MDF is excited to introduce “Understanding Myotonic Dystrophy”, a new series of short educational animations designed to educate people living with myotonic dystrophy (DM) and their healthcare providers! Our second animation “Understanding Myotonic Dystrophy – Inheritance of Myotonic Dystrophy Type 1 (DM1)”, explains how DM1 is passed down from generation to generation and highlights the importance of genetic testing.

As we welcome 2025, MDF is filled with hope and excitement for the year ahead! From launching new support programs and resources to hosting the International MDF Conference this May, we're making strides to advance care, connection, and hope for the DM community. Read a special message from our CEO, Dr. Tanya Stevenson!

Join MDF for a Advocacy webinar on February 11th at 4pm Pacific to learn how you can help increase research funding for myotonic dystrophy and become a US State Advocacy Captain.

We are thrilled to share that the MDF's Board of Directors recently approved an additional $805,000 in funding towards 2025 myotonic dystrophy research grants and fellowships, bringing MDF's total approved research funding in 2024 to over $1 million!