New Diagnosis? Start Here



January 28, 2016

Rare Disease Day on Feb 29th gives us an opportunity to shine a spotlight on DM. MDF has activities planned for the entire month of February. Find out how you can join us in speaking out about DM.

January 28, 2016

In honor of Rare Disease Day Feb 29, MDF is rallying the community to drive research for Care and a Cure. The first 50 DM patients to sign up for a trial or study have a chance to win your own monogrammed lab coat autographed by leading DM researchers. In DM research, Every Body Counts: Can we count on you? Click here now to participate.

January 28, 2016

The use of anesthesia raises special risks to DM patients, which include heightened sensitivity to sedatives and analgesics. Serious complications are most common in the post-anesthesia period when risk of aspiration and other complications are increased. Click here for a handy, one-page summary of the anesthesia guidelines to share with your clinician and anesthesiologist. The complete "Practical Guidelines for the Anesthetic Management of a Myotonic Dystrophy Patient" will be available in February 2016.


© Myotonic Dystrophy Foundation. All rights reserved.