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2016 MDF Annual Conference

The latest in Research, Disease Management, Drug Development and more

This year’s MDF Annual Conference was held Thursday, September 15 - Saturday, September 17, 2016 in Washington, DC. We added an extra day to include the first DM Patient-Focused Drug Development (PFDD) meeting, where  MDF community members educated the FDA and other federal agency representatives about symptoms and disease issues that are most important to patients and families, and guided their thinking on DM drug review. The additional day also allowed us to provide more networking and education opportunities. Read a report about the conference here.

Watch Conference Videos and Presentations

To access presentations and videos from many of the sessions, click on the headers below.

Questions?

Contact MDF Program Director Paul Formaker for more information. 

2016 MDF Annual Conference - Community Agenda

The 2016 MDF Annual Conference Community Track included the following sessions below. You'll find links for the presentations and videos from those sessions linked below if they are available.

Thursday, September 15, 2016:

Friday, September 16, 2016:

Saturday, September 17, 2016:

Questions?

Contact Paul Formaker, Program Director, at (415) 872-7924 or via email.

2016 MDF Annual Conference - Professionals Agenda

Links to presentations for sessions and meetings included in the 2016 MDF Annual Conference Professionals Track are provided below, when available.

Thursday, September 15, 2016:

Friday, September 16, 2016:

  • Myotonic Dystrophy Clinical Research Network (DMCRN) Meeting
    • ​Presentation

Saturday, September 17, 2016:

  • MRI As a Research Endpoint - Grant Update
    • Presentation (pdf)
  • Supporting Patients: DM and Sexuality for Clinicians
    • Presentation (pdf)
  • Mega Mouse: Development of a New DM Animal Model
    • Presentation (pdf)
  • Assay and Screening Study - Grant Update
    • Presentation
  • Grant Writing Training
    • Presentation (pdf)

Questions?

Contact John Porter, MDF Chief Science Officer, at 301-807-9556 or via email.

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