Registration Opens April 15
The MDF is committed to raising awareness about DM and the community with members of Congress and important federal agencies like the FDA. This year our goal is to expand our engagement with key stakeholders in Congress, federal and state agencies, medical professionals and the media and we need your help!
Matthew Disney, PhD, associate professor in the Department of Chemistry at The Scripps Research Institute in Florida, has been working with a talented research team in his lab on a number of projects, including one studying how small molecules may target toxic RNA folds in DM2.
MDF community members often contact the Foundation with questions about genetic testing. We spoke with Carly Siskind of Stanford's Neuromuscular Team about the pros and cons of testing.
The MDF went to Washington, DC, last week to represent the DM community and participate in the Rare Disease Legislative Advocates Conference and Lobby Day.