MDF is bringing our Conference to a city near YOU in 2026! Individuals with DM of all types and ages, their families, and experts will all gather at these one-day conferences to explore the latest research, discuss strategies for better living, and to end isolation through community.

The Global Alliance proudly marks the fifth annual International Myotonic Dystrophy Awareness Day, bringing together over 60 organizations from 17 countries across five continents in a unified effort to raise awareness, promote research, and advocate for improved care for individuals and families affected by myotonic dystrophy.

The RNA Institute at the University at Albany’s College of Arts and Sciences hosted its annual “RNA Day” celebration on Friday, August 2nd. This day brought exciting news and celebrations for myotonic dystrophy (DM) research!

This July, MDF is thrilled to host the 2025 Myotonic Dystrophy In Motion Awareness Month—a month-long celebration centered around the theme: Movement Matters.