{"id":21062,"date":"2025-12-16T15:52:50","date_gmt":"2025-12-16T23:52:50","guid":{"rendered":"https:\/\/mr66givry2.onrocket.site\/registre-familial\/"},"modified":"2026-03-25T11:22:42","modified_gmt":"2026-03-25T18:22:42","slug":"registre-familial","status":"publish","type":"page","link":"https:\/\/myotonic.org\/fr\/simpliquer\/registre-familial\/","title":{"rendered":"Registre familial"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"21062\" class=\"elementor elementor-21062 elementor-9738\" data-elementor-post-type=\"page\">\n\t\t\t\t<div class=\"elementor-element elementor-element-294dad1 e-flex e-con-boxed e-con e-parent\" data-id=\"294dad1\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-a32dd8f e-con-full e-flex e-con e-child\" data-id=\"a32dd8f\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-8e68f60 elementor-align-left elementor-mobile-align-center elementor-widget elementor-widget-breadcrumbs\" data-id=\"8e68f60\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"breadcrumbs.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<nav><\/nav>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-ba529f2 elementor-widget-laptop__width-initial elementor-widget__width-initial elementor-widget elementor-widget-heading\" data-id=\"ba529f2\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">Rejoignez le registre familial de la dystrophie myotonique<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2e3d443 elementor-widget-laptop__width-initial elementor-widget elementor-widget-heading\" data-id=\"2e3d443\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\">Am\u00e9liorez la compr\u00e9hension de la dystrophie myotonique (DM) et la vie des personnes atteintes de DM en rejoignant le Registre familial de la dystrophie myotonique (MDFR).<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-de0d2b0 e-con-full e-flex e-con e-child\" data-id=\"de0d2b0\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-b648a04 elementor-widget elementor-widget-button\" data-id=\"b648a04\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/myotonicregistry.patientcrossroads.org\/component\/comprofiler\/registers.html\" target=\"_blank\" rel=\"noopener\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-external-link-alt\" viewBox=\"0 0 512 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M432,320H400a16,16,0,0,0-16,16V448H64V128H208a16,16,0,0,0,16-16V80a16,16,0,0,0-16-16H48A48,48,0,0,0,0,112V464a48,48,0,0,0,48,48H400a48,48,0,0,0,48-48V336A16,16,0,0,0,432,320ZM488,0h-128c-21.37,0-32.05,25.91-17,41l35.73,35.73L135,320.37a24,24,0,0,0,0,34L157.67,377a24,24,0,0,0,34,0L435.28,133.32,471,169c15,15,41,4.5,41-17V24A24,24,0,0,0,488,0Z\"><\/path><\/svg>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Rejoindre le registre<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-53b3824 elementor-widget elementor-widget-button\" data-id=\"53b3824\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/myotonicregistry.patientcrossroads.org\/login.html\" target=\"_blank\" rel=\"noopener\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-external-link-alt\" viewBox=\"0 0 512 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M432,320H400a16,16,0,0,0-16,16V448H64V128H208a16,16,0,0,0,16-16V80a16,16,0,0,0-16-16H48A48,48,0,0,0,0,112V464a48,48,0,0,0,48,48H400a48,48,0,0,0,48-48V336A16,16,0,0,0,432,320ZM488,0h-128c-21.37,0-32.05,25.91-17,41l35.73,35.73L135,320.37a24,24,0,0,0,0,34L157.67,377a24,24,0,0,0,34,0L435.28,133.32,471,169c15,15,41,4.5,41-17V24A24,24,0,0,0,488,0Z\"><\/path><\/svg>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Connectez-vous \u00e0 votre compte<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-6eaa23e e-con-full e-flex e-con e-child\" data-id=\"6eaa23e\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-1664619 elementor-widget-tablet__width-initial elementor-widget elementor-widget-image\" data-id=\"1664619\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"800\" height=\"534\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-featured-1024x683.jpg\" class=\"attachment-large size-large wp-image-21067\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-featured-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-featured-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-featured-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-featured.jpg 1300w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-1ce8ae6 e-flex e-con-boxed e-con e-parent\" data-id=\"1ce8ae6\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-47fae5e e-con-full e-flex e-con e-child\" data-id=\"47fae5e\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-ae7931e elementor-widget-tablet__width-initial elementor-widget