpg 1575w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_1225-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_1225-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_1225-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_1225-1536x1024.jpg 1536w\" sizes=\"(max-width: 1575px) 100vw, 1575px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2012<br \/>Construcci\u00f3n de una red formal de apoyo entre pares<\/h3><div class=\"timeline-item__card-desc\"><p>Bas\u00e1ndose en los primeros grupos locales formados junto con la Fundaci\u00f3n, MDF comenz\u00f3 a desarrollar una red de grupos de apoyo m\u00e1s formal, dirigida por facilitadores. El programa cre\u00f3 espacios confiables para que las personas que viven con DM, familiares y cuidadores compartieran experiencias, orientaci\u00f3n pr\u00e1ctica y conexi\u00f3n, y creci\u00f3 hasta m\u00e1s de 20 grupos durante los siguientes cuatro a\u00f1os. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/support\/support-groups\/\">Grupos de apoyo de la MDF<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1575\" height=\"1050\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_1225.jpg\" class=\"attachment-full size-full wp-image-27296\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_1225.jpg 1575w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_1225-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_1225-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_1225-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_1225-1536x1024.jpg 1536w\" sizes=\"(max-width: 1575px) 100vw, 1575px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-7 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"700\" height=\"560\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_0729-e1788302417484.jpg\" class=\"attachment-full size-full wp-image-27297\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_0729-e1788302417484.jpg 700w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_0729-e1788302417484-300x240.jpg 300w\" sizes=\"(max-width: 700px) 100vw, 700px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2012<br \/>Establecimiento de apoyo individual<\/h3><div class=\"timeline-item__card-desc\"><p>Para 2012, MDF proporcionaba apoyo individual a trav\u00e9s de lo que ahora es la L\u00ednea de Apoyo, el primer a\u00f1o del que MDF tiene datos de uso registrados. Este canal directo ayuda a las personas que viven con DM y a las familias a orientarse en sus preguntas, encontrar recursos de confianza y conectarse con apoyo cuando necesitan una persona con conocimientos, no solo informaci\u00f3n. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/support\/request-warmline-support\/\">Solicite apoyo de la L\u00ednea de Apoyo<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/support\/how-we-can-help\/\">C\u00f3mo puede ayudar MDF<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"700\" height=\"560\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_0729-e1788302417484.jpg\" class=\"attachment-full size-full wp-image-27297\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_0729-e1788302417484.jpg 700w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/IMG_0729-e1788302417484-300x240.jpg 300w\" sizes=\"(max-width: 700px) 100vw, 700px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-8 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1300\" height=\"867\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/family-registry-logo-history.png\" class=\"attachment-full size-full wp-image-26684\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/family-registry-logo-history.png 1300w, https:\/\/myotonic.org\/wp-content\/uploads\/family-registry-logo-history-300x200.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/family-registry-logo-history-1024x683.png 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/family-registry-logo-history-768x512.png 768w\" sizes=\"(max-width: 1300px) 100vw, 1300px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2013<br \/>Preparaci\u00f3n de investigadores y familias para ensayos cl\u00ednicos sobre DM<\/h3><div class=\"timeline-item__card-desc\"><p>MDF lanz\u00f3 el Registro Familiar de Distrofia Miot\u00f3nica (MDFR), apoy\u00f3 la expansi\u00f3n de la Red de Investigaci\u00f3n Cl\u00ednica de Distrofia Miot\u00f3nica (DMCRN) y utiliz\u00f3 su Conferencia con todas las plazas agotadas para ayudar a las familias a comprender el desarrollo de f\u00e1rmacos y la participaci\u00f3n en ensayos. Juntos, estos esfuerzos comenzaron a alinear el conocimiento de la comunidad, los datos reportados por los pacientes, los centros de investigaci\u00f3n y la industria en torno a un campo m\u00e1s preparado para ensayos cl\u00ednicos. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/get-involved\/family-registry\/\">\u00danase al Registro Familiar de Distrofia Miot\u00f3nica<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/research\/dmcrn\/\">Red de Investigaci\u00f3n Cl\u00ednica de Distrofia Miot\u00f3nica<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/myotonic-dystrophy-family-registry-study\/\">Resultados del estudio MDFR 2026<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1300\" height=\"867\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/family-registry-logo-history.png\" class=\"attachment-full size-full wp-image-26684\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/family-registry-logo-history.png 1300w, https:\/\/myotonic.org\/wp-content\/uploads\/family-registry-logo-history-300x200.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/family-registry-logo-history-1024x683.png 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/family-registry-logo-history-768x512.png 768w\" sizes=\"(max-width: 1300px) 100vw, 1300px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-9 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1285\" height=\"887\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Digital-Academy-2012.png\" class=\"attachment-full size-full wp-image-27298\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Digital-Academy-2012.png 1285w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Digital-Academy-2012-300x207.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Digital-Academy-2012-1024x707.png 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Digital-Academy-2012-768x530.png 768w\" sizes=\"(max-width: 1285px) 100vw, 1285px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2013<br \/>Extensi\u00f3n de la educaci\u00f3n de confianza m\u00e1s all\u00e1 de la Conferencia<\/h3><div class=\"timeline-item__card-desc\"><p>Con el primer seminario web de MDF a\u00f1adido a la nueva Academia Digital en 2013, la educaci\u00f3n de confianza sobre DM comenz\u00f3 a llegar m\u00e1s all\u00e1 de una reuni\u00f3n anual. La biblioteca bajo demanda cre\u00f3 una base para el acceso durante todo el a\u00f1o a la experiencia de m\u00e9dicos, investigadores y la comunidad, y posteriormente creci\u00f3 hasta incluir cientos de horas de programaci\u00f3n pr\u00e1ctica y cient\u00edfica. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/digital-academy\/\">Academia Digital de MDF<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1285\" height=\"887\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Digital-Academy-2012.png\" class=\"attachment-full size-full wp-image-27298\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Digital-Academy-2012.png 1285w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Digital-Academy-2012-300x207.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Digital-Academy-2012-1024x707.png 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Digital-Academy-2012-768x530.png 768w\" sizes=\"(max-width: 1285px) 100vw, 1285px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-10 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1136\" height=\"756\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Congressional-Hearing-Lisa-Kayla.jpg\" class=\"attachment-full size-full wp-image-27299\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Congressional-Hearing-Lisa-Kayla.jpg 1136w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Congressional-Hearing-Lisa-Kayla-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Congressional-Hearing-Lisa-Kayla-1024x681.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Congressional-Hearing-Lisa-Kayla-768x511.jpg 768w\" sizes=\"(max-width: 1136px) 100vw, 1136px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2014<br \/>La comunidad de DM habla ante el Congreso<\/h3><div class=\"timeline-item__card-desc\"><p>En 2014, Kayla Vittek, que viv\u00eda con DM cong\u00e9nita, y su madre, Lisa Harvey-Duren, Directora Ejecutiva fundadora de MDF, testificaron ante el Comit\u00e9 de Salud, Educaci\u00f3n, Trabajo y Pensiones del Senado de EE. UU. en apoyo de la reautorizaci\u00f3n de la Ley MD-CARE. Ese a\u00f1o, MDF tambi\u00e9n llev\u00f3 a cabo su primer esfuerzo de defensa en Capitol Hill, estableciendo un programa sostenido a trav\u00e9s del cual las familias pod\u00edan dar forma a la financiaci\u00f3n de la investigaci\u00f3n y las pol\u00edticas p\u00fablicas. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/team\/lisa-harvey\/\">Conozca a Lisa Harvey-Duren y la historia de Kayla<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/2014-mdf-annual-conference-in-washington-dc\/\">Conferencia Anual de MDF 2014 en Washington, D.C.<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/get-involved\/advocate\/\">Defensa de MDF<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1136\" height=\"756\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Congressional-Hearing-Lisa-Kayla.jpg\" class=\"attachment-full size-full wp-image-27299\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Congressional-Hearing-Lisa-Kayla.jpg 1136w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Congressional-Hearing-Lisa-Kayla-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Congressional-Hearing-Lisa-Kayla-1024x681.