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03/14/2017 - 3:22pm

In March, Republican Members of the U.S. House of Representatives’ Committee on Ways and Means and the U.S. House Committee on Energy and Commerce introduced legislation, entitled the American Health Care Act (AHCA), that would repeal and/or replace major parts of the Affordable Care Act (ACA). The ACA (also known as Obamacare) expanded health care coverage for more than 20 million vulnerable Americans and prohibited health insurance plans from discriminating against individuals with pre-existing conditions like myotonic dystrophy (DM). MDF is committed to advocating to help ensure that all persons with DM have affordable, comprehensive health insurance.

03/13/2017 - 11:30am

A potentially revolutionary technology may allow development of a drug for DM that can correct a patient’s DNA by selectively removing the expanded CTG and CCTG repeats in DM1 and DM2, respectively.

02/24/2017 - 10:39am

Clinical trials involve substantial investments by drug developers, but especially by DM patients and families. Clinical trials proposed for our community must have adequate scientific rationale behind them.

02/24/2017 - 10:22am

MDF runs down some important changes in the purposes and rationale of NINDS funding mechanisms for postdoctoral fellows.

02/24/2017 - 9:59am

FDA released an online course to accompany their draft guidance on how to best communicate with the Agency in preparing and filing an IND.

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