{"id":13523,"date":"2022-01-20T11:31:32","date_gmt":"2022-01-20T19:31:32","guid":{"rendered":"https:\/\/mr66givry2.onrocket.site\/?p=13523"},"modified":"2026-02-17T14:06:29","modified_gmt":"2026-02-17T22:06:29","slug":"mark-your-calendar-mdfs-major-events-2022","status":"publish","type":"post","link":"https:\/\/myotonic.org\/es\/mark-your-calendar-mdfs-major-events-2022\/","title":{"rendered":"Mark your Calendar for MDF’s Major Events in 2022!"},"content":{"rendered":"
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MDF is off to an exciting start to 2022! We hope you can join us for our annual community wide events! Save the dates and learn more about each event below.<\/div>\n<\/div>\n
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Rare Disease Day<\/h2>\n

Join us on\u00a0February 28th<\/strong>\u00a0to make myotonic dystrophy\u00a0one of the most prominent disease voices raised during Rare Disease Month!\u00a0Rare Disease Day<\/a>\u00a0is a worldwide event designed to improve the lives of millions of people living with rare diseases by raising awareness among policy makers, the scientific community and the general public. It was launched in 2008 by\u00a0EURODIS<\/a>\u00a0and takes place on the last day of February each year in more than 65 nations. The U.S. program is led by\u00a0NORD<\/a>.<\/p>\n

Learn more about DM focused Rare Disese Day events as they become available.<\/a><\/p>\n

International Myotonic Dystrophy Family Day<\/h2>\n

Celebrate with your extended DM family on\u00a0July 23rd<\/strong>!\u00a0Originally created in 2016 by\u00a0Cure DM Myotonic Dystrophy UK<\/a>, DM\u00a0Family Day is for the community to come together in support on one another for a day of fun, to share stories and experiences within groups, and to connect with\u00a0others and feel the power of being a part of of something bigger.<\/p>\n

Check back to the MDF Calendar for more International DM Family Day updates as they become available.<\/a><\/p>\n

MDF Annual Conference<\/h2>\n

Mark your calendars for\u00a0September 9th & 10th<\/strong>\u00a0for the 2022\u00a0Myotonic Dystrophy Foundation\u00a0Annual Conference! We hope you can join us at\u00a0Paradise Point<\/a>\u00a0in\u00a0San Diego, CA.\u00a0This year’s conference will include sessions exploring symptom management, research and drug development, updates from the Foundation, and more!<\/p>\n

Learn more about the 2022 MDF Annual Conference page for updates as they become available.<\/a><\/p>\n

International Myotonic Dystrophy Awareness Day<\/h2>\n

Celebrate\u00a0September 15th<\/strong>\u00a0and help change the future of myotonic dystrophy!\u00a0In 2021, a Global Alliance of over 50 myotonic dystrophy-focused organizations\u00a0united to declare September 15th\u00a0International Myotonic Dystrophy Awareness Day. The day\u00a0aims to garner the attention of the wider general public, policy makers, regulators, biopharmaceutical representatives, researchers, health care professionals, and anyone with an interest in changing the future of myotonic dystrophy.<\/p>\n

Get inspired and check out all the ways our amazing community got involved in 2021!<\/a><\/p>\n

If you are a group, organization, hospital, academic institution or company interested in officially joining the Global Alliance to raise awareness of myotonic dystrophy and would like to add your name and logo to the team,\u00a0please complete this form.<\/a><\/p>\n

MDF Gala<\/h2>\n

We hope you can join us on\u00a0October 20th<\/strong>\u00a0to celebrate and help raise funds for the Myotonic Dystrophy Foundation’s critically-important work on behalf of individuals and families living with myotonic dystrophy. We are thrilled to announce the event will be held at\u00a0Sony Hall<\/a>, a one-of-a-kind concert hall located in the heart of New York City. Everyone is welcome so mark your calendar for 2022\u00a0MDF\u00a0Gala!<\/p>\n

Check the 2022 MDF Gala page for updates as they become available.<\/a><\/p>\n

Find All Our Events on the\u00a0MDF Calendar!<\/h2>\n

Every day new events and support opportunities are being created for the myotonic dystrophy community!<\/p>\n

Find latest details on all our upcoming events on the MDF Calendar.<\/a><\/p>\n

Questions?<\/strong>\u00a0Contact us at\u00a0info@myotonic.org<\/a>\u00a0or phone us at\u00a0415-800-7777.<\/p>\n<\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

MDF is off to an exciting start to 2022! We hope you can join us for our annual community wide events! Save the dates and learn more about each event below. Rare Disease Day Join us on\u00a0February 28th\u00a0to make myotonic dystrophy\u00a0one of the most prominent disease voices raised during Rare Disease Month!\u00a0Rare Disease Day\u00a0is a […]<\/p>\n","protected":false},"author":9,"featured_media":18874,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[161],"tags":[231],"class_list":["post-13523","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-non-classe","tag-conference"],"_links":{"self":[{"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/posts\/13523","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/users\/9"}],"replies":[{"embeddable":true,"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/comments?post=13523"}],"version-history":[{"count":0,"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/posts\/13523\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/media\/18874"}],"wp:attachment":[{"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/media?parent=13523"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/categories?post=13523"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/myotonic.org\/es\/wp-json\/wp\/v2\/tags?post=13523"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}