The RNA Institute at the University at Albany’s College of Arts and Sciences hosted its annual “RNA Day” celebration on Friday, August 2nd. This day brought exciting news and celebrations for myotonic dystrophy (DM) research!

This July, MDF is thrilled to host the 2025 Myotonic Dystrophy In Motion Awareness Month—a month-long celebration centered around the theme: Movement Matters.

On February 14, 2025, the RNA Institute and the Myotonic Dystrophy Foundation (MDF) organized and co-hosted the first ever symposium exploring how to include myotonic dystrophy (DM) in newborn screening. Conditions included in newborn screening are also diseases that do not have treatments but benefit from early disease management thereby significantly improving clinical outcomes.

A recent publication in Nature Genetics explores base editing as a solution to repeat expansion diseases similar to myotonic dystrophy (DM). This summary was created by Asmer Aliyeva, PhD Candidate in Dr. Andy Berglund’s lab at the RNA Institute, in collaboration with MDF's Chief Scientific Officer, Dr. Andy Rohrwasser.