We’ve refreshed our website! Take a look around, tell us what you think, or revisit the archived site.
Save the Date: Join us April 28 - May 2 for the 2027 MDF International Conference in Seattle, Washington!
IMPORTANT: Find all anesthesia guides for individuals and their families and healthcare professionals

Clinical care recommendations for cardiologists for adults with DM1

Last modified: June 24, 2026

While disease-specific cardiac guidelines for DM2 are more limited, expert consensus supports applying these DM1 cardiac care recommendations to individuals living with DM2 as a precautionary measure. Given the potential for serious and progressive cardiac involvement in DM2, following DM1 standards of care is considered the safest and most proactive approach to monitoring, risk reduction, and intervention.

Download/view the resources

Consensus-based Care Recommendations for Cardiologists Treating Adults with Myotonic Dystrophy Type 1.

Recomendaciones por consenso para cardiólogos que tratan adultos con distrofia miotónica tipo 1.