elementor-widget-image\" data-id=\"ae7931e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"800\" height=\"534\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-img-1024x683.jpg\" class=\"attachment-large size-large wp-image-21064\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-img-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-img-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-img-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-img.jpg 1300w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-cbe4a64 e-con-full e-flex e-con e-child\" data-id=\"cbe4a64\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-47ce344 elementor-widget elementor-widget-heading\" data-id=\"47ce344\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Rejoignez le registre familial !<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-8a19040 elementor-widget-tablet__width-initial elementor-widget elementor-widget-heading\" data-id=\"8a19040\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\">Le Registre familial de la dystrophie myotonique est unique en ce sens qu'il aide non seulement les chercheurs \u00e0 trouver de nouveaux traitements efficaces et \u00e0 identifier des participants potentiels pour les essais cliniques et les \u00e9tudes de recherche \u00e0 venir, mais permet \u00e9galement \u00e0 toute personne inscrite d'acc\u00e9der aux donn\u00e9es anonymes, y compris les personnes et les familles vivant avec la DM. Le Registre offre \u00e0 toutes les parties prenantes de la DM, des chercheurs et partenaires pharmaceutiques aux membres des familles, une meilleure compr\u00e9hension de la maladie, de la communaut\u00e9 DM et des efforts actuels de recherche et de plaidoyer. <\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-f44069b e-flex e-con-boxed e-con e-parent\" data-id=\"f44069b\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-9e8a8bb e-con-full e-flex e-con e-child\" data-id=\"9e8a8bb\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-89ab13c elementor-widget-laptop__width-initial elementor-widget elementor-widget-heading\" data-id=\"89ab13c\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Votre participation aide les chercheurs<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-7b4d48d elementor-widget-tablet__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"7b4d48d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>En rejoignant le Registre familial de la dystrophie myotonique, vous aiderez les chercheurs, les entreprises pharmaceutiques et d&rsquo;autres professionnels qui cherchent \u00e0 :<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-da39fc0 elementor-mobile-align-center elementor-icon-list--layout-traditional elementor-list-item-link-full_width elementor-widget elementor-widget-icon-list\" data-id=\"da39fc0\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon-list.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<ul class=\"elementor-icon-list-items\">\n\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">Identifier des participants pour les essais cliniques et les \u00e9tudes de recherche<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">D\u00e9velopper de nouveaux traitements efficaces pour les personnes vivant avec la DM<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">Plaider au nom de la communaut\u00e9 DM aupr\u00e8s des d\u00e9cideurs \u00e0 Washington, D.C. et ailleurs<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t<\/ul>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2083fad elementor-widget elementor-widget-button\" data-id=\"2083fad\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/myotonic.org\/wp-content\/uploads\/2025-05_MDFR-Research-Poster.pdf\" target=\"_blank\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-file-pdf\" viewBox=\"0 0 384 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M181.9 256.1c-5-16-4.9-46.9-2-46.9 8.4 0 7.6 36.9 2 46.9zm-1.7 47.2c-7.7 20.2-17.3 43.3-28.4 62.7 18.3-7 39-17.2 62.9-21.9-12.7-9.6-24.9-23.4-34.5-40.8zM86.1 428.1c0 .8 13.2-5.4 34.9-40.2-6.7 6.3-29.1 24.5-34.9 40.2zM248 160h136v328c0 13.3-10.7 24-24 24H24c-13.3 0-24-10.7-24-24V24C0 10.7 10.7 0 24 0h200v136c0 13.2 10.8 24 24 24zm-8 171.8c-20-12.2-33.3-29-42.7-53.8 4.5-18.5 11.6-46.6 6.2-64.2-4.7-29.4-42.4-26.5-47.8-6.8-5 18.3-.4 44.1 8.1 77-11.6 27.6-28.7 64.6-40.8 85.8-.1 0-.1.1-.2.1-27.1 13.9-73.6 44.5-54.5 68 5.6 6.9 16 10 21.5 10 17.9 0 35.7-18 61.1-61.8 25.8-8.5 54.1-19.1 79-23.2 21.7 11.8 47.1 19.5 64 19.5 29.2 0 31.2-32 19.7-43.4-13.9-13.6-54.3-9.7-73.6-7.2zM377 105L279 7c-4.5-4.5-10.6-7-17-7h-6v128h128v-6.1c0-6.3-2.5-12.4-7-16.9zm-74.1 255.3c4.1-2.7-2.5-11.9-42.8-9 37.1 15.8 42.8 9 42.8 9z\"><\/path><\/svg>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Constatez votre impact<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-f526c80 e-con-full e-flex