{"id":12822,"date":"2024-05-20T02:14:56","date_gmt":"2024-05-20T09:14:56","guid":{"rendered":"https:\/\/mr66givry2.onrocket.site\/?p=12822"},"modified":"2025-12-31T02:16:01","modified_gmt":"2025-12-31T10:16:01","slug":"welcome-lucie-shiffman-senior-manager-community-engagement","status":"publish","type":"post","link":"https:\/\/myotonic.org\/fr\/welcome-lucie-shiffman-senior-manager-community-engagement\/","title":{"rendered":"Welcome Lucie Shiffman, Senior Manager of Community Engagement"},"content":{"rendered":"<div>\n<div class=\"date-of-publication\"><img fetchpriority=\"high\" decoding=\"async\" class=\"\" src=\"https:\/\/myotonic.org\/wp-content\/uploads\/lucie-s_headshot.png\" width=\"391\" height=\"489\" data-entity-uuid=\"6cbb4e1d-5dd9-4331-9810-26859b7868fd\" data-entity-type=\"file\" \/><\/div>\n<\/div>\n<div>\n<div class=\"clearfix text-formatted field field--name-body field--type-text-with-summary field--label-hidden field__item\">\n<p><strong>The Myotonic Dystrophy Foundation is pleased to welcome Lucie Shiffman as our new Senior Manager of Community Engagement!<\/strong><\/p>\n<div class=\"callout-left full\">\n<p>\u00ab\u00a0We are absolutely overjoyed to bring Lucie onto the MDF Programs team! Along with Lucie\u2019s impressive background and skillset, her empathetic and joyful nature make her the perfect fit for serving the myotonic dystrophy community as our Senior Manager of Community Engagement.\u00a0\u00bb &#8211; MDF&rsquo;s Director of Programs,\u00a0<a href=\"https:\/\/www.myotonic.org\/mindy-buchanan\">Mindy\u00a0Buchanan<\/a><\/p>\n<\/div>\n<p>Committed to ensuring community voices are heard, Lucie brings with her a great enthusiasm for community engagement and care to this role. Lucie studied at Allegheny College where she obtained her Bachelor of Science in Environmental Studies and a Bachelor of Arts in Psychology. She has served in the US Peace Corps and as a Senior Program Manager at Repair the World, an organization focused on social justice in Cleveland, Ohio.<\/p>\n<p>Her professional background has provided her with invaluable experience in organizing events, coaching volunteers, and developing strategies to meet the needs of a group. In her personal life, she has assisted family and friends living with chronic illness in navigating the healthcare system and obtaining care. Lucie is intrinsically motivated by the belief in a future where people feel supported and empowered. Upon seeing\u00a0<a href=\"https:\/\/www.myotonic.org\/myotonic-dystrophy-foundation-mission\">MDF\u2019s mission<\/a>\u00a0centered on Community, Care, and a Cure, she felt compelled to uplift the work of the Foundation.<\/p>\n<p>Lucie joined MDF in March and has attended nearly every\u00a0<a href=\"https:\/\/www.myotonic.org\/2024-mdf-regional-conferences\">2024 MDF Regional Conference<\/a>! At these events, she has connected with people living with myotonic dystrophy, researchers, and physicians. These experiences have fueled her eagerness to continue collaborations that bolster opportunities for connection and support programs that empower.<\/p>\n<p>As Senior Manager of Community Engagement, she has the \u201cjoy of working alongside over 45 passionate volunteers,\u201d who serve as\u00a0<a href=\"https:\/\/www.myotonic.org\/meet-team\/Support-Group-Facilitators\">Support Group Facilitators<\/a>. In April of 2024, she worked with\u00a0<a href=\"https:\/\/www.myotonic.org\/mindy-buchanan\">Mindy Buchanan<\/a>\u00a0to provide a Support Group Facilitator Training in Chicago, sponsored by\u00a0<a href=\"https:\/\/www.aviditybiosciences.com\/\" target=\"_blank\" rel=\"noopener\">Avidity Biosciences<\/a>. This was an incredible opportunity for her to learn from leaders in the myotonic dystrophy community.<\/p>\n<p>Another important facet of Lucie&rsquo;s role at MDF is managing the\u00a0<a href=\"https:\/\/www.myotonic.org\/request-warmline-support\">Warmline<\/a>. The Warmline provides one on one resource support for people living with myotonic dystrophy, their caregivers, and medical professionals. If you submit a Warmline request, Lucie may be the person assisting you!<\/p>\n<p>Additionally, Lucie is enthusiastic about working with the Movement Committee to create an incredible\u00a0<a href=\"https:\/\/www.myotonic.org\/myotonic-dystrophy-motion\">Myotonic Dystrophy In Motion<\/a>\u00a0awareness campaign during the month of July!<\/p>\n<p>During her spare time, Lucie loves to read, walk, volunteer in her community, and spend time with loved ones. Her desire to challenge herself exists in all areas of her life, including in her practice of Taekwondo &#8211; she holds a fourth degree black belt!<\/p>\n<p><strong>Please join us in giving a warm welcome Lucie Shiffman as our new MDF Senior Manager of Community Engagement!\u00a0<\/strong><\/p>\n<p><a href=\"https:\/\/www.myotonic.org\/meet-team\">Click here to learn more about Team MDF.<\/a><\/p>\n<\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"<p>The Myotonic Dystrophy Foundation is pleased to welcome Lucie Shiffman as our new Senior Manager of Community Engagement! \u00ab\u00a0We are absolutely overjoyed to bring Lucie onto the MDF Programs team! Along with Lucie\u2019s impressive background and skillset, her empathetic and joyful nature make her the perfect fit for serving the myotonic dystrophy community as our [&hellip;]<\/p>\n","protected":false},"author":9,"featured_media":12823,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[70],"tags":[],"class_list":["post-12822","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/myotonic.org\/fr\/wp-json\/wp\/v2\/posts\/12822","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/myotonic.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/myotonic.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/myotonic.org\/fr\/wp-json\/wp\/v2\/users\/9"}],"replies":[{"embeddable":true,"href":"https:\/\/myotonic.org\/fr\/wp-json\/wp\/v2\/comments?post=12822"}],"version-history":[{"count":0,"href":"https:\/\/myotonic.org\/fr\/wp-json\/wp\/v2\/posts\/12822\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/myotonic.org\/fr\/wp-json\/wp\/v2\/media\/12823"}],"wp:attachment":[{"href":"https:\/\/myotonic.org\/fr\/wp-json\/wp\/v2\/media?parent=12822"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/myotonic.org\/fr\/wp-json\/wp\/v2\/categories?post=12822"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/myotonic.org\/fr\/wp-json\/wp\/v2\/tags?post=12822"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}