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Congressional-Hearing-Lisa-Kayla-768x511.jpg 768w\" sizes=\"(max-width: 1136px) 100vw, 1136px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-11 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1000\" height=\"667\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/drug-development-img.jpg\" class=\"attachment-full size-full wp-image-21037\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/drug-development-img.jpg 1000w, https:\/\/myotonic.org\/wp-content\/uploads\/drug-development-img-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/drug-development-img-768x512.jpg 768w\" sizes=\"(max-width: 1000px) 100vw, 1000px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2014<br \/>El primer ensayo modificador de la enfermedad en DM<\/h3><div class=\"timeline-item__card-desc\"><p>Un estudio de fase 1-2 de IONIS-DMPKRx-2.5 se abri\u00f3 en m\u00faltiples centros de EE. UU., marcando el primer ensayo cl\u00ednico dise\u00f1ado para atacar el proceso subyacente de la enfermedad en DM1. La terapia no alcanz\u00f3 niveles suficientes en el m\u00fasculo esquel\u00e9tico, pero el estudio demostr\u00f3 que se pod\u00eda realizar un ensayo multic\u00e9ntrico modificador de la enfermedad en DM y sus lecciones informaron enfoques posteriores. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/research\/clinical-trials-and-studies\/\">Ensayos cl\u00ednicos y estudios<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/resources\/drug-development-pipeline\/\">Pipeline de desarrollo de f\u00e1rmacos de MDF<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/2014-mdf-annual-conference-in-washington-dc\/\">Conferencia Anual de MDF 2014<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1000\" height=\"667\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/drug-development-img.jpg\" class=\"attachment-full size-full wp-image-21037\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/drug-development-img.jpg 1000w, https:\/\/myotonic.org\/wp-content\/uploads\/drug-development-img-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/drug-development-img-768x512.jpg 768w\" sizes=\"(max-width: 1000px) 100vw, 1000px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-12 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/JK-podium-scaled.jpg\" class=\"attachment-full size-full wp-image-27300\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/JK-podium-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/JK-podium-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/JK-podium-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/JK-podium-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/JK-podium-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/JK-podium-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2015<br \/>Un plan coordinado para la atenci\u00f3n y los tratamientos<\/h3><div class=\"timeline-item__card-desc\"><p>MDF se comprometi\u00f3 con un programa trienal de varios millones de d\u00f3lares (apodado Myotonic 3.0) para abordar las barreras que ralentizaban el desarrollo de la atenci\u00f3n y las terapias. MDF ampli\u00f3 la capacidad de investigaci\u00f3n cl\u00ednica, avanz\u00f3 en el trabajo sobre biomarcadores y criterios de valoraci\u00f3n, involucr\u00f3 a reguladores e industria, y comenz\u00f3 a desarrollar recomendaciones de atenci\u00f3n consensuadas. Un taller hist\u00f3rico reuni\u00f3 a representantes de la comunidad, investigadores, NIH, FDA e industria en torno a una agenda de desarrollo compartida.  <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/mdf-3-0-advancing-myotonic-dystrophy-research-care-and-drug-development\/\">Resumen de MDF 3.0<\/a><\/li>\n<li><a href=\"https:\/\/doi.org\/10.1177\/2168479016683988\" target=\"_blank\" rel=\"noopener\">Informe del taller de desarrollo de terapias centradas en el paciente<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/2015-mdf-annual-conference-in-washington-dc\/\">Conferencia Anual de MDF 2015<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/JK-podium-scaled.jpg\" class=\"attachment-full size-full wp-image-27300\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/JK-podium-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/JK-podium-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/JK-podium-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/JK-podium-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/JK-podium-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/JK-podium-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-13 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1797\" height=\"488\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Wyck-Foundation.jpg\" class=\"attachment-full size-full wp-image-27301\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Wyck-Foundation.jpg 1797w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Wyck-Foundation-300x81.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Wyck-Foundation-1024x278.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Wyck-Foundation-768x209.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Wyck-Foundation-1536x417.jpg 1536w\" sizes=\"(max-width: 1797px) 100vw, 1797px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2015<br \/>Una nueva asociaci\u00f3n de investigaci\u00f3n en el Reino Unido<\/h3><div class=\"timeline-item__card-desc\"><p>La organizaci\u00f3n hermana de MDF se estableci\u00f3 en Londres como Wyck Foundation, posteriormente MDF UK, creando una fuente complementaria de inversi\u00f3n en ciencia sobre DM. Durante nueve a\u00f1os, MDF UK financi\u00f3 16 subvenciones de investigaci\u00f3n y 22 becas, a menudo en colaboraci\u00f3n con MDF, extendiendo el apoyo de los donantes a investigadores y proyectos en todo el campo internacional. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/history\/mdf-uk\/\">Legado de investigaci\u00f3n de MDF UK<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/research\/grants-and-funding\/\">Subvenciones y financiaci\u00f3n de investigaci\u00f3n de MDF<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1797\" height=\"488\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Wyck-Foundation.jpg\" class=\"attachment-full size-full wp-image-27301\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Wyck-Foundation.jpg 1797w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Wyck-Foundation-300x81.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Wyck-Foundation-1024x278.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Wyck-Foundation-768x209.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Wyck-Foundation-1536x417.jpg 1536w\" sizes=\"(max-width: 1797px) 100vw, 1797px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-14 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Lee-Baker-and-Judy-Marks-Lee-Speaking-scaled.jpg\" class=\"attachment-full size-full wp-image-27302\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Lee-Baker-and-Judy-Marks-Lee-Speaking-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Lee-Baker-and-Judy-Marks-Lee-Speaking-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Lee-Baker-and-Judy-Marks-Lee-Speaking-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Lee-Baker-and-Judy-Marks-Lee-Speaking-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Lee-Baker-and-Judy-Marks-Lee-Speaking-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Lee-Baker-and-Judy-Marks-Lee-Speaking-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2016<br \/>La comunidad define el tratamiento significativo<\/h3><div class=\"timeline-item__card-desc\"><p>MDF convoc\u00f3 la primera reuni\u00f3n de Desarrollo de F\u00e1rmacos Centrado en el Paciente Dirigida Externamente aprobada por la FDA para DM, otorgando a las personas que viven con DM y a los cuidadores un papel formal en la definici\u00f3n de prioridades de tratamiento, riesgo aceptable y beneficio significativo. El informe resultante Voice of the Patient cre\u00f3 un registro duradero para reguladores, investigadores y desarrolladores de f\u00e1rmacos. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDFVoicePatientReportMay2017.pdf\">Informe Voice of the Patient de MDF<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/2016-mdf-annual-conference-in-washington-dc\/\">Conferencia Anual de MDF 2016<\/a><\/li>\n<\/ul>\n<p>\u00a0<\/p><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Lee-Baker-and-Judy-Marks-Lee-Speaking-scaled.jpg\" class=\"attachment-full size-full wp-image-27302\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Lee-Baker-and-Judy-Marks-Lee-Speaking-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Lee-Baker-and-Judy-Marks-Lee-Speaking-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Lee-Baker-and-Judy-Marks-Lee-Speaking-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Lee-Baker-and-Judy-Marks-Lee-Speaking-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Lee-Baker-and-Judy-Marks-Lee-Speaking-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/PFDD-Lee-Baker-and-Judy-Marks-Lee-Speaking-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-15 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Laura-Gershenson-2017-scaled.jpg\" class=\"attachment-full size-full wp-image-27303\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Laura-Gershenson-2017-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Laura-Gershenson-2017-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Laura-Gershenson-2017-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Laura-Gershenson-2017-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Laura-Gershenson-2017-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Laura-Gershenson-2017-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2017<br \/>Conversi\u00f3n de las necesidades de la comunidad en apoyo por discapacidad<\/h3><div class=\"timeline-item__card-desc\"><p>Las conversaciones de la L\u00ednea de Apoyo y otros comentarios de la comunidad mostraron que las familias ten\u00edan dificultades para orientarse en las solicitudes de discapacidad. MDF respondi\u00f3 con un kit de herramientas pr\u00e1ctico sobre la Seguridad Social y un compromiso sostenido con la Administraci\u00f3n de la Seguridad Social, ayudando a asegurar la inclusi\u00f3n de la DM cong\u00e9nita en el Programa de Asignaciones por Compasi\u00f3n y decisiones m\u00e1s r\u00e1pidas para las familias elegibles. