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01/28/2016 - 7:43am

Rare Disease Day on Feb 29th gives us an opportunity to shine a spotlight on DM. MDF has activities planned for the entire month of February. Find out how you can join us in speaking out about DM.

02/11/2016 - 12:25pm

Ionis Pharmaceuticals is currently seeking trial participants to evaluate an experimental DM1 drug, IONIS-DMPKrx, that may help modify the disease rather than just treat the symptoms.

02/10/2016 - 9:17am

Show your health care team some love on Valentine’s Day! MDF is sending a specially designed Valentine to the DM medical community on behalf of all of us. Download and email or print the image to share it with your health care providers.

01/28/2016 - 7:51am

In honor of Rare Disease Day Feb 29, MDF is rallying the community to drive research for Care and a Cure. The first 50 DM patients to sign up for a trial or study have a chance to win your own monogrammed lab coat autographed by leading DM researchers. In DM research, Every Body Counts: Can we count on you? Click here now to participate.

01/28/2016 - 7:35am

The use of anesthesia raises special risks to DM patients, which include heightened sensitivity to sedatives and analgesics. Serious complications are most common in the post-anesthesia period when risk of aspiration and other complications are increased. Click here for a handy, one-page summary of the anesthesia guidelines to share with your clinician and anesthesiologist. The complete "Practical Guidelines for the Anesthetic Management of a Myotonic Dystrophy Patient" will be available in February 2016.


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