Government Agencies

  • Centers for Disease Control and Prevention (CDC)
    The CDC is an organization that is committed to achieving true improvements in people’s health. CDC applies research and findings to improve people’s daily lives and responds to health emergencies—something that distinguishes CDC from its peer agencies. Working with states and other partners, CDC provides a system of health surveillance to monitor and prevent disease outbreaks (including bioterrorism), implement disease prevention strategies, and maintain national health statistics. CDC also guards against international disease transmission, with personnel stationed in more than 25 foreign countries. 
  • National Center for Biotechnology Information (NCBI)
    NCBI is a national resource for molecular biology information that creates public databases, conducts research in computational biology, develops software tools for analyzing genome data, and disseminates biomedical information - all for the better understanding of molecular processes affecting human health and disease.  Learn more about myotonic dystrophy:
  • National Institutes of Health (NIH)
    NIH is a part of the U.S. Department of Health and Human Services, the primary Federal agency for conducting and supporting medical reseaerch.  Helping to lead the way toward important medical discoveries that improve people's health and save lives, NIH scientists investigate ways to prevent disease as well as the causes, treatments, and even cures for common and rare diseases. 
  • ClinicalTrials.gov  a searchable listing of clinical trials conducted in the United States and around the world. 
    ClinicalTrials.gov