On the 15th of September 2024, the Global Alliance for Myotonic Dystrophy Awareness unites over 60+ organisations from around the globe to mark the fourth annual International Myotonic Dystrophy Awareness Day. This day is dedicated to raising awareness about myotonic dystrophy (DM), a complex and often misunderstood genetic disease that affects thousands of individuals and families worldwide.

Dr. Łukasz J. Sznajder specializes in deciphering molecular mechanisms in human disorders caused by tandem repeat expansions and developing preclinical models and therapeutic strategies. As a tenure-track Assistant Professor at UNLV since 2023, he remains dedicated to exploring the roles of RNA biology in DM1 and DM2.

Scarlett brings 12 years of fundraising experience in the nonprofit sector to the team. In her role at MDF, Scarlett works to support our largest fundraising event of the year, the MDF Gala, and grow our revenue to ensure that MDF is able to continue expanding care and research efforts.

MDF is excited to highlight the work of five MDF interns, who have been working across several departments throughout this Summer! We are elated that Annalise, Danny, Juan, Natalie, and Sunny, have dedicated themselves to the MDF mission of Community, Care, and a Cure. We appreciate all of their enthusiasm to improve our support of the DM community!