e-con e-child\" data-id=\"f526c80\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-acda584 elementor-widget-tablet__width-initial elementor-widget elementor-widget-image\" data-id=\"acda584\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"800\" height=\"534\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/researcher-family-registry-1024x683.jpg\" class=\"attachment-large size-large wp-image-21063\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/researcher-family-registry-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/researcher-family-registry-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/researcher-family-registry-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/researcher-family-registry.jpg 1300w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-44e6fad e-flex e-con-boxed e-con e-parent\" data-id=\"44e6fad\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-b1126d1 e-con-full e-flex e-con e-child\" data-id=\"b1126d1\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-4aaedcf elementor-widget-tablet__width-initial elementor-widget elementor-widget-image\" data-id=\"4aaedcf\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"534\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-2-1024x683.jpg\" class=\"attachment-large size-large wp-image-21065\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-2-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-2-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-2-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/join-the-registry-2.jpg 1300w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-25f1cc1 e-con-full e-flex e-con e-child\" data-id=\"25f1cc1\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-203c8e8 elementor-widget-laptop__width-initial elementor-widget__width-initial elementor-widget elementor-widget-heading\" data-id=\"203c8e8\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Apprenez-en davantage sur la DM et sa communaut\u00e9<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-bccdcd7 elementor-widget-tablet__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"bccdcd7\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Parce que vous aurez acc\u00e8s aux informations d\u00e9personnalis\u00e9es du Registre, vous pourrez en apprendre davantage sur la DM, sur la mani\u00e8re dont elle est v\u00e9cue par d&rsquo;autres membres de la communaut\u00e9 et sur ce \u00e0 quoi ressemble la communaut\u00e9 au sens large. Cela comprend : <\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e1c4155 elementor-mobile-align-center elementor-icon-list--layout-traditional elementor-list-item-link-full_width elementor-widget elementor-widget-icon-list\" data-id=\"e1c4155\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon-list.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<ul class=\"elementor-icon-list-items\">\n\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">Des informations concernant les essais cliniques et les \u00e9tudes pour lesquels vous ou les membres de votre famille pourriez \u00eatre \u00e9ligibles<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">O\u00f9 se trouvent les participants au Registre<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">Quels sympt\u00f4mes sont les plus et les moins r\u00e9pandus<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">Comment la DM a affect\u00e9 d'autres familles vivant avec cette maladie<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t<\/ul>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-ce1bbfe e-flex e-con-boxed e-con e-parent\" data-id=\"ce1bbfe\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-292c4a4 e-con-full e-flex e-con e-child\" data-id=\"292c4a4\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-c6bc9b0 elementor-widget-laptop__width-initial elementor-widget-tablet__width-initial elementor-widget__width-initial elementor-widget elementor-widget-heading\" data-id=\"c6bc9b0\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">C'est enti\u00e8rement anonyme<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-68813b0 elementor-widget-tablet__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"68813b0\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Votre participation est volontaire et vos informations personnelles seront gard\u00e9es enti\u00e8rement confidentielles. Vous pouvez vous retirer du Registre \u00e0 tout moment et toutes les donn\u00e9es que vous fournissez seront enti\u00e8rement d\u00e9personnalis\u00e9es (anonymes). Cela signifie que si vous \u00eates potentiellement \u00e9ligible pour un essai clinique ou une \u00e9tude de recherche sur la base de vos donn\u00e9es du Registre, les chercheurs nous contacteront d&rsquo;abord. Nous assurerons le suivi avec vous et, si vous souhaitez en savoir plus, nous vous mettrons en relation avec l&rsquo;organisme de recherche int\u00e9ress\u00e9. Vous ne serez jamais contact\u00e9 par quiconque d&rsquo;autre que le personnel du Registre.    <\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-63a71c7 e-con-full e-flex e-con e-child\" data-id=\"63a71c7\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-6ff9f58 elementor-widget-tablet__width-initial elementor-widget elementor-widget-image\" data-id=\"6ff9f58\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"534\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/anonmous-family-registry-concept-1-1024x683.jpg\" class=\"attachment-large size-large wp-image-21066\" alt=\"\" srcset=\"https:\/\/myotonic.org\/wp-content\/uploads\/anonmous-family-registry-concept-1-1024x683.jpg 1024w, https:\/\/myotonic.org\/wp-content\/uploads\/anonmous-family-registry-concept-1-300x200.jpg 300w, https:\/\/myotonic.org\/wp-content\/uploads\/anonmous-family-registry-concept-1-768x512.jpg 768w, https:\/\/myotonic.org\/wp-content\/uploads\/anonmous-family-registry-concept-1.jpg 1300w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-0a25e2c e-flex e-con-boxed e-con e-parent\" data-id=\"0a25e2c\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-d774659 e-con-full e-flex e-con e-child\" data-id=\"d774659\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-058665c e-con-full e-flex e-con e-child\" data-id=\"058665c\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-37ae55a elementor-widget-laptop__width-initial elementor-widget__width-initial elementor-widget elementor-widget-heading\" data-id=\"37ae55a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Partagez la nouvelle<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-16bac56 elementor-widget elementor-widget-button\" data-id=\"16bac56\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/myotonicregistry.patientcrossroads.org\/component\/comprofiler\/registers.html\" target=\"_blank\" rel=\"noopener\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-external-link-alt\" viewBox=\"0 0 512 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M432,320H400a16,16,0,0,0-16,16V448H64V128H208a16,16,0,0,0,16-16V80a16,16,0,0,0-16-16H48A48,48,0,0,0,0,112V464a48,48,0,0,0,48,48H400a48,48,0,0,0,48-48V336A16,16,0,0,0,432,320ZM488,0h-128c-21.37,0-32.05,25.91-17,41l35.73,35.73L135,320.37a24,24,0,0,0,0,34L157.67,377a24,24,0,0,0,34,0L435.28,133.32,471,169c15,15,41,4.5,41-17V24A24,24,0,0,0,488,0Z\"><\/path><\/svg>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Rejoindre le registre<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5ee0cd7 elementor-widget-laptop__width-initial elementor-widget__width-initial elementor-widget elementor-widget-heading\" data-id=\"5ee0cd7\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\">Plus nous avons de participants et de donn\u00e9es dans le Registre, plus son impact est important, et la taille est d'une importance cruciale pour soutenir le recrutement d'essais cliniques et d'\u00e9tudes de recherche. Veuillez partager notre actualit\u00e9 avec d'autres membres de la communaut\u00e9 DM et aidez-nous \u00e0 continuer de constituer une base de donn\u00e9es vaste et riche qui contribuera \u00e0 acc\u00e9l\u00e9rer les efforts visant \u00e0 traiter et \u00e0 gu\u00e9rir les caract\u00e9ristiques de cette maladie. <\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Rejoignez le registre familial de la dystrophie myotonique Am\u00e9liorez la compr\u00e9hension de la dystrophie myotonique (DM) et la vie des personnes atteintes de DM en rejoignant le Registre familial de la dystrophie myotonique (MDFR). Rejoindre le registre Connectez-vous \u00e0 votre compte Rejoignez le registre familial ! Le Registre familial de la dystrophie myotonique est unique [&hellip;]<\/p>\n","protected":false},"author":7,"featured_media":0,"parent":21832,"menu_order":47,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-21062","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/myotonic.org\/fr\/wp-json\/wp\/v2\/pages\/21062","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/myotonic.org\/fr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/myotonic.org\/fr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/myotonic.org\/fr\/wp-json\/wp\/v2\/users\/7"}],"replies":[{"embeddable":true,"href":"https:\/\/myotonic.org\/fr\/wp-json\/wp\/v2\/comments?post=21062"}],"version-history":[{"count":0,"href":"https:\/\/myotonic.org\/fr\/wp-json\/wp\/v2\/pages\/21062\/revisions"}],"up":[{"embeddable":true,"href":"https:\/\/myotonic.org\/fr\/wp-json\/wp\/v2\/pages\/21832"}],"wp:attachment":[{"href":"https:\/\/myotonic.org\/fr\/wp-json\/wp\/v2\/media?parent=21062"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}