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/resources\/applying-for-social-security-disability-benefits-toolkit\/\">Kit de herramientas para solicitar prestaciones por discapacidad de la Seguridad Social<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/digital-academy\/understanding-ssa-compassionate-allowance-cdm\/\">Comprensi\u00f3n de las Asignaciones por Compasi\u00f3n de la SSA para CDM<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/2017-mdf-annual-conference-in-san-francisco-ca\/\">Conferencia Anual de MDF 2017<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Laura-Gershenson-2017-scaled.jpg\" class=\"attachment-full size-full wp-image-27303\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Laura-Gershenson-2017-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Laura-Gershenson-2017-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Laura-Gershenson-2017-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Laura-Gershenson-2017-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Laura-Gershenson-2017-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Laura-Gershenson-2017-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-16 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1200\" height=\"900\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/1_Haylon.jpg\" class=\"attachment-full size-full wp-image-18880\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/1_Haylon.jpg 1200w, https:\/\/myotonic.org\/wp-content\/uploads\/1_Haylon-300x225.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/1_Haylon-1024x768.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/1_Haylon-768x576.jpg 768w\" sizes=\"(max-width: 1200px) 100vw, 1200px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2018<br \/>La financiaci\u00f3n federal de investigaci\u00f3n se abre a la DM<\/h3><div class=\"timeline-item__card-desc\"><p>Tras a\u00f1os de defensa por parte de MDF y la comunidad de DM, la distrofia miot\u00f3nica se volvi\u00f3 elegible para el Programa de Investigaci\u00f3n M\u00e9dica Revisado por Pares del Departamento de Defensa de EE. UU. La elegibilidad abri\u00f3 financiaci\u00f3n federal competitiva a investigadores de DM y estableci\u00f3 una v\u00eda que MDF y los defensores de la comunidad han protegido con \u00e9xito a\u00f1o tras a\u00f1o. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/get-involved\/advocate\/\">Defensa de MDF<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/get-involved\/advocate\/prmrp\/\">Historial de elegibilidad del PRMRP<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1200\" height=\"900\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/1_Haylon.jpg\" class=\"attachment-full size-full wp-image-18880\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/1_Haylon.jpg 1200w, https:\/\/myotonic.org\/wp-content\/uploads\/1_Haylon-300x225.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/1_Haylon-1024x768.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/1_Haylon-768x576.jpg 768w\" sizes=\"(max-width: 1200px) 100vw, 1200px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-17 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"960\" height=\"540\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Care-Considerations-Group-2016.jpg\" class=\"attachment-full size-full wp-image-27304\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Care-Considerations-Group-2016.jpg 960w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Care-Considerations-Group-2016-300x169.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Care-Considerations-Group-2016-768x432.jpg 768w\" sizes=\"(max-width: 960px) 100vw, 960px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2018<br \/>Las primeras recomendaciones de atenci\u00f3n consensuadas para DM1<\/h3><div class=\"timeline-item__card-desc\"><p>MDF reuni\u00f3 a expertos internacionales para abordar la falta de orientaci\u00f3n cl\u00ednica consistente para una enfermedad compleja y multisist\u00e9mica. Las recomendaciones resultantes basadas en consenso para adultos con DM1 proporcionaron a m\u00e9dicos y familias un marco compartido e informado por la evidencia para gestionar la atenci\u00f3n en m\u00faltiples sistemas corporales y sentaron las bases para orientaci\u00f3n que cubriera poblaciones adicionales de DM. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/resources\/\">Todos los recursos de MDF<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/resources\/cat\/healthcare-professionals\/\">Recursos para profesionales sanitarios<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/resources\/clinical-care-recommendations-for-adults-with-dm1\/\">Recomendaciones de atenci\u00f3n cl\u00ednica para adultos con DM1<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/resources\/clinical-care-recommendations-for-adults-with-myotonic-dystrophy-type-2\/\">Recomendaciones de atenci\u00f3n cl\u00ednica para adultos con DM2<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"960\" height=\"540\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Care-Considerations-Group-2016.jpg\" class=\"attachment-full size-full wp-image-27304\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Care-Considerations-Group-2016.jpg 960w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Care-Considerations-Group-2016-300x169.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Care-Considerations-Group-2016-768x432.jpg 768w\" sizes=\"(max-width: 960px) 100vw, 960px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-18 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1218\" height=\"1256\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Vertical-Gene-Editing-Wkshp-Photo.png\" class=\"attachment-full size-full wp-image-27305\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Vertical-Gene-Editing-Wkshp-Photo.png 1218w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Vertical-Gene-Editing-Wkshp-Photo-291x300.png 291w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Vertical-Gene-Editing-Wkshp-Photo-993x1024.png 993w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Vertical-Gene-Editing-Wkshp-Photo-768x792.png 768w\" sizes=\"(max-width: 1218px) 100vw, 1218px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2018<br \/>Definici\u00f3n de prioridades para la investigaci\u00f3n en edici\u00f3n gen\u00f3mica<\/h3><div class=\"timeline-item__card-desc\"><p>MDF convoc\u00f3 a expertos de la academia, NIH, FDA, industria y la comunidad para evaluar c\u00f3mo se podr\u00eda avanzar de forma responsable en la edici\u00f3n gen\u00f3mica para DM1. El taller defini\u00f3 cuestiones cient\u00edficas, de administraci\u00f3n, seguridad y desarrollo, e inform\u00f3 una iniciativa de financiaci\u00f3n competitiva para investigaci\u00f3n en fase temprana dirigida a DMPK. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDF_Genome_Editing_Workshop_Full_Notes_FNL_2018-04-27.pdf\">Informe del taller de edici\u00f3n gen\u00f3mica de MDF<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/research\/\">Investigaci\u00f3n de MDF<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/2018-mdf-annual-conference-in-nashville-tn\/\">Conferencia Anual de MDF 2018<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1218\" height=\"1256\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Vertical-Gene-Editing-Wkshp-Photo.png\" class=\"attachment-full size-full wp-image-27305\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Vertical-Gene-Editing-Wkshp-Photo.png 1218w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Vertical-Gene-Editing-Wkshp-Photo-291x300.png 291w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Vertical-Gene-Editing-Wkshp-Photo-993x1024.png 993w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Vertical-Gene-Editing-Wkshp-Photo-768x792.png 768w\" sizes=\"(max-width: 1218px) 100vw, 1218px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-19 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Ellis-Oppenheim-and-woman-at-vendor-fair-table-scaled.jpg\" class=\"attachment-full size-full wp-image-27306\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Ellis-Oppenheim-and-woman-at-vendor-fair-table-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Ellis-Oppenheim-and-woman-at-vendor-fair-table-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Ellis-Oppenheim-and-woman-at-vendor-fair-table-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Ellis-Oppenheim-and-woman-at-vendor-fair-table-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Ellis-Oppenheim-and-woman-at-vendor-fair-table-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Ellis-Oppenheim-and-woman-at-vendor-fair-table-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2019<br \/>Nueva orientaci\u00f3n de atenci\u00f3n para DM2 y ni\u00f1os<\/h3><div class=\"timeline-item__card-desc\"><p>MDF ampli\u00f3 la orientaci\u00f3n basada en consenso a adultos con DM2 y ni\u00f1os con DM1 cong\u00e9nita o de inicio en la infancia, al tiempo que introdujo una Gu\u00eda de Referencia R\u00e1pida de Anestesia de una p\u00e1gina. Estos recursos tradujeron el consenso de expertos en herramientas pr\u00e1cticas que las familias pod\u00edan llevar a entornos cl\u00ednicos, fortaleciendo la seguridad y una atenci\u00f3n m\u00e1s consistente en todos los tipos y edades de DM. