Planning for adulthood: A guide for families & caretakers of children with CDM

This practical guide for families and caregivers outlines key elements to consider in the transition to adulthood for children living with CDM. Designed for U.S.-based families, this resource provides clear overviews of legal decision-making, education and healthcare transitions, public benefits, and financial planning, with checklists to support early and informed preparation. It highlights timelines and questions to explore with qualified professionals as families plan for the future.