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09/27/2012 - 5:32pm

If you attended this year’s MDF Annual Conference, you heard about it there. If you didn’t, read on to learn more about MDF’s newest initiative.

Yale Women's Field Hockey
08/31/2012 - 1:48pm

The Yale Women's field hockey team is once again on a quest to raise awareness about myotonic dystrophy, the most common form of muscular dystrophy, and much-needed research funds for the Myotonic Dystrophy Foundation.

08/29/2012 - 2:40pm

It's a wrap! A sold-out gathering of over 300 DM families, researchers, medical professionals and vendors from the U.S., Canada and countries as far-flung

08/10/2012 - 10:36am

It is with sadness that the MDF Board of Directors announces that Lisa Harvey has resigned from her role

07/26/2012 - 1:06pm

There aren’t many 5 year olds who fall in love with a blind, Italian opera singer. But then, Kaliana Warford, Kali for short, was no ordinary 5 year old. Kali, now 10, was diagnosed with congenital myotonic dystrophy when she was 3. Her diagnosis led to the same diagnosis for her then 23-year-old mother.


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