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/resources\/anesthesia-guidelines\/\">Directrices de anestesia de MDF<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/resources\/clinical-care-recommendations-for-adults-with-myotonic-dystrophy-type-2\/\">Recomendaciones de atenci\u00f3n cl\u00ednica para adultos con DM2<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/resources\/clinical-care-recommendations-for-children-with-myotonic-dystrophy-type-1\/\">Recomendaciones de atenci\u00f3n cl\u00ednica para ni\u00f1os con DM1<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Ellis-Oppenheim-and-woman-at-vendor-fair-table-scaled.jpg\" class=\"attachment-full size-full wp-image-27306\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Ellis-Oppenheim-and-woman-at-vendor-fair-table-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Ellis-Oppenheim-and-woman-at-vendor-fair-table-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Ellis-Oppenheim-and-woman-at-vendor-fair-table-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Ellis-Oppenheim-and-woman-at-vendor-fair-table-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Ellis-Oppenheim-and-woman-at-vendor-fair-table-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Ellis-Oppenheim-and-woman-at-vendor-fair-table-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-20 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Tim-Haylon-Lisa-Harvey-Jeremy-Kelly-award-ceremony-scaled.jpg\" class=\"attachment-full size-full wp-image-27307\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Tim-Haylon-Lisa-Harvey-Jeremy-Kelly-award-ceremony-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Tim-Haylon-Lisa-Harvey-Jeremy-Kelly-award-ceremony-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Tim-Haylon-Lisa-Harvey-Jeremy-Kelly-award-ceremony-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Tim-Haylon-Lisa-Harvey-Jeremy-Kelly-award-ceremony-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Tim-Haylon-Lisa-Harvey-Jeremy-Kelly-award-ceremony-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Tim-Haylon-Lisa-Harvey-Jeremy-Kelly-award-ceremony-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2019<br \/>El legado de defensa de Kayla Vittek<\/h3><div class=\"timeline-item__card-desc\"><p>MDF estableci\u00f3 el Premio Conmemorativo Kayla Vittek a la Defensora Comunitaria Destacada para llevar adelante el legado de una joven defensora que vivi\u00f3 con DM cong\u00e9nita y testific\u00f3 ante el Congreso con su madre, Lisa Harvey-Duren, en 2014. Presentado anualmente, el premio reconoce a miembros de la comunidad que aumentan la concienciaci\u00f3n, defienden la investigaci\u00f3n y los recursos, y ayudan a dar forma a un futuro m\u00e1s s\u00f3lido para las personas afectadas por la DM. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/team\/lisa-harvey\/\">Conozca a Lisa Harvey-Duren y la historia de Kayla<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/2019-myotonic-annual-conference-in-philadelphia-pa\/\">Conferencia Anual de MDF 2019<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/conferences\/\">Archivo de conferencias de MDF<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Tim-Haylon-Lisa-Harvey-Jeremy-Kelly-award-ceremony-scaled.jpg\" class=\"attachment-full size-full wp-image-27307\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Tim-Haylon-Lisa-Harvey-Jeremy-Kelly-award-ceremony-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Tim-Haylon-Lisa-Harvey-Jeremy-Kelly-award-ceremony-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Tim-Haylon-Lisa-Harvey-Jeremy-Kelly-award-ceremony-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Tim-Haylon-Lisa-Harvey-Jeremy-Kelly-award-ceremony-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Tim-Haylon-Lisa-Harvey-Jeremy-Kelly-award-ceremony-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Tim-Haylon-Lisa-Harvey-Jeremy-Kelly-award-ceremony-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-21 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"600\" height=\"337\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/ask-expert-covid-vaccines-da-thumb-real.jpg\" class=\"attachment-full size-full wp-image-13582\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/ask-expert-covid-vaccines-da-thumb-real.jpg 600w, https:\/\/myotonic.org\/wp-content\/uploads\/ask-expert-covid-vaccines-da-thumb-real-300x169.jpg 300w\" sizes=\"(max-width: 600px) 100vw, 600px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2020<br \/>Creaci\u00f3n de apoyo y educaci\u00f3n virtuales durante todo el a\u00f1o<\/h3><div class=\"timeline-item__card-desc\"><p>Cuando la COVID-19 interrumpi\u00f3 la atenci\u00f3n y la conexi\u00f3n presenciales, MDF ampli\u00f3 los grupos de apoyo virtuales, lanz\u00f3 su Serie de Seminarios Web de los Viernes por la Tarde, traslad\u00f3 la Conferencia en l\u00ednea y public\u00f3 orientaci\u00f3n cl\u00ednica y pr\u00e1ctica oportuna. La respuesta aceler\u00f3 el acceso durante todo el a\u00f1o al apoyo entre pares y la experiencia de confianza m\u00e1s all\u00e1 de la geograf\u00eda, y estableci\u00f3 programas digitales que continuaron despu\u00e9s de la crisis inmediata. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/support\/support-groups\/\">Grupos de apoyo de la MDF<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/digital-academy\/\">Academia Digital de MDF<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/2020-virtual-mdf-annual-conference\/\">Conferencia Virtual de MDF 2020<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDF-2020-Virtual-Conference-Program.pdf\">Programa de la Conferencia Virtual 2020<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"600\" height=\"337\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/ask-expert-covid-vaccines-da-thumb-real.jpg\" class=\"attachment-full size-full wp-image-13582\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/ask-expert-covid-vaccines-da-thumb-real.jpg 600w, https:\/\/myotonic.org\/wp-content\/uploads\/ask-expert-covid-vaccines-da-thumb-real-300x169.jpg 300w\" sizes=\"(max-width: 600px) 100vw, 600px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-22 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Veronica-Dunning-Bonnie-Nahama-Leslie-Krongold-good-yoga-shot-scaled.jpg\" class=\"attachment-full size-full wp-image-27308\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Veronica-Dunning-Bonnie-Nahama-Leslie-Krongold-good-yoga-shot-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Veronica-Dunning-Bonnie-Nahama-Leslie-Krongold-good-yoga-shot-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Veronica-Dunning-Bonnie-Nahama-Leslie-Krongold-good-yoga-shot-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Veronica-Dunning-Bonnie-Nahama-Leslie-Krongold-good-yoga-shot-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Veronica-Dunning-Bonnie-Nahama-Leslie-Krongold-good-yoga-shot-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Veronica-Dunning-Bonnie-Nahama-Leslie-Krongold-good-yoga-shot-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2020<br \/>Hacer del movimiento parte de vivir bien con DM<\/h3><div class=\"timeline-item__card-desc\"><p>MDF public\u00f3 una Gu\u00eda de Ejercicio en 2020 y desarroll\u00f3 Myotonic Dystrophy In Motion (MDIM), una iniciativa liderada por la comunidad que reemplaz\u00f3 la incertidumbre y las suposiciones obsoletas con orientaci\u00f3n pr\u00e1ctica e informada por la evidencia sobre el movimiento adecuadamente adaptado. El primer Mes de Concienciaci\u00f3n de MDIM en 2024 a\u00f1adi\u00f3 seminarios web accesibles, actividades de movimiento y conexi\u00f3n individual entre pares. <\/p>\n<ul>\n<li><a href=\"https:\/\/www.myotonic.org\/myotonic-dystrophy-motion\">Distrofia miot\u00f3nica en movimiento<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/resources\/exercise-and-movement-resources\/\">Recursos de ejercicio y movimiento<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Veronica-Dunning-Bonnie-Nahama-Leslie-Krongold-good-yoga-shot-scaled.jpg\" class=\"attachment-full size-full wp-image-27308\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Veronica-Dunning-Bonnie-Nahama-Leslie-Krongold-good-yoga-shot-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Veronica-Dunning-Bonnie-Nahama-Leslie-Krongold-good-yoga-shot-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Veronica-Dunning-Bonnie-Nahama-Leslie-Krongold-good-yoga-shot-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Veronica-Dunning-Bonnie-Nahama-Leslie-Krongold-good-yoga-shot-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Veronica-Dunning-Bonnie-Nahama-Leslie-Krongold-good-yoga-shot-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Veronica-Dunning-Bonnie-Nahama-Leslie-Krongold-good-yoga-shot-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-23 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"800\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/10_International-DM-Awareness-Day-Logo-800px.jpg\" class=\"attachment-full size-full wp-image-13415\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/10_International-DM-Awareness-Day-Logo-800px.jpg 800w, https:\/\/myotonic.org\/wp-content\/uploads\/10_International-DM-Awareness-Day-Logo-800px-300x300.