It is with great sadness and heavy hearts that the MDF mourns the passing of our founding chairman, Shannon Lord, who passed away on June 4, 2013. Shannon is survived by her husband, Larry Lord and her two adult sons, Hunter and Ashby.
News
02/19/2013 - 11:02am
On Rare Disease Day 2013 -- February 28th -- you'll be able to take a more active role in the fight against myotonic dystrophy (DM) by joining the new Myotonic Dystrophy Family Registry (MDFR).
01/23/2013 - 6:16pm
Methylphenidate, a psycho-stimulant drug, also known by its 1948 trademarked name of Ritalin, could be useful in the treatment of excessive daytime sleepiness (EDS) for DM1 patients,
01/23/2013 - 5:11pm
Help the research community better understand myotonic dystrophy and improve the lives of the people and families living with DM by joining the Myotonic Dystrophy Family Registry (MDFR), which will launch in February 2013.
11/29/2012 - 9:47am
MDF takes its role as an advocate for the myotonic dystrophy community very seriously; we are committed to increasing visibility and understanding of DM, improving the quality of life of people living with this disease, and doing our part to accelerate research progress toward treatments and a cure for DM.
