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Our Global Alliance

The Global Alliance brings together over 60 myotonic dystrophy-focused organizations from around the world to raise awareness, share resources, and support the DM community.

Association Shifa of Neuromuscular Diseases (ASMNM)

Algéria

MDA Australia

Founding member

Australia

Association Belge contre les Maladies neuro-Musculaires

Founding member

Belgium

The Neuromuscular Disease Network for Canada

Founding member

Canada

Muscular Dystrophy Canada

Canada

Muskelsvindfonden

Founding member

Denmark

Euro-DyMA

Founding member

Europe

AFM-Téléthon

Founding member

France

Deutschen Gesellschaft für Muskelkranke e.V.

Founding member

Germany

Muscular Dystrophy Association HELLAS

Founding member

Greece

Centro Clinico NeMO

Italy

FMM – Fondazione Malattie Miotoniche

Founding member

Italy

Myotonic Dystrophy Patients’ Group of Japan

Founding member

Japan

Maastricht UMC+

Netherlands

Stichting MD (Nederland)

Founding member

Netherlands

Spierziekten Nederland

Founding member

Netherlands

Centre for Brain Research, Neurogenetic Clinic, University of Auckland

New Zealand

University of Belgrade – Faculty of Biology, Center for Human Molecular Genetics

Serbia

Arthex Biotech

Spain

CIBER

Spain

DM1-Hub

Spain

Germans Trias i Pujol Research Institute

Spain

INCLIVA. Health Research Institute

Spain

Universitat de València

Spain

ASRIMM (Association Suisse Romande Intervenant contre les Maladies neuro-Musculaires)

Founding member

Switzerland

Lupin Neurosciences

Switzerland

AMO Pharma Ltd

United Kingdom

Cure DM Myotonic Dystrophy UK

Founding member

United Kingdom

Myotonic Dystrophy Support Group

Founding member

United Kingdom

Muscular Dystrophy UK

Founding member

United Kingdom

St George’s University Hospitals NHS Foundation Trust

United Kingdom

TREAT-NMD

United Kingdom

UK Myotonic Dystrophy Patient Registry

Founding member

United Kingdom

University College London Hospitals NHS Foundation Trust

United Kingdom

University of Florida Center for Neurogenetics

US

Arrakis Therapeutics

USA

AskBio

USA

Astellas Gene Therapies

USA

Athens Academy

USA

Avidity Biosciences

USA

Dyne Therapeutics

USA

Entrada Therapeutics

USA

GrittGene Therapeutics

USA

Harmony Biosciences

USA

Houston Methodist Department of Neurology

USA

Kansas State University Wildcat Extension

USA

The Jackson Laboratory (JAX)

USA

Muscular Dystrophy Association USA

Founding member

USA

Myotonic Dystrophy Foundation

Founding member

USA

Myotonic Dystrophy Family Registry

Founding member

USA

Juvena Therapeutics, Inc.

USA

Indiana University School of Medicine, Dept of Neurology

USA

National Registry for Myotonic Dystrophy (DM) & Facioscapulohumeral Dystrophy (FSHD)

USA

Paul D. Wellstone Muscular Dystrophy Cooperative Research Center

USA

PepGen

USA

Stanford University

USA

NeuroGenetics Student Organization at the University of Florida

USA

The RNA Institute, University at Albany, SUNY

USA

University of Iowa Health Care

USA

University of Utah

USA

Vertex Pharmaceuticals

USA

Virginia Commonwealth University

USA

Wake Forest University, Department of Neurology

USA

International Myotonic Dystrophy Consortium

Founding member

Worldwide