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/10_International-DM-Awareness-Day-Logo-800px-150x150.jpg 150w, https:\/\/myotonic.org\/wp-content\/uploads\/10_International-DM-Awareness-Day-Logo-800px-768x768.jpg 768w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2021<br \/>Construcci\u00f3n de un movimiento global para la concienciaci\u00f3n sobre la DM<\/h3><div class=\"timeline-item__card-desc\"><p>MDF ayud\u00f3 a unir a organizaciones de todo el mundo para establecer la Alianza Global para la Concienciaci\u00f3n sobre la Distrofia Miot\u00f3nica y el primer D\u00eda Internacional de Concienciaci\u00f3n sobre la Distrofia Miot\u00f3nica el 15 de septiembre. La Alianza cre\u00f3 una infraestructura duradera para mensajes compartidos, acci\u00f3n coordinada y mayor comprensi\u00f3n p\u00fablica a trav\u00e9s de fronteras nacionales y organizacionales. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/events\/international-myotonic-dystrophy-awareness-day\/\">D\u00eda Internacional de Concienciaci\u00f3n sobre la Distrofia Miot\u00f3nica<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/global-alliance-60-myotonic-dystrophy-organizations-recognizes-5th-annual-international-myotonic\/\">Alianza Global: m\u00e1s de 60 organizaciones<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDF-Annual-Report-FY2021.pdf\">Informe Anual de MDF 2021<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"800\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/10_International-DM-Awareness-Day-Logo-800px.jpg\" class=\"attachment-full size-full wp-image-13415\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/10_International-DM-Awareness-Day-Logo-800px.jpg 800w, https:\/\/myotonic.org\/wp-content\/uploads\/10_International-DM-Awareness-Day-Logo-800px-300x300.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/10_International-DM-Awareness-Day-Logo-800px-150x150.jpg 150w, https:\/\/myotonic.org\/wp-content\/uploads\/10_International-DM-Awareness-Day-Logo-800px-768x768.jpg 768w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-24 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Nate-Uhl-at-Poster-Session-close-up-scaled.jpg\" class=\"attachment-full size-full wp-image-27309\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Nate-Uhl-at-Poster-Session-close-up-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Nate-Uhl-at-Poster-Session-close-up-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Nate-Uhl-at-Poster-Session-close-up-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Nate-Uhl-at-Poster-Session-close-up-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Nate-Uhl-at-Poster-Session-close-up-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Nate-Uhl-at-Poster-Session-close-up-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2021<br \/>Ayudar a la comunidad de DM a seguir el desarrollo de tratamientos<\/h3><div class=\"timeline-item__card-desc\"><p>Para marzo de 2021, MDF compart\u00eda un gr\u00e1fico p\u00fablico que organizaba los tratamientos potenciales de DM por etapa de desarrollo. MDF ahora mantiene una herramienta m\u00e1s completa que conecta programas activos y pasados con informaci\u00f3n de ensayos y actualizaciones de la comunidad. El recurso actual dise\u00f1ado por MDF reconoce al miembro de la comunidad Nate Uhl por el an\u00e1lisis exhaustivo de investigaci\u00f3n y la visi\u00f3n original detr\u00e1s del pipeline.  <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/resources\/drug-development-pipeline\/\">Pipeline de desarrollo de f\u00e1rmacos de MDF<\/a><\/li>\n<li><a href=\"https:\/\/www.myotonic.org\/sites\/default\/files\/pages\/files\/Myotonic-Dystrophy-Drug-Development-Pipeline-as-of-March-8th-2021.pdf\">Pipeline de desarrollo de f\u00e1rmacos para DM del 8 de marzo de 2021<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/meet-dm-drug-developers\/\">Conozca a los desarrolladores de f\u00e1rmacos para la DM<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/2021-virtual-mdf-annual-conference\/\">Conferencia Anual Virtual de MDF 2021<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Nate-Uhl-at-Poster-Session-close-up-scaled.jpg\" class=\"attachment-full size-full wp-image-27309\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Nate-Uhl-at-Poster-Session-close-up-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Nate-Uhl-at-Poster-Session-close-up-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Nate-Uhl-at-Poster-Session-close-up-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Nate-Uhl-at-Poster-Session-close-up-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Nate-Uhl-at-Poster-Session-close-up-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Nate-Uhl-at-Poster-Session-close-up-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-25 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1680\" height=\"1050\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Avidity-screen-cap.png\" class=\"attachment-full size-full wp-image-27310\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Avidity-screen-cap.png 1680w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Avidity-screen-cap-300x188.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Avidity-screen-cap-1024x640.png 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Avidity-screen-cap-768x480.png 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Avidity-screen-cap-1536x960.png 1536w\" sizes=\"(max-width: 1680px) 100vw, 1680px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2021<br \/>Apertura del acceso a expertos y desarrolladores de f\u00e1rmacos para DM<\/h3><div class=\"timeline-item__card-desc\"><p>A partir de 2021 con Meet the DM Drug Developers y seguido por una programaci\u00f3n ampliada de Ask-the-Expert, MDF cre\u00f3 oportunidades regulares para que los miembros de la comunidad escucharan directamente a m\u00e9dicos, terapeutas, investigadores y empresas, y para hacer preguntas en tiempo real. Las grabaciones en la Academia Digital hicieron que esas conversaciones estuvieran disponibles bajo demanda. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/ask-the-expert-webinars\/\">Serie de seminarios web Ask-the-Expert<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/meet-dm-drug-developers\/\">Conozca a los desarrolladores de f\u00e1rmacos para la DM<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/digital-academy\/\">Academia Digital de MDF<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1680\" height=\"1050\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Avidity-screen-cap.png\" class=\"attachment-full size-full wp-image-27310\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Avidity-screen-cap.png 1680w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Avidity-screen-cap-300x188.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Avidity-screen-cap-1024x640.png 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Avidity-screen-cap-768x480.png 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/Avidity-screen-cap-1536x960.png 1536w\" sizes=\"(max-width: 1680px) 100vw, 1680px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-26 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"868\" height=\"1120\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDFStrategiCPlanCoverpng.png\" class=\"attachment-full size-full wp-image-27311\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDFStrategiCPlanCoverpng.png 868w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDFStrategiCPlanCoverpng-233x300.png 233w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDFStrategiCPlanCoverpng-794x1024.png 794w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDFStrategiCPlanCoverpng-768x991.png 768w\" sizes=\"(max-width: 868px) 100vw, 868px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2021<br \/>La comunidad da forma al plan estrat\u00e9gico de MDF<\/h3><div class=\"timeline-item__card-desc\"><p>MDF adopt\u00f3 su primer plan estrat\u00e9gico integral, moldeado por las aportaciones de m\u00e1s de 800 miembros de la comunidad y partes interesadas. El plan renov\u00f3 la visi\u00f3n y misi\u00f3n de MDF, estableci\u00f3 valores compartidos y una teor\u00eda del cambio, y organiz\u00f3 el trabajo de la Fundaci\u00f3n en torno a Comunidad, Atenci\u00f3n, Cura y Fortaleza Organizacional, haciendo expl\u00edcita la responsabilidad ante la comunidad. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDF_StrategicPlan_Distribution_2022.pdf\">Plan Estrat\u00e9gico de MDF 2021-2024<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/mission\/\">Misi\u00f3n de MDF<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDF-Annual-Report-FY2021.pdf\">Informe Anual de MDF 2021<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"868\" height=\"1120\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDFStrategiCPlanCoverpng.png\" class=\"attachment-full size-full wp-image-27311\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDFStrategiCPlanCoverpng.png 868w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDFStrategiCPlanCoverpng-233x300.png 233w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDFStrategiCPlanCoverpng-794x1024.png 794w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDFStrategiCPlanCoverpng-768x991.png 768w\" sizes=\"(max-width: 868px) 100vw, 868px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-27 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"800\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/9_International-DM-Awareness-Day-Logo-800px.jpg\" class=\"attachment-full size-full wp-image-13358\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/9_International-DM-Awareness-Day-Logo-800px.jpg 800w, https:\/\/myotonic.org\/wp-content\/uploads\/9_International-DM-Awareness-Day-Logo-800px-300x300.