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May 15, 2017

There have been new discoveries in the way that congenital myotonic dystrophy (CDM) is inherited.

May 15, 2017

Many of you have seen posts on social media about treatments they have received in other countries or heard about through friends, that include everything from dietary aids to gene therapy, and want to how you can assess the possible benefits and risks of these 'treatments.' In this complicated therapy environment, how can patients make decisions about whether an available treatment or therapy is safe and effective? How can you tell the quacks from the cures?

May 4, 2017

Important review articles on disease mechanisms of and therapy development for DM have recently been published.

May 4, 2017

The UK DM Patient Registry reports on disease burden for 556 patients with a confirmed diagnosis of DM1.

May 4, 2017

MDF shares an update on program project grants from the NINDS.

May 4, 2017

A new DM1 mouse model, with postnatal expression of expanded CUG repeat RNA in the brain, implicates reduced MBNL1 and MBNL2 in the staging of pathological and functional changes.

April 13, 2017

The personal essay was written by Alex Wiggans, the grandson of MDF community members Dr. Glen Wiggans and Marlo Wiggans.

April 13, 2017

Registration is open! Register now for the 2017 MDF Annual Conference

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