Researchers and medical professionals from Europe, Canada and the USA gathered recently for a workshop in Europe to identify the main respiratory issues and best respiratory treatments for people with DM.
Care Tools Research
Clinical observation of gas exchange
- Measurement of respiration rate and work of breathing; comfort level; tachypnea
- Assessment of chest wall motion; abdominal muscle recruitment
- Observation for evidence of diaphragmatic paralysis
Adult Onset DM1
- Weakness of the diaphragm, abdomen and chest wall muscles affecting the ability to cough, resulting in chronic lung infections
- Failure of cerebral respiratory control, which may result in fetal distress
- Pulmonary immaturity, which may be further complicated by premature birth
For those who have a tracheotomy, the right answer may be "as needed" if the patient can get off the ventilator intermittently. Keeping the patient comfortable and able to communicate is important.
Nicholas Johnson, M.D., University of Rochester Medical Center
Nicholas Johnson answers questions from the audience.