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/9_International-DM-Awareness-Day-Logo-800px-150x150.jpg 150w, https:\/\/myotonic.org\/wp-content\/uploads\/9_International-DM-Awareness-Day-Logo-800px-768x768.jpg 768w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2022<br \/>Reconocimiento nacional y financiaci\u00f3n federal r\u00e9cord para investigaci\u00f3n<\/h3><div class=\"timeline-item__card-desc\"><p>El Senado de EE. UU. reconoci\u00f3 formalmente el 15 de septiembre como D\u00eda Internacional de Concienciaci\u00f3n sobre la Distrofia Miot\u00f3nica a trav\u00e9s de la Resoluci\u00f3n del Senado 772. MDF tambi\u00e9n inform\u00f3 de un r\u00e9cord de 8,8 millones de d\u00f3lares en premios del PRMRP del gobierno de EE. UU. a investigadores de DM y lanz\u00f3 un programa de Subvenciones de Investigaci\u00f3n para Carreras Tempranas, mostrando c\u00f3mo la visibilidad, el trabajo de pol\u00edticas y la inversi\u00f3n en talento cient\u00edfico comenzaban a reforzarse mutuamente. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/get-involved\/advocate\/\">Defensa de MDF<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDF_2022-Annual-Report.pdf\">Informe Anual de MDF 2022<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/2022-mdf-annual-conference-san-diego-ca\/\">Conferencia Anual de MDF 2022<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"800\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/9_International-DM-Awareness-Day-Logo-800px.jpg\" class=\"attachment-full size-full wp-image-13358\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/9_International-DM-Awareness-Day-Logo-800px.jpg 800w, https:\/\/myotonic.org\/wp-content\/uploads\/9_International-DM-Awareness-Day-Logo-800px-300x300.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/9_International-DM-Awareness-Day-Logo-800px-150x150.jpg 150w, https:\/\/myotonic.org\/wp-content\/uploads\/9_International-DM-Awareness-Day-Logo-800px-768x768.jpg 768w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-28 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"977\" height=\"828\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-website-spanish-2024.png\" class=\"attachment-full size-full wp-image-27312\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-website-spanish-2024.png 977w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-website-spanish-2024-300x254.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-website-spanish-2024-768x651.png 768w\" sizes=\"(max-width: 977px) 100vw, 977px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2022<br \/>Ampliaci\u00f3n de recursos pr\u00e1cticos en varios idiomas<\/h3><div class=\"timeline-item__card-desc\"><p>MDF ampli\u00f3 el acceso a orientaci\u00f3n pr\u00e1ctica a trav\u00e9s de centros en espa\u00f1ol y alem\u00e1n, programas de apoyo multiling\u00fces y recursos nuevos o traducidos. Para 2024, la colecci\u00f3n inclu\u00eda orientaci\u00f3n sobre salud mental, ejercicio, salud card\u00edaca, nutrici\u00f3n, fisioterapia, anestesia y alertas m\u00e9dicas, ayudando a familias y m\u00e9dicos a utilizar informaci\u00f3n de confianza en diferentes idiomas y entornos de atenci\u00f3n. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/resources\/\">Recursos de MDF<\/a>.<\/li>\n<li><a href=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDF_Annual-Report_2023.pdf\">Informe Anual de MDF 2023<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDF_Annual-Report_2024.pdf\">Informe Anual de MDF 2024<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"977\" height=\"828\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-website-spanish-2024.png\" class=\"attachment-full size-full wp-image-27312\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-website-spanish-2024.png 977w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-website-spanish-2024-300x254.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-website-spanish-2024-768x651.png 768w\" sizes=\"(max-width: 977px) 100vw, 977px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-29 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1080\" height=\"1080\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/Research2.png\" class=\"attachment-full size-full wp-image-12336\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/Research2.png 1080w, https:\/\/myotonic.org\/wp-content\/uploads\/Research2-300x300.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/Research2-1024x1024.png 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/Research2-150x150.png 150w, https:\/\/myotonic.org\/wp-content\/uploads\/Research2-768x768.png 768w\" sizes=\"(max-width: 1080px) 100vw, 1080px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2023<br \/>Inversi\u00f3n en la pr\u00f3xima generaci\u00f3n de investigadores de DM<\/h3><div class=\"timeline-item__card-desc\"><p>Solo en 2023, MDF comprometi\u00f3 m\u00e1s de 1 mill\u00f3n de d\u00f3lares en subvenciones y becas de investigaci\u00f3n, incluido el apoyo a cinco becarios de investigaci\u00f3n y tres investigadores en fase inicial de carrera. La inversi\u00f3n avanz\u00f3 proyectos prometedores al tiempo que abordaba una necesidad estrat\u00e9gica: retener cient\u00edficos cualificados y desarrollar futuros l\u00edderes en un campo de enfermedades raras que depende de experiencia sostenida. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/mdf-board-directors-approves-over-1-million-funding-2023-research-grants-fellowships\/\">Anuncio de financiaci\u00f3n de investigaci\u00f3n 2023<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/research\/grants-and-funding\/\">Subvenciones y financiaci\u00f3n de investigaci\u00f3n de MDF<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDF_Annual-Report_2023.pdf\">Informe Anual de MDF 2023<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1080\" height=\"1080\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/Research2.png\" class=\"attachment-full size-full wp-image-12336\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/Research2.png 1080w, https:\/\/myotonic.org\/wp-content\/uploads\/Research2-300x300.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/Research2-1024x1024.png 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/Research2-150x150.png 150w, https:\/\/myotonic.org\/wp-content\/uploads\/Research2-768x768.png 768w\" sizes=\"(max-width: 1080px) 100vw, 1080px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-30 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1200\" height=\"960\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2023-Advocates-on-Steps.png\" class=\"attachment-full size-full wp-image-13123\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2023-Advocates-on-Steps.png 1200w, https:\/\/myotonic.org\/wp-content\/uploads\/2023-Advocates-on-Steps-300x240.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2023-Advocates-on-Steps-1024x819.png 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2023-Advocates-on-Steps-768x614.png 768w\" sizes=\"(max-width: 1200px) 100vw, 1200px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2023<br \/>La comunidad de DM regresa a Capitol Hill<\/h3><div class=\"timeline-item__card-desc\"><p>M\u00e1s de 130 defensores de 23 estados de EE. UU. y cinco pa\u00edses m\u00e1s participaron en el D\u00eda de Defensa de MDF de 2023. En m\u00e1s de 100 reuniones con el Congreso, aumentaron la concienciaci\u00f3n sobre la enfermedad entre los responsables pol\u00edticos, presentaron un caso espec\u00edfico para la elegibilidad continua del PRMRP y solicitaron una mayor inversi\u00f3n federal en investigaci\u00f3n sobre DM, demostrando tanto el alcance de la comunidad como la capacidad pol\u00edtica que MDF hab\u00eda construido desde 2014. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/mdf-advocates-work-secure-federal-myotonic-dystrophy-research-funding\/\">D\u00eda de Defensa 2023<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/2023-mdf-annual-conference-washington-dc\/\">Conferencia Anual de MDF 2023<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/get-involved\/advocate\/\">Defensa de MDF<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1200\" height=\"960\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2023-Advocates-on-Steps.png\" class=\"attachment-full size-full wp-image-13123\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2023-Advocates-on-Steps.png 1200w, https:\/\/myotonic.org\/wp-content\/uploads\/2023-Advocates-on-Steps-300x240.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2023-Advocates-on-Steps-1024x819.png 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2023-Advocates-on-Steps-768x614.png 768w\" sizes=\"(max-width: 1200px) 100vw, 1200px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-31 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1200\" height=\"600\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/Conf-Photo_Palo-Alto_3.png\" class=\"attachment-full size-full wp-image-25524\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/Conf-Photo_Palo-Alto_3.png 1200w, https:\/\/myotonic.org\/wp-content\/uploads\/Conf-Photo_Palo-Alto_3-300x150.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/Conf-Photo_Palo-Alto_3-1024x512.png 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/Conf-Photo_Palo-Alto_3-768x384.png 768w\" sizes=\"(max-width: 1200px) 100vw, 1200px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2024<br \/>Acercar la educaci\u00f3n al hogar<\/h3><div class=\"timeline-item__card-desc\"><p>Seis Conferencias Regionales acercaron educaci\u00f3n de confianza, experiencia cl\u00ednica, actualizaciones de investigaci\u00f3n y conexi\u00f3n entre pares a familias de todo Estados Unidos. La serie dio la bienvenida a 737 participantes, incluidas 346 personas que asist\u00edan a programaci\u00f3n de MDF por primera vez, ampliando el acceso mientras se preservaba el papel de la Conferencia como lugar de aprendizaje compartido. