The Myotonic Dystrophy Foundation's impact
An in-depth reflection on the difference we’re making and the momentum we’re building for lasting, transformative change in myotonic dystrophy.
Commitment to transparency
Your support drives meaningful impact, from comprehensive resources to research advancing DM therapies. See how your contributions make a difference.
We are stronger together. Thank you for your support.
Thanks to you—the Myotonic Dystrophy Foundation (MDF) community members who volunteer, donate, advocate and help fulfill our mission of Community, Care, and a Cure—MDF has become the world’s largest myotonic dystrophy (DM)-only patient advocacy organization, serving individuals and families around the world.
The state of the foundation is strong
The Myotonic Dystrophy Foundation was founded by families with DM seeking to help one another and to find a cure. Every day, we focus on helping families living with myotonic dystrophy by delivering comprehensive support resources, and driving research to accelerate the discovery of DM therapies. You make this work possible, and we want you to know just how much impact you have helped to create.
Fueling the future of Community, Care & a Cure
Hear directly from the DM community about how your support is transforming lives.
Finding Community: How MDF connects families living with myotonic dystrophy
Published: December 5, 2025
Care that Connects: How MDF supports families living with myotonic dystrophy
Published: December 5, 2025
Advancing the Cure: How MDF drives research in myotonic dystrophy
Published: December 5, 2025
Building Hope and a Future: Our Myotonic Dystrophy Journey—Benjamin Reynolds' Fa...
Published: December 18, 2024
Hope & Connection in the Myotonic Dystrophy Community—Luke Desforges' Family...
Published: December 23, 2024
Give a Gift that Makes a Lasting Impact on the Myotonic Dystrophy Community!
Published: December 28, 2024
