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Weakness

There are currently no medications available that address myotonic dystrophy weakness. Symptomatic treatments include:

Neuromuscular assessment

Childhood/Adolescence

  • Normal or slightly delayed early motor development
  • Facial and neck muscle problems, typically without the facial appearance that is associated with the congenital form

Prenatal

  • Lower than normal fetal movement
  • Buildup of fluid (edema) in fetus organs and tissues (hydrops fetalis)
  • Increased amniotic fluid in mother (polyhydramnios). Breech position, placental abruption, and umbilical cord prolapse may result.

Classic Form

  • Commonly starts in the teens, twenties, or thirties with myotonia of the hand grip
  • Symptoms progress to weakness of gripping or pinching with the fingers, or moving the ankles

Click here for a PDF of the Physical Therapy Guidelines by Dr. Shree Pandya, PT, DPT, MS, and Dr. Katy Eichinger, PT, DPT, NCS, of the University of Rochester.

Click here for a PDF of the Occupational Therapy Guidelines by Dr. Cynthia Gagnon, PhD, of Université Sherbrooke.

...Recognizing that exercise does not prevent the progression of muscle weakness in DM, are there exercise regimens that are recommended to try and maintain what muscle strength is present?

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