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDF_Annual-Report_2024.pdf\">Informe Anual de MDF 2024<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/conferences\/\">Archivo de conferencias de MDF<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1200\" height=\"600\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/Conf-Photo_Palo-Alto_3.png\" class=\"attachment-full size-full wp-image-25524\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/Conf-Photo_Palo-Alto_3.png 1200w, https:\/\/myotonic.org\/wp-content\/uploads\/Conf-Photo_Palo-Alto_3-300x150.png 300w, https:\/\/myotonic.org\/wp-content\/uploads\/Conf-Photo_Palo-Alto_3-1024x512.png 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/Conf-Photo_Palo-Alto_3-768x384.png 768w\" sizes=\"(max-width: 1200px) 100vw, 1200px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-32 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1000\" height=\"667\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/grants-and-funding-img-3.jpg\" class=\"attachment-full size-full wp-image-8196\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/grants-and-funding-img-3.jpg 1000w, https:\/\/myotonic.org\/wp-content\/uploads\/grants-and-funding-img-3-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/grants-and-funding-img-3-768x512.jpg 768w\" sizes=\"(max-width: 1000px) 100vw, 1000px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2024<br \/>Financiaci\u00f3n de investigaci\u00f3n prometedora en una etapa m\u00e1s temprana<\/h3><div class=\"timeline-item__card-desc\"><p>MDF lanz\u00f3 su Programa de Subvenciones Piloto para ayudar a los investigadores a probar ideas prometedoras y generar la evidencia temprana necesaria para competir por premios m\u00e1s grandes. Junto con becas, premios para Carreras Tempranas y subvenciones de alta prioridad, el programa ampli\u00f3 la cartera de investigaci\u00f3n de MDF mientras la Fundaci\u00f3n invert\u00eda 1,7 millones de d\u00f3lares en programas de investigaci\u00f3n ese a\u00f1o. <\/p>\n<ul>\n<li style=\"list-style-type: none\">\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDF_Annual-Report_2024.pdf\">Informe Anual de MDF 2024<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/myotonic-dystrophy-foundation-mdf-launches-new-funding-resource-researchers-pilot-grants-program\/\">Programa de Subvenciones Piloto de MDF<\/a><\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p>\u00a0<\/p><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1000\" height=\"667\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/grants-and-funding-img-3.jpg\" class=\"attachment-full size-full wp-image-8196\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/grants-and-funding-img-3.jpg 1000w, https:\/\/myotonic.org\/wp-content\/uploads\/grants-and-funding-img-3-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/grants-and-funding-img-3-768x512.jpg 768w\" sizes=\"(max-width: 1000px) 100vw, 1000px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-33 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1920\" height=\"2504\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDF_2025_Annual-Report-thumbnail.gif\" class=\"attachment-full size-full wp-image-26340\" alt=\"\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2025<br \/>El apoyo directo crece a medida que m\u00e1s tratamientos llegan a ensayos<\/h3><div class=\"timeline-item__card-desc\"><p>Los grupos de apoyo de MDF dieron la bienvenida a 2.394 participantes, la L\u00ednea de Apoyo con personal profesional proporcion\u00f3 m\u00e1s de 800 interacciones individuales, y los recursos comunitarios se descargaron m\u00e1s de 100.000 veces. MDF tambi\u00e9n invirti\u00f3 m\u00e1s de 1,5 millones de d\u00f3lares en investigaci\u00f3n mientras 11 tratamientos potenciales avanzaban a trav\u00e9s de ensayos cl\u00ednicos, mostrando una capacidad creciente para apoyar la vida con DM hoy mientras se persiguen tratamientos futuros. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/support\/request-warmline-support\/\">Solicite apoyo de la L\u00ednea de Apoyo<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/support\/support-groups\/\">Grupos de apoyo de la MDF<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/resources\/drug-development-pipeline\/\">Pipeline de desarrollo de f\u00e1rmacos de MDF<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDF_2025_Annual-Report.pdf\">Informe Anual de MDF 2025<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/over-700-people-attend-2025-mdf-conference\/\">Conferencia de MDF 2025<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"1920\" height=\"2504\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/MDF_2025_Annual-Report-thumbnail.gif\" class=\"attachment-full size-full wp-image-26340\" alt=\"\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-34 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/mdf_montreal-21-scaled.jpg\" class=\"attachment-full size-full wp-image-27313\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/mdf_montreal-21-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/mdf_montreal-21-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/mdf_montreal-21-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/mdf_montreal-21-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/mdf_montreal-21-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/mdf_montreal-21-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2026<br \/>Educaci\u00f3n local y colaboraci\u00f3n global en investigaci\u00f3n<\/h3><div class=\"timeline-item__card-desc\"><p>Cuatro Conferencias Regionales culminaron en Montreal, Canad\u00e1, inmediatamente despu\u00e9s del IDMC-15, donde MDF y Muscular Dystrophy Canada colaboraron para facilitar el intercambio cient\u00edfico internacional con educaci\u00f3n comunitaria pr\u00e1ctica a trav\u00e9s de fronteras. MDF tambi\u00e9n aprob\u00f3 m\u00e1s de 1.000.000 de d\u00f3lares para siete becas, dos premios para Carreras Tempranas y un proyecto de alta prioridad, sosteniendo tanto la nueva investigaci\u00f3n como las personas que la llevar\u00e1n adelante. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/events\/2026-regional-conference\/\">Conferencias regionales MDF 2026<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/2026-mdf-and-mdc-regional-conference-in-montreal-canada\/\">Conferencia de Montreal 2026<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/events\/idmc-15-international-myotonic-dystrophy-consortium\/\">IDMC-15<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/mdf-invests-myotonic-dystrophy-research-and-emerging-scientists\/\">Inversi\u00f3n en investigaci\u00f3n 2026<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/mdf_montreal-21-scaled.jpg\" class=\"attachment-full size-full wp-image-27313\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/mdf_montreal-21-scaled.jpg 2560w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/mdf_montreal-21-scaled-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/mdf_montreal-21-scaled-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/mdf_montreal-21-scaled-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/mdf_montreal-21-scaled-1536x1024.jpg 1536w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/mdf_montreal-21-scaled-2048x1366.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/div><\/div><\/div><div class=\"jet-timeline-item  elementor-repeater-item-5896881-35 jet-timeline-item--image-outside_after\">\n\t<div class=\"timeline-item__card\">\n\t\t<div class=\"timeline-item__card-inner\">\n\t\t\t\t<div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"981\" height=\"747\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-website-2026.png\" class=\"attachment-full size-full wp-image-27314\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-website-2026.png 981w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-website-2026-300x228.png 300w\" sizes=\"(max-width: 981px) 100vw, 981px\" \/><\/div>\t\t\t\t<div class=\"timeline-item__card-content\">\n\t\t\t\t\t<div class=\"timeline-item__meta\"><\/div><h3 class=\"timeline-item__card-title\">2026<br \/>Hacer que la informaci\u00f3n de confianza sea m\u00e1s f\u00e1cil de encontrar y usar<\/h3><div class=\"timeline-item__card-desc\"><p>Guiada por los comentarios de la comunidad, MDF revis\u00f3 myotonic.org en 2026 para hacer que la informaci\u00f3n, programas y recursos de confianza fueran m\u00e1s f\u00e1ciles de encontrar y usar. V\u00edas m\u00e1s claras ahora ayudan a las personas que viven con DM, familias reci\u00e9n diagnosticadas, cuidadores, profesionales sanitarios, investigadores y partidarios a acceder a la informaci\u00f3n y el apoyo m\u00e1s relevantes para ellos. <\/p>\n<ul>\n<li><a href=\"https:\/\/myotonic.org\/support\/\">Encuentre apoyo<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/resources\/\">Recursos de MDF<\/a><\/li>\n<li><a href=\"https:\/\/myotonic.org\/digital-academy\/\">Academia Digital de MDF<\/a><\/li>\n<\/ul><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"timeline-item__card-arrow\"><\/div>\n\t<\/div>\n\t<div class=\"timeline-item__point\"><div class=\"timeline-item__point-content timeline-item__point-content--icon\"><span class=\"jet-elements-icon\"><i aria-hidden=\"true\" class=\"mdf-custom-icon my-custom-icon-mdfrecord-button\"><\/i><\/span><\/div><\/div><div class=\"timeline-item__meta\"><div