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Myotonic dystrophy is a progressive disorder that affects multiple body systems. Currently there is no cure for myotonic dystrophy (DM1, DM2), and therefore managing the disease symptoms is essential to enhancing quality of life for individuals living with DM. In addition to physicians, physical therapists, occupational therapists and speech therapists are essential members of the multidisciplinary team necessary for the comprehensive management of children and adults with DM. Other professionals that may also be involved include respiratory therapists, orthotists and durable medical equipment providers/specialists.

Click on the links below for physical therapy and occupational therapy guidelines.

Occupational Therapy Guidelines

Click here for a PDF of the Occupational Therapy Guidelines by Dr. Cynthia Gagnon, PhD, of Université Sherbrooke.

Physical Therapy Guidelines

Click here for a PDF of the Physical Therapy Guidelines by Dr. Shree Pandya, PT, DPT, MS, and Dr. Katy Eichinger, PT, DPT, NCS, of the University of Rochester.


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