Barbara Ochoa is a dedicated Support Group Facilitator whose journey with DM has shaped her commitment to helping others. In this interview, Barbara shares how her family’s diagnostic journey inspired her to give back to the DM community.

With a focus on DM2, Dr. Łukasz Sznajder investigates how toxic RNA molecules with expanded CCUG repeats contribute to disease. His research aims to uncover new therapeutic targets and deepen our understanding of DM2 biology.

Dr. Scott Uhlrich is advancing digital tools to improve movement measurement in myotonic dystrophy (DM). His MDF-funded project uses smartphone video to develop accessible, accurate outcome measures for DM research and care.

MDF is thrilled to announce the launch of the 2026 Research Grant and Fellowship programs—aimed at accelerating myotonic dystrophy (DM) research, to improve the lives of individuals affected by DM, and pave the way toward finding effective treatments and ultimately a cure for this challenging condition.