class=\"timeline-item__card-img\"><img loading=\"lazy\" decoding=\"async\" width=\"981\" height=\"747\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-website-2026.png\" class=\"attachment-full size-full wp-image-27314\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-website-2026.png 981w, https:\/\/myotonic.org\/wp-content\/uploads\/2026\/08\/MDF-website-2026-300x228.png 300w\" sizes=\"(max-width: 981px) 100vw, 981px\" \/><\/div><\/div><\/div><\/div><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-bf862ee e-flex e-con-boxed e-con e-parent\" data-id=\"bf862ee\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-403140d e-con-full e-flex e-con e-child\" data-id=\"403140d\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-07650ec elementor-widget-tablet__width-initial elementor-widget elementor-widget-image\" data-id=\"07650ec\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/mr66givry2-staging.onrocket.site\/wp-content\/uploads\/Spanish-Speaker-Group.jpg\" title=\"\" alt=\"\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-5b17199 e-con-full e-flex e-con e-child\" data-id=\"5b17199\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-b72c401 elementor-widget__width-initial elementor-widget elementor-widget-heading\" data-id=\"b72c401\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Nuestra historia contin\u00faa<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6add548 elementor-widget-tablet__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"6add548\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>A lo largo de casi dos d\u00e9cadas, MDF ha construido y administrado las relaciones, el conocimiento, la infraestructura y el apoyo p\u00fablico que el progreso en una enfermedad rara requiere. Lo que ha permanecido constante es nuestra responsabilidad hacia las personas y familias afectadas por la distrofia miot\u00f3nica y hacia los donantes, voluntarios, investigadores, m\u00e9dicos y socios que hacen posible este trabajo. <\/p><p>Cada etapa ha ampliado lo que la comunidad de DM puede esperar: apoyo de confianza y atenci\u00f3n m\u00e1s segura hoy, una voz m\u00e1s fuerte en las decisiones que dan forma a la investigaci\u00f3n y las pol\u00edticas, y un camino mejor preparado hacia tratamientos y una cura. MDF contin\u00faa ese trabajo con una comunidad global cada vez m\u00e1s conectada y un campo creciente de investigaci\u00f3n y desarrollo de f\u00e1rmacos. <\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-8d67767 e-con-full e-flex e-con e-child\" data-id=\"8d67767\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-e2806dc elementor-widget elementor-widget-button\" data-id=\"e2806dc\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/myotonic.org\/es\/nuestro-impacto\/\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Conozca nuestro impacto<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-d104401 elementor-widget elementor-widget-button\" data-id=\"d104401\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/myotonic.org\/es\/involucrate\/\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Invol\u00facrese con MDF<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-33802a73 e-con-full e-flex e-con e-parent\" data-id=\"33802a73\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-11b2f721 elementor-widget elementor-widget-template\" data-id=\"11b2f721\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"template.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-template\">\n\t\t\t\t\t<div data-elementor-type=\"container\" data-elementor-id=\"21920\" class=\"elementor elementor-21920 elementor-9327 elementor-9327\" data-elementor-post-type=\"elementor_library\">\n\t\t\t\t<div class=\"elementor-element elementor-element-4da26a03 e-flex e-con-boxed e-con e-parent\" data-id=\"4da26a03\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-7c7106fb elementor-widget elementor-widget-heading\" data-id=\"7c7106fb\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">\u00danase a nosotros para marcar la diferencia<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-1761fd93 e-con-full e-flex e-con e-child\" data-id=\"1761fd93\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t<a class=\"elementor-element elementor-element-2ecd0645 e-con-full e-flex e-con e-child\" data-id=\"2ecd0645\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;jet_parallax_layout_list&quot;:[]}\" href=\"https:\/\/myotonic.org\/get-involved\/advocate\/\">\n\t\t<div class=\"elementor-element elementor-element-52a30c89 e-con-full e-flex e-con e-child\" data-id=\"52a30c89\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-5360b2a6 elementor-widget elementor-widget-heading\" data-id=\"5360b2a6\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Abogue<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-34f989c4 elementor-widget elementor-widget-heading\" data-id=\"34f989c4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\">Ayude a impulsar cambios en las pol\u00edticas y a acelerar el progreso para las personas que viven con DM.<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-29d67350 elementor-widget elementor-widget-image\" data-id=\"29d67350\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"534\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/advocate-img-1024x683.jpg\" class=\"attachment-large size-large wp-image-20979\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/advocate-img-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/advocate-img-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/advocate-img-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/advocate-img.jpg 1300w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/a>\n\t\t<a class=\"elementor-element elementor-element-2486fb71 e-con-full e-flex e-con e-child\" data-id=\"2486fb71\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;jet_parallax_layout_list&quot;:[]}\" href=\"https:\/\/myotonic.org\/get-involved\/fundraise\/\">\n\t\t<div class=\"elementor-element elementor-element-396ded59 e-con-full e-flex e-con e-child\" data-id=\"396ded59\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-290f4cc elementor-widget elementor-widget-heading\" data-id=\"290f4cc\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Recaude fondos<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6f7d9f2e elementor-widget elementor-widget-heading\" data-id=\"6f7d9f2e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\">Movilice a su comunidad para apoyar recursos vitales e investigaciones que cambian vidas.<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-61b60249 elementor-widget elementor-widget-image\" data-id=\"61b60249\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"534\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/fundraise-img-1024x683.jpg\" class=\"attachment-large size-large wp-image-20980\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/fundraise-img-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/fundraise-img-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/fundraise-img-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/fundraise-img.jpg 1300w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/a>\n\t\t<a class=\"elementor-element elementor-element-4e985d8c e-con-full e-flex e-con e-child\" data-id=\"4e985d8c\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;jet_parallax_layout_list&quot;:[]}\" href=\"https:\/\/myotonic.org\/get-involved\/volunteer\/\">\n\t\t<div class=\"elementor-element elementor-element-53a424cc e-con-full e-flex e-con e-child\" data-id=\"53a424cc\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-43553be6 elementor-widget elementor-widget-heading\" data-id=\"43553be6\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Voluntario<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-7d78d57c elementor-widget elementor-widget-heading\" data-id=\"7d78d57c\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\">\u00danase a nuestro equipo de voluntarios, que aporta conexi\u00f3n y apoyo a la comunidad.<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5187d97a elementor-widget elementor-widget-image\" data-id=\"5187d97a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"534\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/volenteer-img-1024x683.jpg\" class=\"attachment-large size-large wp-image-20981\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/volenteer-img-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/volenteer-img-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/volenteer-img-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/volenteer-img.jpg 1300w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Historia de la fundaci\u00f3n Fortalecer la comunidad de la DM mediante el apoyo, la atenci\u00f3n, la defensa y la investigaci\u00f3n, acerc\u00e1ndonos a tratamientos y a una cura. Despl\u00e1zate hacia abajo para obtener m\u00e1s informaci\u00f3n. Comunidad, Cuidado y una Cura La Myotonic Dystrophy Foundation (MDF) se fund\u00f3 en California en 2007 como organizaci\u00f3n sin \u00e1nimo de [&hellip;]<\/p>\n","protected":false},"author":7,"featured_media":0,"parent":0,"menu_order":21,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-27343","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/pages\/27343","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/users\/7"}],"replies":[{"embeddable":true,"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/comments?post=27343"}],"version-history":[{"count":0,"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/pages\/27343\/revisions"}],"wp:attachment":[{"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/media?parent=27343"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}